conditions associated with fibromyalgia

For all your questions and experiences of illnesses associated with FM e.g. thyroid, IBS, TMJD etc.

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conditions associated with fibromyalgia

Postby bon bon » Fri Mar 27, 2015 1:25 pm

Hi everyone, I'm new to any kind of forum so please bear with. I was told I had Fibromyalgia about 3 years ago. I waited for 2 years to be referred to a Rheumatologist. I waited 2 hours to be seen in the clinic. I was the last patient of the day. I was in the consultation room for less than 10 minutes where I was told I had Fibromyalgia, handed a leaflet to read and discharged.

Since then I have had no follow up appointments with the Rheumatologist and although my own G.P is very understanding she really doesn't know a lot about the condition. All I really want are some answers so I can make an informed decision about how to live with this condition.

Can anyone out there tell me if the following symptoms I suffer with are related to Fibromyalgia.:
Extreme tiredness to the point of literally shutting down no matter where I am or what I'm doing at the time.
Constant muscle aches, cramps, twitching muscles.
Joint pain all over but prodominantly knees, hips, elbows and lower back. These areas seem hypersensitive to the slightest touch, my skin feels as if it has been burnt.
Poor sleep, an average of between 4-5 hours a night usually becuse the joint pains are much worse when lying down. I could put Benson for beds out of business with the many mattresses Iv'e tried.
Night sweats.
Finally ( although once Iv'e posted this I'll realise Iv'e forgotten something ) constant bladder pressure. I feel as if I have a urine infection or cyctitis ALL the time. I recently found an article on WebMD about Interstitial Cystitis which describes my symptoms exactly, but my G.P had never heard of it so dismissed it.

I just can't find a specialist or someone to confirm that all these symptoms are related to the Fibomyalgia. I very much feel it has been
left to me to research and deal with which is what I am doing now joining this forum.
Any feedback, advice etc would be gratefully received.
Many thanks.
Last edited by FluppyPuffy on Fri Mar 27, 2015 1:49 pm, edited 1 time in total.
Reason: Split into smaller, clearer paragraphs for easier reading.
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Re: conditions associated with fibromyalgia

Postby lancashire-lass » Fri Mar 27, 2015 2:06 pm

Hi bon bon,
The simple answer to the majority of your symptoms is yes - these are typical to Fibro.
The only one that I haven't had is the bladder pressure, but that could be because I have irritable bladder and incontinence.
Could your GP refer you to a pain clinic? I know that there is no cure for Fibro, but the coping techniques that I was taught have help me enormously.
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Re: conditions associated with fibromyalgia

Postby Jeany » Fri Mar 27, 2015 2:18 pm

Hi there
I would say all of those symptoms are typical of fibro, or mine anyway. I have ME/CFS and fibro, and constant tummy problems. The bladder issues effect me also, as well as the exhaustion, poor sleep and pain everywhere.

Doctors don't always recognise links, and these illnesses are very complex and varied. I sometime think it would be easier to list what ISN@T effected.

Listen to your body and its needs, and most of all be kind to yourself.

Good luck x
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Re: conditions associated with fibromyalgia

Postby EvaHopingForRespite » Fri Mar 27, 2015 2:29 pm

In answer to your query ... YES ... they are all symptoms of fibro. I suffer with all of these but I do not have bladder pain/pressure but have suffered severe pelvic pain across the front which covers the bladder area for many months. I have put this down to muscle spasms in the region and am on top of it now by virtually omitting potato from my diet! For me potato = pelvic pain. I have found that I can still have potato on as long as I avoid it for the next couple of days! I take pineapple juice every morning as it's a natural anti- inflammatory and that helps reduce joint pain!
~ hope these tips help ~ (also visit livingsmarterwithfibromyalgia on facebook)
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Re: conditions associated with fibromyalgia

Postby FluppyPuffy » Fri Mar 27, 2015 2:39 pm

:welcome: to our little sanctuary bon bon :cow-wave: :cow-wave:

I've moved you into here as it's a more suitable board for what you are asking about, so hopefully you will get some helpful replies. I've also split your post into smaller paragraphs to make it a little easier to read. Quite a few of us on here struggle when it comes to reading large blocks of text, often getting lost and ending up reading the same few lines over and over again. Smaller paragraphs give us a better chance of making it all the way thru a post. It's one of the unwanted extras that FM decides to bestow on us at times.

The various symptoms and problems you have listed can be, and often are associated with FM. There are many, many topics and posts across the boards covering them. Some people will be affected by some of them at different times and at different intensities, whereas others can be affected by all of them constantly, all due to the vagaries and unpredictable nature of FM.

To find out more about each symptom, you use the search box in the top right corner of each page. It will throw up all references to the words used in your search. You can then have a bit of a looky and a read about things, and maybe even make some notes about what others have experienced, what they have found helpful etc. You could then take these notes with you when you next see your GP to see if there is anything in what you have researched/looked into that might be suitable for you to try.

However, you do need to bear in mind that they can also be associated with other issues that are completely unrelated to FM as well, so it is always worth having things checked out, just to be sure about things.

Your experience with the Rheumatologist is sadly one that occurs on a regular basis. It was very similar to what I went thru when I was dx'd 11 years ago. And it's not unusual for you to be seen by the Rheumy, given a dx, then be discharged back into the care of your GP.

