Period pain again...

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Period pain again...

Postby memily01 » Sun Mar 08, 2009 3:32 am

Got in a huge argument with my gynaecologist today (she is the third and possibly worst I have seen)

So I’ve been suffering from bad period pain, I know its properly just exacerbated by the fibromyalgia they don't seem to understand that, I also cannot have sex with my partner it hurts far too much, now I cry whenever we try and because of that stress its worse. Of course she can’t treat my FM, my doctor doesn’t treat it, nobody treats it, so where am I supposed to get help about this pain from?

I go the hospital to be told my hormones are changing, at 18 I am still rather young telling me most people my age get pain like this (as if I was stupid), its the stress that’s preventing me from having sex even though the pelvic pain was there before I was stressed and of course this has nothing to do with the fact the moment four years ago I started getting fibromyalgia symptoms my period pain got horrific unlike it had done before.

Then finally to top it off I was told all she could do was to keep me on the pill until the pain goes, saying the only thing other that it could be was Endometriosis, not explaining what it was to me and then saying there was almost no point in checking for it as there is such a slim chance of me having it at 'my age'.

Some form of injection was offered to stop my periods, again not explained to me (that I will be googleing now) and I was discharged again. I give up, still in pain. I give up on the NHS.

/rant I apologise if that got far too detailed
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Postby LinzWorld » Sun Mar 08, 2009 7:13 am

Please get another doctor's opinion on the endometriosis. You can have endometriosis at your age and if so, that could explain painful periods. Info on endometriosis.

The injections were probably Depo Provera. I loved Depo but some people hate it and you can only have it for a few years or it can lead to long term health complications.

Depo is progesterone only. The implant Implanon is also progesterone only but at lower doses so it's safer. It won't stop your periods but they may be lighter and easier on it.

Can you get into see a doctor who specialises in Fibro? If you can go private, even for one appointment, it speeds things up enormously. There are plenty of treatments for Fibro and many people seem to find that treating the Fibro helps with the hypersensitivity, which means that it helps with a lot of the other symptoms that come along with Fibro, such as food intolerances and painful periods.
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Postby auroura » Sun Mar 08, 2009 9:51 am

Oh hun you have my sympathy, i think its bloody awful your being 'left to it' as already stated depo and implanon (i have had both) for heavy periods do help alot with heavy periods but for the awful pains your getting, you should be offered something. I would ask for another opinion, your very young you need something doing and now.

I dont know much about endo, but i am sure there are treatments for it.

Take care.
Sharon

Bad is never good until worse happens
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Postby samantha louise » Sun Mar 08, 2009 11:26 am

aw hun, you need to ask for a second opinion, it may well be made worse by your fibro hun but you need to get a second opinion to see if they can give you anything for the pain. pm me if you want
samantha - louise
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fuddle off... no,... YOU fuddle off!!
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Postby memily01 » Sun Mar 08, 2009 2:22 pm

This is my second and third opinion, I’ve gone to them so many times, each with a six month waiting list and each telling me that it’s normal and that I’m young. I've been to the GP around 4 times about it, all very reluctant to do anything. When I mention my fibromyalgia they generally haven't bothered to look at my notes and when I bring up my fibromyalgia they generally dismiss it. Although I was told by about three of them that fibromyalgia doesn't affect periods.

I have never been to see anyone specializing in fibromyalgia, my fibromyalgia isn't treated. I honestly don't think I’ll ever be able to have sex but they won’t address it and it’s really beginning to affect me.
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Postby velvet » Sun Mar 08, 2009 2:45 pm

have you tried walking in and saying "my periods are so painful i cannot have sex - this is not normal" and then shutting up? dont bring up the fibro yourself narrow it down to this one specific problem. i know it sounds really crude but maybe if you went in and just kept bringing it back to "pain so bad i cant have sex" you might get somewhere - so if they say you have fibro you say and the pain is so bad etc, they ask what meds you take - you reply x, y, and z and the pain is so bad, they ask you if you have seen whichever specialist , say yes or no and the pain is so bad - and when you get a very grumpy GP saying "yes i have got the bit about the pain" you turn around and say well i have had 3 referals which have taken forever and NOONE has actually looked at my specific problem that the pain is so bad etc - i keep getting told its fibro or normal this is not helpful i want to know what can be done to stop it being so painful - if it IS normal for people my age or fibro how is it treated - i need the problem treated not to be told its normal.

you might need to take a supporting person maybe your boyfriend and practice staying focused before hand - dont let yourself get distracted - walk in with one intention - getting treatment for painful sex and stick to it - lectures on fibro pain or normal age pain are NOT what you need - you need treatment and just keep repeating that.
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Postby XxTraceyxX » Mon Mar 09, 2009 11:39 am

Hi Memily01

My doctors sound exactly the same as yours!! It is very hard to go + ask about something without mentioning the fibro, the look on their face is saying "what is it this time", I get myself so worked up before I go, knowing ill just come from there crying having had no help or understanding, I know exactly what your saying.

Tracey x
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Postby samantha louise » Mon Mar 09, 2009 11:44 am

aw hun my dr isw a bit like that you have to be very firm and like others have said be specific in what you expect them to do

good luck and gentle hugs
samantha - louise
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