fibromyalgia/ polymalga

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fibromyalgia/ polymalga

Postby kitten » Sun Oct 12, 2014 5:51 pm

Has any one else heard this I have been going for acupuncture since March this year and it does seem to have had some affect but what has now concerned me is that she is trying to get me off taking amitriptyline I only take 1 10 mg and off Buscopan which I take 2 3 times a day if and I take 1 codeine at night , this doe's not sit right with me, but what really had me confused is that on my last visit she said that Polymyalgia was the same as Fibromyalgia , I was at first tested for this as we all know will show up in your blood ,test that came back negative , also I am lead to believe that Polymyalgia can burn it self out in a couple of years ,

I have a Dr appointment on Tuesday and this is the first question I will be asking , also why is she so insistent that I come off the tablets it's not like I take high amount of them
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Re: fibromyalgia/ polymalga

Postby madtaz37 » Sun Oct 12, 2014 6:16 pm

Ive been told by the doctor to try Acupuncture . my first session is thurs . does it work for you Kitten?
i could not take Amitripyline as i had a rection and there is nothing else she can give me (i wasnt happy ) . As ive only just got my diagnosis and unsure if what else i could take just praying that Acupuncture works . it alot to pay if it doesnt .
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Re: fibromyalgia/ polymalga

Postby zoomie » Sun Oct 12, 2014 6:26 pm

I have acupuncture and it really helps, in a bit concerned that your practitioner is asking you to come off your meds, this is really not on! If think about finding someone else!
Ask your doctor about the other thing, but as you said already it can be tested for, mine was also negative xx
Fibromyalgia comes in many shapes, sizes and abilities... DON'T DISCRIMINATE!!!!
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Re: fibromyalgia/ polymalga

Postby Hellyn » Sun Oct 12, 2014 7:58 pm

hi, therapist is not a medic and should not advise on medication, it is not professional to do so. only your gp or consultant can do this. :nono:

they aren't suppose to interfere with your meds but take them into account. i used to be a therapy trainer and it is a :nono:

hope the accupuncture helps.

hellyn :-D
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Re: fibromyalgia/ polymalga

Postby Hannah24 » Sun Oct 12, 2014 8:14 pm

Hi,

Fibromyalgia and polymyaliga are two different things. Some doctors refer to Fibro and polymyaliga because there is a lack of understanding about the conditions. Not all doctors recognise Fibro and so sometimes refer to it (even if it has been diagnosed by an expert) as polymyalgia.
Hope this helps.

Hannah
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Re: fibromyalgia/ polymalga

Postby Graciebaby » Sun Oct 12, 2014 11:31 pm

Hi,
I am astonished that your acupuncture therapist is attempting to advise you about your meds :nono:
As has been stated, only your doctor or consultant is qualified to do so. Your therapist is way out of line in doing this, also she suggests that Fibromyalgia and Polymyalgia are the same thing.......as you know, they are not. She lacks the qualifications and the knowledge to offer her opinions regarding your diagnosis and the same applies with regard to your medication.
Gosh, I'm sorry, I'm not having a go at you at all, but I am quite cross about what she has said to you :shock:

You are right to have a word with your GP about your concerns. Was it your GP that referred you to this particular therapist, or do you see her privately?
It's good that your acupuncture treatment helps you, however it is a complementary therapy which should help your condition along side conventional medical treatment such as medication :-)

Take good care,

G. x
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Re: fibromyalgia/ polymalga

Postby kitten » Mon Oct 13, 2014 12:07 pm

Thank you for your replies
yes it has helped but then I have been going since March it's a private one and quite costly

And I said I am not happy with the constant we will have you off the tablets , when I have told her that I seem to be managing ok on the dose I take she always come back with yes but you will be a lot better off with out them especially Amitriptyline it's not a good drug as is Buscopan and Codeine and then when she said that Fibromyalgia was the same as polymyalgia this is when I thought this is not right
Got a Dr appointment tomorrow so will see what he has to say about it all
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Re: fibromyalgia/ polymalga

Postby FluppyPuffy » Mon Oct 13, 2014 12:25 pm

From my understanding, FM and Polymyalgia are 2 separate conditions rather than being a part of each other. It is possible for someone to have both conditions together, just like it is possible for someone to have one or the other separately.

We have a relative who was dx'd with Polymyalgia a few years ago. I think part of their treatment involved steroids, and after something like 2 years, they were told that the Polymyalgia had burnt itself out. If you want to find out a little more about them, try using the Search box as there have been a few mentions on here.

I was under the impression that only a prescribing healthcare professional was able to say/tell you to stop taking meds, and that what non~prescribing people said should be taken as a suggestion {or an opinion} to be discussed with a GP/Consultant/Specialist about whether it would be a suitable approach for you to take/try out. If you feel that your current cocktail is suiting you, and your GP and other doc~type people are also of the same mind, then you should carry on with it until you reach a point where you feel some changes may be needed to help keep you bobbling along.

It sounds like you may need to be somewhat more direct with your acupuncturist about these issues as giving out such "advice" to clients could be dangerous in so many ways.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: fibromyalgia/ polymalga

Postby kitten » Wed Oct 15, 2014 10:08 am

Went to the Dr yesterday ,and told him what had been said about stopping the meds and also her saying that FM was the same as Polymyalgia
Well first off he said like we all know that it is not the same and Polymyalgia tends to burn it self out after two years and that condition show's up in a blood test , as for coming off meds why she has seen fit to suggest it when I said she seems to have a thing about taking anything , then he asked if the acupuncture's was with the NHS when I told him she was private he seem to take a different attitude , as we all know they all stick together

Well you have two options one is you stop going, or two you stop the meds to see how you go on , as the tablets you take are not for a life threating condition ,if it had been diabetes that would have put a different slant on things , however he did say if you feel that it has made you feel worse then come back and we will review your meds

We have not lived here long , not sure how too take this Dr only seen him three times suppose you get used to your old Dr's when you have been with a practice for 35 years.
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