Restless leg syndrome

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Restless leg syndrome

Postby dotty lotty » Fri Oct 17, 2014 5:27 am

Got this added to my long list of problems yesterday. I thought RLS was only legs but no. :facepalm: :facepalm:

It explains the constant need to move my body around when sitting, twitches and exaggerated involuntary limb movement.

But it really goes into top gear when in bed. The legs are everywhere (even on hubbies pillow) and my whole body is jerking and lashing about during sleep. No wonder we are so tired when we waken. Managed to wake up at 1am today (now that is even early for me) doing the RSL dance. Hoping the ropinirole helps. :fingerscrossed: :fingerscrossed: :fingerscrossed: :teddy-bear:
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Re: Restless leg syndrome

Postby Theresa34 » Fri Oct 17, 2014 11:02 am

Used to get that til the Amitriptyline kicked in (no pun intended :-D ) x
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Restless leg syndrome

Postby penelopepitstop » Sat Oct 18, 2014 12:11 pm

I get that too in the evenings and in bed, I also have taken to biting my tongue in the night, which makes my tongue very sore :( I have started taking Amatriptolene which is helping me to sleep, and riprinole for the jerks, they were helping me, but the jerks are coming back with a vengeance. Due to go back to docs for a catch up next week so will see what he says. It's not very nice having RLS and the jerk, or I have heard they are also called tremors, so I can empathise with everyone that has them.

ps. sorry about the spelling :oops:

Wish you all well
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Re: Restless leg syndrome

Postby penelopepitstop » Mon Nov 03, 2014 6:26 pm

Hi everyone that might read this,

I have been back to my docs for a catch up on my medication. I have come off very slowly the slow release Tramadol, it was not doing anything for me, even after about 2 years of being on it. The Riprinole isn't helping with my RLS and muscle jerks, on a good note the 35mg a night of Amatripolene is helping with my sleep. My doc seems at a loss to what to give me, so he has said stop taking Riprinole and take 50mg of Amatriptolene. So did that and I feel like a zombee in the morning, and getting worse RLS and jerking muscles, worse ones in my legs, he also mentioned that it could be a side affect of other meds I'm on. The only other meds I can stop taking is my Citilopram, so have started again very slowly reducing the dose to give it up, although I am a little worried as I have been on the for around 15 years.

Have any of you got any advice on this as very worried about this.
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Re: Restless leg syndrome

Postby lala1980 » Thu Nov 13, 2014 8:13 pm

Hiya how are you doing dotty lotty? ive been on ropinirole 1mg for about a year now it worked straight away with my RLS i think ive been lucky by the sound of it my gp said i could up my dose if i needed to and or have it earlier during the day im also on Amitriptyline 75mg for the pain but helps with depression so time i get the jerking of my legs it can also be in my arms on bad days so i try have my ropinirole as early as i can 6pm or when its really bad i take one at lunch time again at tea time sorry im going on lol take care xx
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Re: Restless leg syndrome

Postby dotty lotty » Fri Nov 14, 2014 6:29 am

Hi Lala so far the ropiniole is working really well on 1mg so room for manoeuvre if symptoms worsen again. I also had it in my arms. It is good that you can vary times of medication to suit symptoms. Hope you doing OK :hugs: :teddy-bear:
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Re: Restless leg syndrome

Postby GayleRuth1978 » Tue Nov 25, 2014 12:19 pm

Hi Everyone,
My Physio is fab and he recommended a daily magnesium tablet for my RLS - it obviously doesnt erradicate it but it has helped with the twitching.
He explained it like this - people with fibro have tendons that are constantly sparking off each other - its that that give you the twiches and the feeling that theres ants running through your veins - the magnesium helps to smooth these tendons down so they dont spark off each other so badly.

hope this is helpful
xx
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Re: Restless leg syndrome

Postby ichigo.ghost » Sat Dec 06, 2014 5:58 am

the movement extending to twitches all over body is terrible. i was put on duloxatine (cumbalta). it stopped pretty much all my RLS and the myclonic twitches. Just have the odd ones at night occasionally.
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Re: Restless leg syndrome

Postby Davlad » Sun Jan 11, 2015 10:52 pm

Hi all, after a very bad fall 5 years ago where i had severe trauma to the head (fell downstairs) after 2 years a few things started to happen firstly i began to get restless leg syndrome symptoms but more from the chest/torso along my arms down to my arms couldn't sleep the symptoms are indescribable, then i started to have what was exactly like Helica Bacta Pylori symptoms i know as i had had it twice before then the aches pain tiredness sore joints the full monty of all Fibro symptoms i then found what i thought was prostrate problems ie couldn't empty my bladder after tests they recommended an operation to open the doughnut as it was... by the way i'm male am now 60 so this started at 55 also around that time i went about my prostrate i had the full mot omg came back diabetes 2 and all that goes with it... so now i'm waiting for an operation on my prostate and have just been diagnosed with Fibro after many tests to rule out other things, but i have my doubts my specialist put me on Matrifen pain patches which cured the stomach Problem and helped me sleep but i was just out of it like a zombie and was sleeping for 14 hrs a day and no way to lead a life and did nothing for my other pain i find Tramadol worked best for the Neurothapy...i have looked up my syptoms and through the restless leg syndrome i found out what i think i have is Autonomic Neuropathy where the nerves in the body die this particular Neuropathy dibilitates the function of emptying the stomach hence the Pylori stomach problem the ability to empty my bladder hence the prostrate problem and in men ED which is really bad for a man of course so i think mine is down to my Trauma leading to a mixture of many of these same symptoms but not sure which as i've not been back to my specialist till the 7th Feb' has anyone else had these Problems because for sure life isn't the same as it's impossible to lead a Happy Social Life.... Regards Davlad
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