Fainting/loss of consciousness

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Fainting/loss of consciousness

Postby redlily » Thu Sep 04, 2014 12:18 am

Hi :-)

This is my first post although I've had FM for years. I was finally diagnosed in 2009 after suffering symptoms since 2004. Since then my symptoms have worsened and around the time of my diagnosis I started blacking out. The first time it happened I was at a friends house doing what we always did on a Friday night; playing cards and having a laugh. I suddenly felt unwell and couldn't stand or speak properly then I completely lost consciousness. Ever since it has been a problem usually when standing or being active for a short period of time. Standing causes me to generally feel unwell, sometimes I loose control of my coordination and veer off a straight walk, but it's the dizziness and fainting that are the biggest problem.

I have spent the last 3-4 years being investigated by cardiologists, neurologists and other specialists, I've had all sorts of tests and no cause can be found. My neurologist said last week, on my last appointment before he finally discharged me, that he believed it may be a manifestation of FM but a GP I saw today is of the opinion it is unlikely as he has never come across it linked to FM.

The other medical conditions I have are anxiety and depression, possible PTSD (under current investigation, for the last 5 years *sigh*) and mild asthma, nothing that would cause faints.

I'm wondering if anyone here can shed any light on my situation?

Thanks :-D
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Re: Fainting/loss of consciousness

Postby Theresa34 » Thu Sep 04, 2014 9:07 am

I havent fainted but I do get light headed when I stand up after sitting for a long time. It doesn't worry me too much. Obviously its worrying you and you ARE fainting. Could it be blood pressure related? Are you eating enough food? Getting enough exercise? Dont know what else it could be. What does the gp say?
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Fainting/loss of consciousness

Postby rich44 » Thu Sep 04, 2014 9:39 am

Are you on any meds? I've had this since starting duloxetine, so wondering if something you're taking is causing it?
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Re: Fainting/loss of consciousness

Postby Gracious » Thu Sep 04, 2014 6:33 pm

Redlily, some of the symptoms you mention can be associated with side effects to medication, and some of the symptoms have associations with vertigo, Labyrinthitis and FMS/CFS.

If I get over tired, pick up a bug or have a poor nights sleep, which can be often as I have chronic insomnia, it triggers severe dizziness, spinning, light headiness and feeling sick, to the point I my be lying in bed holding onto the edges for I feel I am going to fall off. If sitting I can feel like I am falling. Standing and walking feels like I have just downed a bottle of brandy, everything is moving and I have no sense of proper spatial awareness. If I dont lie down to it, then yes there is a risk of fainting, but not often, I just feel mostly like I may faint, especially with the ringing in the ears.

The medication I was given to manage my symptoms was Prochlorperazine Maleate 5mg one or two three times a day. It was and is extremely effective and for me mostly side effect free.

Personally, I have always associated my fainting with a sudden drop in blood pressure. Getting over tired and over excerting yourself can trigger a sudden blood pressure drop. Its common for individuals with FMS to be on the lower end of normal on the resting blood pressure scale (Normal 120/80, low normal is 100/60). I sit around 105/65 at resting most days and on the occasions when I have these episodes it does drop and the only thing to help was rest and eventually take the above medication. I no longer need to take it permanently as I improved my pacing but when I have a bug/migraine or have over done it or dont sleep I find I will need to that a small dosage to help keep the dizziness/spinning and sickness in check.

I am assuming that the neurologists have looked into Narcolepsy, epilesy, low blood pressure and other possibilites and ruled these all out. So I think your doctor is right to wish to investigage this further and not just assume its an FMS Symptom. If Prochlorperazine Maleate is not something the doctors or specialists have considered, have a chat with them and see what they say.

I hope this is of some help and that your doctors are able to help you get some control in the managment of what your experiencing, and don't give up in pursuing some confirmation as to whats happening within these episodes, as knowing and understanding why its happening, even if it cannot be fixed, helps you to be more accepting of whats happening to you.

With loving kindness
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