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The UKFibromyalgia Forums • View topic - FMS & Joint Pain?!



FMS & Joint Pain?!

For all your questions and experiences of illnesses associated with FM e.g. thyroid, IBS, TMJD etc.

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FMS & Joint Pain?!

Postby TraceyG » Tue Apr 07, 2009 12:47 am

Having been diagnosed almost 3 years ago with FMS, I was under the assumption (rightly or wrongly) that the pain is also in your joints (seeing as the joints also has tendons, ligaments and muscles attached).

Recently I was referred to another pain clinic and when asking questions about my health and FMS, asked if I got joint pain. To which I answered 'oh yes' (all the flaming time actually) but he said that to have joint pain with FMS is very unusual. At first I thought 'this is another Dr who doesn't know everything about the condition as he doesn't specialise in it'. However I found some information on-line saying the same thing -

What's right and what's not then?

Thanks
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Re: FMS & Joint Pain?!

Postby groovy_chick » Tue Apr 07, 2009 6:20 am

hhhmmm.... :shock: I also have 'joint'/'bone' pain but was told this is neuropathic pain as there
is nothing wrong with my bones/joints.
To have the true joint/bone pain I guess you would have some sort of inflammatory/autoimmunue condition.
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Re: FMS & Joint Pain?!

Postby Corinne » Wed Apr 08, 2009 10:53 am

Although its true that there is nothing actually wrong with the joints, I've never come across a person with FM who DIDN'T have joint pain! :?:

I think that maybe this doctor has got his wires slightly crossed.

Corinne x
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Re: FMS & Joint Pain?!

Postby MCT » Wed Apr 08, 2009 1:43 pm

I've been getting loads of shooting pains in the back of my hands going into all my finger joints, sometimes they last a few moments and at other times a few hours. Just something else to add to the ol' list :roll:
http://petitions.number10.gov.uk/FMClinics/

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As you slide down the bannister of life, may all the splinters be facing in the right direction :)
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Re: FMS & Joint Pain?!

Postby groovy_chick » Thu Apr 09, 2009 6:05 am

Nuts on the road! nim nim nim
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Re: FMS & Joint Pain?!

Postby MCT » Thu Apr 09, 2009 11:53 am

http://petitions.number10.gov.uk/FMClinics/

My get up and go just got up and went!!!

As you slide down the bannister of life, may all the splinters be facing in the right direction :)
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Re: FMS & Joint Pain?!

Postby gillshutt » Thu Apr 09, 2009 12:49 pm

I have the same problem.. OA started in my neck and spine.. now everywhere else is joining in, hands, hips, knees... it goes on and on :( And I've also developed trigger thumbs... problems with the tendon causing nasty pains... think I'm one giant nasty pain :roll:

Sorry you can't take gabapentin as it helps my OA pains which are made worse by the FM ((xx))
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Re: FMS & Joint Pain?!

Postby unigirl1981 » Thu Apr 09, 2009 10:33 pm

i read in a fms leaflet that fm pain is in muscles ligaments etc but aso in bursa which are the fluid filled sacks around joints so that could be the pain you feel?????

i get really bad hip and knee pain ( my 4 yaer old says i walk like a wobbly weble) but since reading the leaflet i have put it down to "bursa pain" :dunno:
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Re: FMS & Joint Pain?!

Postby gillshutt » Fri Apr 10, 2009 9:45 am

FM can cause pain anywhere really.. it's no longer thought to be a rheumy problem but a neurological one. Substance P, a chemical in our brains, is out of whack so we get signals saying there's pain when there isn't and a small pain means we get an 'Oh my god I'm dying signal' :roll:

This means there can be pain anywhere anytime.. sorry it's not good news but it does explain things. All we need to do is teach the docors now :roll:
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Re: FMS & Joint Pain?!

Postby samantha louise » Fri Apr 10, 2009 11:02 am

if only that was possible they think they know it all
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Re: FMS & Joint Pain?!

Postby TraceyG » Fri Apr 10, 2009 3:52 pm

Well I saw my GP on Wednesday and discussed with him the joint pains and in particular in my elbows, forearms, wrists and hands/fingers. Before I started with this I said that I am concerned that whatever else is wrong with me might be wrongly or rightly, grouped together as being 'part of the Fibromyalgia'. Then I went on to talk about the possibility of tennis elbow or carpal tunnel (having read that FM sufferers can develop these). But he didn't even examine me and (as I thought would happen) said it is most likely the FM.

On another note I have been prescribed Oramorph (liquid morphine) to help with the pain. I'm starting out on 2.5ml, 4 times per day when required and I have to see him next Wed to review. Apparently it is better to take this in liquid form as it will be easier to gauge the correct dosage when I would move onto tablet form (providing it agrees with me). I've only have one lot so far (plus those tablets to stop nausea/sickness) and I had raging heartburn... can't win!
Tracey x
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