labyrinthitis??

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labyrinthitis??

Postby janetbooboo » Mon Oct 20, 2014 6:28 pm

Hi everyone, hope you are as well as possible. I have a question about labyrinthitis. All weekend I was suffering with "vibrations" and "spasms" in my head. I felt totally drained, ill, dizzy and just wanted to sleep. I felt queezy but was able to eat. I'm not a complete newbie to this as I had the same only much much worse around 12 yrs ago. I didnt get a diagnosis then as the gp was concentrating more on my stomach as I couldnt eat or drink anything. I lived on crackers and milk for around 18 months. However, this last weekend, I started with the same symptoms as i had all those years ago. I have been to the doctors today and he suggested it could be labyrinthitis. I would be so grateful of any opinions/knowledge etc as I'm a bit lost with it. One thing I will add, is that in 2010 I had an MRI scan on my brain showing 5 lesions and poss MS. Having gone to numerous specialists, a diagnosis wasn't given, so have been treated for fibromyalgia ever since.
Any Help would be great.
Thanks
Jan.xx :roll:
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Re: labyrinthitis??

Postby becbob » Mon Oct 20, 2014 9:41 pm

I have had labyrinthitis. I didn't have FM then. It was horrible. Every time I stood up I was physically sick. I walked like I was very drunk, very lop sided and I kept veering off to one side, I could not walk in a straight line. Also when I stood I would be very dizzy It lasted for about 8 weeks. Its a horrible thing to have but I would suggest you see you Dr again. It doesnt sound like you have it to me but I am not a doctor I am just going by my own symptoms.
Having FM is awful because every new sign or symptom I get now I put down to FM but I shouldn't really. Hope you get things sorted soon. X
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Re: labyrinthitis??

Postby Gracious » Mon Oct 20, 2014 11:34 pm

Becbob, all the symptoms bar one sounds like labyrinthis except for the head spasms. Not one normally mentioned or listed, but everything else is similar.

I get labyrinthis regularly, all it takes is a few bad nights sleep, or a migraine, or infection or a fatigue flare up and it will come on again. As soon as is does I take Prochlorperazine 5mg 3 times daily, which I was perscribed after I went to my GP. This got rid of it very quicky for me and really helps with nausea too. It can affect sleep but better that than being unable to function. I was literally stuck lying holding onto my bed, feeling like I was going to fall over, the whole room would be spinning.

I stupidly waited till I was very distressed with it and once I spoke to the doctor and got the medication I was up and about within 4 days and a further 10 days to completely lift.

Nowadays I catch it early, as soon as I feel it coming on and stop it in its tracks. But a no time did I ever experience head spasms. Neck pain and stiffness but definately no head spasms.

I think a wee trip to the doctor would be highly recommeded if he hasn't already given you medication to treat it. Just know if it is labyrinthis, there are workable medications that can help most patients.

You wont be able to rule labyrinthis out till you try some treatment. If it doesn't work then the doctor can then look at other possible explanations. I would try not to worry too much at this stage, which is easy to say, not easy to do.

Hope this is of some help
With loving kindness
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Re: labyrinthitis??

Postby Theresa34 » Tue Oct 21, 2014 8:26 am

Last year I had labrynthitis along with an upper respiratory infection. My symptoms from the labyrinthitis were severe dizziness. The room would spin like I was on a roundabout. It was horrible :(
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: labyrinthitis??

Postby janetbooboo » Tue Oct 21, 2014 10:31 am

thanks so much everyone for your replies. The doctor gave me the meds that you mentioned prochlorperazine 5mg, so will see how I get on. Thanks again.
Jan.xx
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