It can take time to find the best way for you to live with FM, with various meds, treatments, therapies etc needing to be tried in various ways, levels, times etc to get the best possible combo for you. And patience is needed, esp during this time, as what may help one may not do so for another. With you having an understanding GP tho, you've already cleared a huge stage that some struggle to get thru. Maybe with you looking into things relating to FM, then going to see her, you could be part of her learning a little more about the condition.
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Re: conditions associated with fibromyalgia

Postby flashsjill » Fri Mar 27, 2015 3:07 pm

I too only had one rheumatology app for Fibro diagnosis, this was two years ago. After all the different meds given by GP and none doing anything, he has now referred me to pain clinic which specialises in CFS and ME. My initial app is on April 1.
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Re: conditions associated with fibromyalgia

Postby Gaia » Fri Mar 27, 2015 3:44 pm

Like everyone else I also have all those symptoms and more. As far as the bladder pressure is concerned, you may need to ask for a referral to a Gynae clinic. I had a referral last year and was told I have the beginnings of a prolapsed bladder (common after multiple pregnancies or other pressures on the abdomen such as excess weight or other abdominal surgery etc), which will need surgery later this year :yikes:

My Rheum consultant had fobbed me off saying it was just the fibro, but obviously it's something a lot more serious. Do get yourself checked out just incase you have the same problems!
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Re: conditions associated with fibromyalgia

Postby Zia2014 » Fri Mar 27, 2015 8:25 pm


I too got one rheumo appt and was then left under my GP, who tries but doesn't always 'get it'. The best thing was a referral to the pain clinic, which I pushed for but which has helped no end. I started by looking at my local hospital to see what depts there are and asked for a ref to the one I needed. Maybe you could do that too?
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Re: conditions associated with fibromyalgia

Postby Barbara H » Sat Mar 28, 2015 10:42 am


Yes to your question, I think its a slow learning process, even for the GP's and Specialists, there are more and more things being associated with Fibromyalgia all the time. The only thing I find different is your problem with your bladder, I do have a problem with mine, just not the same as yours, everyone is different, so there will be differences between people suffering with Fibromyalgia.
I have found more on the internet than I have been told by the Doctors Rheumatologist. I subscribed to the Fibromyalgia UK magazine. You cannot get better information than that. There are Fibromyalgia Support groups set up all around the country. So don't feel along, try going to your local group and talk to other people who are suffering the same as you and get support.
Good luck.
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Re: conditions associated with fibromyalgia

Postby Susan Stokes » Sat Mar 28, 2015 11:19 am

I feel, collectively, we are the experts on our disease. We welcome help from wherever we can get it and the information and others' experiences on this site are invaluable.
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Re: conditions associated with fibromyalgia

Postby Gemm » Sat Mar 28, 2015 12:45 pm

Yes. Yes. And more yes's.
Everything you've described can and is associated to fibromyalgia.
Baring in mind that we are all incredibly unique, sone person may develop a symptom that many others do not.
My classic unique symptom is an allergy to sugar. Can't stand the stuff because it causes a severe reaction of spasms mainly in my jaw.
I've a friend who avoids sugar because she also has fibro that developed from cancer treatment, yet her reasons of avoidance avoidance re completely different. She doesn't get the spasms but does experience heavy fatigue as a result from eating it.
Doctors know bagger all in these circumstances.
My advice is to listen to yourself all and research your experiences along the way. There is so much to discover about fibro as a reaction to your life events, psychologically and physically.

All the best ☆
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Re: conditions associated with fibromyalgia

Postby Michelle1990 » Sat Mar 28, 2015 8:16 pm

Hi there,
Most of your symptoms sound like common symptoms of fibro, but with your bladder problems does it come on all of a sudden and do you desperately need the urge to urinate? I was also diagnosed with an overactive bladder, maybe this is something you could talk about with your GP. I am currently waiting for my urology appointment which I felt my GP fully understands all my conditions so was refered quickly.

With your joint pain I get this pain in my knees, hips, lower back, shoulders, and wrists mainly. By any chance are you double jointed or was you flexible in sports like gymnastics when you were younger? When I was diagnosed with fibro I was also diagnosed with joint hypermobility. This basicly means I'm double jointed but it can cause pain in certain people and many people don't know their joints are flexible. There is joint hypermobility and joint hypermobility syndrome. Hypermobility syndrome basicly means chronic pain in the joints. I don't fit in the hypermobility syndrome category as my pain isn't to severe in my joints its more in my muscles. Maybe you should discuss this with you GP too.

Regarding no follow up appointment I think you should ask your GP to refer you to physiotherapy, in some places you can refer yourself. I currently receive chronic pain pysio and it's helped physically and mentally. This is only to build your muscle strength and by doing daily stretches will help reduce the pain. It does make a big difference even just taking the edge off the pain away.

I'm only 24 and been diagnosed with all 3 conditions within the last 8 months. It has only recently hit me especially when I get flare ups. A combination of pysio and the right meds (which can differ from one person to the next) will help reduce the pain so you can become more mobile. The key to fibro is to build muscle strenth and exercise. Best wishes and I hope you get the help you need.
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Re: conditions associated with fibromyalgia

Postby bon bon » Sun Mar 29, 2015 3:18 pm

Thank you all for your informative comments. In reply to some points. I do have hypermobility in most of my joints. I have been seen in a joint physio/pain clinic but found the private massages I go for more beneficial to me. I was diagnosed with an overactive bladder in 2004,and was given techniques to retrain my bladder which worked. I was seen by a Urologist in 2013, had ultra sounds, urogram, cycstocopy etc all negative except that the urogram showed enlarged lymph nodes in my groin, but these were investigated and all was fine.
It's a long learning curve, each day throwing up a different problem but finding answers as well. Thank you again, soldier on everyone . Bon Bon.
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Re: conditions associated with fibromyalgia

Postby Ribbonsrabbit » Wed Jul 29, 2015 4:34 am

Again, heres a really long list given by doctors carrying out robust research. ... I7gukO4T5g
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