hypermobility syndrome

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hypermobility syndrome

Postby sammilou2012 » Sat Jan 17, 2015 4:41 pm

Hey Guys,

Well i got my offical Rhumatologist diognosis of Fibromyalgia but she also said i have hypermobility syndrome. Ive never heard of this so looked it up and it does explain a few of my symptoms.

does anyone else have both fibro and Hypermobility?

I am currently pregnant so cant take anything atm so really struggling with the pain and lack of energy! :(

Thanks

Gentle hugs <3
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Re: hypermobility syndrome

Postby Azteka » Sat Jan 17, 2015 5:04 pm

Basicly its what people call double jointed, means ur more flexable altho there is other issues with it thats the main gist of it

But because our joints are more flexable than oothers it means we are high risk of having things pop out of place and the joints can wear away quicker and it can be painful

Most REALLY. good dancers have it and contoranists etc
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Re: hypermobility syndrome

Postby charlotteerika » Sat Jan 17, 2015 5:25 pm

Yes I was diagnosed with both at the same time however I always knew I was 'double jointed' the common name for Joint Hypermobility . Studies have shown a high percentage of people with Fibro also have hype mobile joints (loose ligaments) citing Leon Chaitow N.D., D.O.
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Re: hypermobility syndrome

Postby Kayleigh » Sat Jan 17, 2015 5:28 pm

I was diagnosed with fibro about 6 years ago and only a couple of months ago I was told I also had hypermobility. No tablets work anymore and with the pain as bad as it is I bet your pregnancy is so difficult, I really feel for you. Hope things get easier for you
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Re: hypermobility syndrome

Postby Azteka » Sat Jan 17, 2015 5:35 pm

Ive been diagnosed with widespread chronic pain syndrome in march last heat before that i was told i had joint hypermobility syndrome and chronic pain syndrome, im am still waiting for the official Fibromialgia diagnosis altho at lest one GP has said it sounds a lot like i do have fibro one i gpt to go tbrew the tests to rjle out other stuff first and be couldnt give the diagnosis of fibro. But i have finaly got the start date
(after almost a year of waiting) for my pain management course
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Re: hypermobility syndrome

Postby Gingermama » Sat Jan 17, 2015 6:55 pm

Yep I have both. I found out I was hypermobile when I was pregnant over 4 years ago but only diagnosed with fibro in November. My hips are prone to popping out and when they do it causes major flare of pelvic pain which is my main area of pain.
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Re: hypermobility syndrome

Postby dazzleship » Sat Jan 17, 2015 7:04 pm

hi yes I have both. diagnosed with fibromyalgia almost three years ago, and diagnosed with hypermobility syndrome / ehlers danlos type 3 about a month ago.

just to clarify something.. many people are hypermobile i.e. they have hypermobile joints but it doesn't necessarily give them any problems. it is only when the joints start to hurt or you get a lot of other injuries (bursitis, tendonitis etc) and sometimes other problems (connective tissue problems such as poor wound healing, stretchy skin, characteristic scarring) that it becomes known as hypermobility syndrome. and of course the dislocations/subluxions too although not everyone with HMS have these.

I'm still learning about all this myself but I find that since my diagnosis (by a rheumatologist) it seems my GP is much less knowledgeable about it so frustratingly I'm having to research a lot of it myself :roll: but I'm discovering a lot of things that I can relate to that I've had over the years and now know are signs of HMS.

as for having both fibro and HMS - apparently a lot of people with Hypermobility Syndrome also have Fibromyalgia, and the way I understand it is that the loose joints cause pulling on the muscles giving the Fibro symptoms. that's just my understanding of it though.

this has just reminded me of my previous GP who, when I asked her about a year ago if I might possibly have hypermobility syndrome (at the time I'd just discovered that I had hypermobile joints) she said "no, it would have been picked up when you were a child". well it shows how much she knows :nono:
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Re: hypermobility syndrome

