Joint pain

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Joint pain

Postby penny231 » Wed Sep 23, 2009 8:30 pm

Hi

I've been diagnosed with Fibromyalgia because I have really bad joint pain. I don't have any tender spots, or muscle pain. Does anybody else get painful joints, and if so, what do you find helps them?
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Re: Joint pain

Postby LinzWorld » Thu Sep 24, 2009 2:02 pm

If you don't have any hypersensitivity to pain (what the tender point test is to check for ) you should not have been diagnosed with Fibro. Fibro causes more than just joint pain.
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Re: Joint pain

Postby shazq » Thu Sep 24, 2009 7:53 pm

I also have joint pains, that was why i was sent to see a Rheumy, my GP thought i might have arthritis.
The rheumy saw me twice for the pain, on the second visit he DX me with Fibro.
I have tender points also.

Who DX you with Fibro?
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Re: Joint pain

Postby penny231 » Fri Sep 25, 2009 10:04 pm

I really don't feel I should have been diagnosed with FMS, which is why I'm asking for advice. It was a rheumatology specialist who made the diagnosis. I do get lots of other symptoms that come under Fibromyalgia (but they also come under other illnesses) such as fatigue, headaches, cold intolerance, migraines, IBS etc, but I don't have any tender spots and the specialist even wrote in her letter to my GP that I don't have any! I know some people do get joint pain who have FMS, but my joint pain can feel as if the joint is broken and be a really intense, throbbing, hot pain; at no stage do my muscles, tendons or ligaments hurt! I really want to get a second opinion, but it's was such an exhausing and disheartening experience the first time around that I think it will take a while to be able to!!
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Re: Joint pain

Postby miajane » Sat Sep 26, 2009 12:57 am

I get the joint pain that you describe in my hands, wrists, elbows, shoulders and ankles, but I also get pain in the muscles, ligaments and bones (well it feels like it) too.
My ankles often feel sprained or twisted, that's probably why I didn't notice when I had actually really twisted my ankle.
It takes a long time to get the meds sorted to help fibro pain, if you ever do get it sorted. I'm still trying :(
If you haven't got fibro it's going to be a wasted effort, you should tell your dr that you want a second opinion because you don't think that's what you have. You may have something else that there is a cure for.

Take care
Mia xx
'Needles on your nerve ends crawl like spiders on the skin' - Enemy within by Rush
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Re: Joint pain

Postby shazq » Sat Sep 26, 2009 11:15 am

Hi Penny
I think it will be best for you to get a 2nd opinion.

To be DX with fibro you should be getting pains in the muscle areas.
If your pain is just in the joints and no where else in your body then it does seem strange that they DX you with fibro.

You should go back to your GP and ask if they can send you to see a different Rhuemy.

Good luck, keep us updated.
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Re: Joint pain

Postby LinzWorld » Tue Sep 29, 2009 1:43 pm

I would talk to your GP about it. The ACR (American College of Rheumatology) criteria for the diagnosis of Fibro are used the world over and are listed on the NHS website. If you do not fulfil these criteria, then your diagnosis is dubious and a second opinion is warranted. If your GP is unwilling to re-refer you (and they should do so) then I would consider going private.

http://www.nhs.uk/Conditions/Fibromyalg ... nosis.aspx
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Re: Joint pain

Postby saplum40 » Sat Nov 28, 2009 3:56 pm

Hi

I find that heat and massage help, have suffered chronic hip pain for nine years. Hubbys just ordered me the circulaton booster will let you know how it goes. Sod the pills, a glass of wine is better! :)
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