Does anyone have MS?

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Does anyone have MS?

Postby Zia2014 » Mon Nov 03, 2014 3:27 pm

I tried to do a search but MS was too common lol.

I'm beginning to think I might have this, either instead or as well as fibro. Not trying to be a hypochondriac, it's just some of my symptoms, including some pretty big ones (to me), don't fit with fibro. I'm just trying to find someone with MS I can ask some questions of.

I have looked on the MS forums as well, before anyone suggests it.
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Re: Does anyone have MS?

Postby Diane64 » Mon Nov 03, 2014 7:31 pm

Hi I dont have ms but my daughter-in-law does, alot of the symptoms of both fibro and ms are similiar however she was able to be diagnosed with a lumbar puncture and mri as ms shows scarring in the brain but as you may know fibro shows up zilch.

I have fibro and as I said both do have similiar symptoms, maybe asking for a referral to a specialist who would go through tests with you to rule out ms might beneficial.
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Re: Does anyone have MS?

Postby Zia2014 » Tue Nov 04, 2014 2:51 pm

Thanks for your reply Diane. Odd question, but does she get really hot when it's actually cold?

It is by far my biggest symptom outside of the pain/fatigue, and every professional I've spoken to has said it's not usual with fibro. I know quite a few people get really hot when it's warm, but this is totally different and rather worrying.
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Re: Does anyone have MS?

Postby whoami » Tue Nov 04, 2014 7:25 pm

My father in law had MS. Yes some symptoms are similar to fibro. You need to discuss your concerns with your Dr Who can confirm or deny your worries.

Temperature is a big issue for me also. I can be on fire but it is cold to others. I also can be freezing cold when the temperatures are in the 30's.

A lot of people are tested for MS while going through the diagnosis for fibro. The symptoms presented to us definitely can be confusing and make us question. As I said talk to your Dr he will help.
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Re: Does anyone have MS?

Postby Zia2014 » Wed Nov 05, 2014 12:27 pm

Thanks whoami. I've already been tested for a boat load of stuff, I don't think he'll do any more now I've had a diagnosis. I just wanted to find out if MS sufferers got this as I have slight doubts about the fibro.
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Re: Does anyone have MS?

Postby Zia2014 » Wed Nov 05, 2014 5:27 pm

Thanks Lisa. I'm really not sure. I've had to cancel my planned appointment to do my Tai Chi anyway, so I'll think about it.
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Re: Does anyone have MS?

Postby Diane64 » Wed Nov 05, 2014 6:57 pm

Your welcome Zia, my daughter although my daughter in law had a mri it was actually the lumbar puncture tests that showed the ms, she suffers from extreme cold/hot issues but so do I.

The worst being on holiday in over 30dgs heat and shivering like I was in a fridge, even going round the shops and at the refrigeration part has me on edge.

Lisa, I would be really concerned if my bloods came back abnormal and not investigated further, that's just sheer negligence on docs part.

Zia ask for a second opinion, at least you are entitled to that even if it comes back the same thing its peace of mind.
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