Postby aliwade » Sat Jan 17, 2015 9:03 pm

Hi, yes, I was diagnosed with both. I went to see the Rheumy knowing I had Fibro, but had never heard of HMS. The nurses on reception said they saw it as soon as I walked in. A lot of the symptoms are the same, but the worse thing for me is the Hip Bursitis, which has stopped me from riding my pony and running.
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Re: hypermobility syndrome

Postby trevorshore » Mon Jan 19, 2015 7:31 pm

Hypermobility is a lot of cases means that a joint has become over mobile to compensate for another joint / group of muscles which are hypo / have reduced mobility. Happens alot in the lumbar and cervical spine. Its a build up over time and commonly posture dysfunction related.
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Re: hypermobility syndrome

Postby BondMrsBond » Thu Feb 19, 2015 9:37 pm

I do!!

And Rheumatoid Arthiritis!

HMS is not just like being "double jointed" - it's a lot more than that. Some people are just hypermobile, in that their joints have a wide range of movement, but others, a fewer number, have HM SYNDROME, which is basically the same as standard HM but there are painful symptoms. Some research suggests that HMS is, in itself, a type of Ehlers-Danlos Syndrome (Type 4, I believe). It's worth doing some research, because it can be excruciating just on its own, without throwing FMS in there too... It's not just being double jointed. (I'm not double jointed but have HMS?!!)

Edit to add:
You might want to make your midwife etc aware of your HMS, if you haven't already. It can cause some issues, particularly in the hips if you over-extend them. You're also probably not as responsive to anaesthesia as most other people (make sure you tell your dentist too!)
My husband and I are TTC and my GP advised me that most people don't suffer from Fibro as much during pregnancy :)
Hypermobility Syndrome - Not just double-jointed
Secondary Fibromyalgia - Not a hypochondriac
Rheumatoid Arthritis - Not too young
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Re: hypermobility syndrome

Postby mand » Tue Feb 24, 2015 4:52 pm

Hi sammilou,
my middle daughter is pregnant and all 3 of my girls have been diagnosed hypermobility, she has problems with subluxing of the hips. See your midwife maybe you need the help of a physio if the pain is too bad. My daughter has instructions on notes on management by the specialist.

Pre-pregnancy she had a long pregnancy pillow that helps with support whilst sleeping..... :goodluck2:
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Re: hypermobility syndrome

Postby Ribbonsrabbit » Wed Jul 29, 2015 4:32 am

Hyper mobility is one of many conditions related or linked to FM.
Heres a couple of Doctors explaining all of it.
xx

https://youtu.be/Ei8LbUDkQno?list=PL1An ... I7gukO4T5g
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Re: hypermobility syndrome

Postby Gill76 » Wed Jul 29, 2015 1:11 pm

I was diagnosed with HMS first. It wasn't till I finally saw a Rheumatologist years later that I was told I had fibro, which she said was secondary to the HMS. I've ended up with arthritis in my neck (diagnosed when I was 24) and arthritis in my left knee (during my 30's.) I've only dislocated one thing thankfully, a toe on a duvet cover of all things!
Diagnosed HMS - 1996 ~ Diagnosed Fibro - April 2011
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Re: hypermobility syndrome

Postby Queenie_70 » Thu Jul 30, 2015 8:03 am

I never realised that this is what it was, but I was an excellent gymnast, swimmer, and diver. I was tagged for all the events at school as a child and I loved every moment of it. My daughter suffers from it more so, to the extent that she is very uncoordinated, where-as I used to be extremely so, one has to be for gymnastics.

I loved doing flips, cartwheels, running and tumbling, the horse, the beam, you name it I was there. Now, well, lets just say, an s*xual positions are not as exciting as they used to be!!!! *blush* I can still bend in ways that most can't, but the pain associated with it makes it not worth while.

Most often my knees hyper extend the wrong way, or the knee cap shifts unexpectedly causing me to lose balance and/or have shearing pain shoot up my legs...lost of laughs!!! This is why I have canes (plural), now, but around the house I use the walls and furniture to get about.

Gentle hugs

xxx
"Life is not measured by the breaths we take, but by the moments that take our breath away."
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