Post Viral Fatigue Syndrome (M.E.)

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Post Viral Fatigue Syndrome (M.E.)

Postby princess » Thu Dec 04, 2008 7:57 pm

I know this forum is mostly Fibromytes discussing same.

But are there any people here who also have M.E.?

I have both unfortunately, both very different illnesses and together well - i wont go into it.

No reason bar id like to see how many have one or other, and how many have ME plus Fibro.

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Postby juliet » Fri Dec 05, 2008 12:08 pm

hey princess, yep they think i have ME as well just having a couple of tests to rule out MS.

only got an initital diagnois on monday so the ME side of things is all a bit new to me!
Juliet xxx

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Postby roofus_mcdoofus » Fri Dec 05, 2008 1:39 pm

Yep I've been diagnosed with both.

You say they're both very different illnesses but because I have both I find it hard to tell them apart. How do you?

Thanks. :)
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Postby Min » Fri Dec 05, 2008 2:03 pm

I have both fibro and M.E., loads of people have both; my GP believes them to be the same illness (but he's not British & hasn't swallowed the nonsense about M.E. being a somatoform disorder - it's not, it's been classified as a neurological illness by the World health Organisation since 1969).

Post Viral Syndrome is not the same illness as M.E.
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Postby Julie. » Sun Dec 07, 2008 11:40 am

I too have ME as well as FM.
Mine seems to go in cycles.
Some weeks the pains are very bad.
Then other times the ME is so bad i almost collapse with it and have to crawl up to bed and stay there until it eases.

It took me along time to be diagnosed with ME.
I attended a CBT course some time ago run by the ME association and it helped me such alot.
It taught me the art of pacing and i have to admit i have been a bit better since going on it.

Take one day at a time. Tomorrow will wait.
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Postby Lesley Doyle » Sat Dec 13, 2008 10:51 pm

I have both FMS and ME
Take care

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Postby cat123 » Sun Dec 14, 2008 1:10 am

Hi there ,Ive got fibro and m.e. Be fore i was diagoned ,this is ,years ago,A specialist said,i had thoretic out let syndrome,and This is what tall people get.WHAT!!
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