FMS & Joint Pain?!

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FMS & Joint Pain?!

Postby TraceyG » Tue Apr 07, 2009 12:47 am

Having been diagnosed almost 3 years ago with FMS, I was under the assumption (rightly or wrongly) that the pain is also in your joints (seeing as the joints also has tendons, ligaments and muscles attached).

Recently I was referred to another pain clinic and when asking questions about my health and FMS, asked if I got joint pain. To which I answered 'oh yes' (all the flaming time actually) but he said that to have joint pain with FMS is very unusual. At first I thought 'this is another Dr who doesn't know everything about the condition as he doesn't specialise in it'. However I found some information on-line saying the same thing - http://www.arc.org.uk/arthinfo/patpubs/6013/6013.asp

What's right and what's not then?

Thanks
Tracey x
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Re: FMS & Joint Pain?!

Postby groovy_chick » Tue Apr 07, 2009 6:20 am

hhhmmm.... :shock: I also have 'joint'/'bone' pain but was told this is neuropathic pain as there
is nothing wrong with my bones/joints.
To have the true joint/bone pain I guess you would have some sort of inflammatory/autoimmunue condition.
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Re: FMS & Joint Pain?!

Postby *Lisa* » Tue Apr 07, 2009 8:35 am

Hi

MY physiotherepist said to me that when your stiff you cannot move well so it makes the joints work harder hence the joint pain and if you do not keep up on the stiffness you have got a higher percentage in develping arthrirts because of the wear & tear....
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: FMS & Joint Pain?!

Postby Corinne » Wed Apr 08, 2009 10:53 am

Although its true that there is nothing actually wrong with the joints, I've never come across a person with FM who DIDN'T have joint pain! :?:

I think that maybe this doctor has got his wires slightly crossed.

Corinne x
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Re: FMS & Joint Pain?!

Postby MCT » Wed Apr 08, 2009 1:43 pm

I've been getting loads of shooting pains in the back of my hands going into all my finger joints, sometimes they last a few moments and at other times a few hours. Just something else to add to the ol' list :roll:
http://petitions.number10.gov.uk/FMClinics/

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Re: FMS & Joint Pain?!

Postby groovy_chick » Thu Apr 09, 2009 6:05 am

MCT wrote:I've been getting loads of shooting pains in the back of my hands going into all my finger joints, sometimes they last a few moments and at other times a few hours. Just something else to add to the ol' list :roll:


me too but this has improved quite a lot since I was started on gabapentin :D
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Re: FMS & Joint Pain?!

Postby MCT » Thu Apr 09, 2009 11:53 am

groovy_chick wrote: me too but this has improved quite a lot since I was started on gabapentin :D


Unfortunately I'm not allowed Gabapentin :nono: as I already take an anti-convulsant which may cause a problem(Gabapentin's original use was for Epilepsy), also I wouldn't want to change my CACT as it took long enough to find something that worked for me.

I have OA in my spine & hips so it may well be my hands have just decided "why should we be left out" :roll:
http://petitions.number10.gov.uk/FMClinics/

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Re: FMS & Joint Pain?!

Postby gillshutt » Thu Apr 09, 2009 12:49 pm

I have the same problem.. OA started in my neck and spine.. now everywhere else is joining in, hands, hips, knees... it goes on and on :( And I've also developed trigger thumbs... problems with the tendon causing nasty pains... think I'm one giant nasty pain :roll:

Sorry you can't take gabapentin as it helps my OA pains which are made worse by the FM ((xx))
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Re: FMS & Joint Pain?!

Postby unigirl1981 » Thu Apr 09, 2009 10:33 pm

i read in a fms leaflet that fm pain is in muscles ligaments etc but aso in bursa which are the fluid filled sacks around joints so that could be the pain you feel?????

i get really bad hip and knee pain ( my 4 yaer old says i walk like a wobbly weble) but since reading the leaflet i have put it down to "bursa pain" :dunno:
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Re: FMS & Joint Pain?!

Postby gillshutt » Fri Apr 10, 2009 9:45 am

FM can cause pain anywhere really.. it's no longer thought to be a rheumy problem but a neurological one. Substance P, a chemical in our brains, is out of whack so we get signals saying there's pain when there isn't and a small pain means we get an 'Oh my god I'm dying signal' :roll:

This means there can be pain anywhere anytime.. sorry it's not good news but it does explain things. All we need to do is teach the docors now :roll:
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Re: FMS & Joint Pain?!

Postby samantha louise » Fri Apr 10, 2009 11:02 am

if only that was possible they think they know it all
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Re: FMS & Joint Pain?!

Postby TraceyG » Fri Apr 10, 2009 3:52 pm

Well I saw my GP on Wednesday and discussed with him the joint pains and in particular in my elbows, forearms, wrists and hands/fingers. Before I started with this I said that I am concerned that whatever else is wrong with me might be wrongly or rightly, grouped together as being 'part of the Fibromyalgia'. Then I went on to talk about the possibility of tennis elbow or carpal tunnel (having read that FM sufferers can develop these). But he didn't even examine me and (as I thought would happen) said it is most likely the FM.

On another note I have been prescribed Oramorph (liquid morphine) to help with the pain. I'm starting out on 2.5ml, 4 times per day when required and I have to see him next Wed to review. Apparently it is better to take this in liquid form as it will be easier to gauge the correct dosage when I would move onto tablet form (providing it agrees with me). I've only have one lot so far (plus those tablets to stop nausea/sickness) and I had raging heartburn... can't win!
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