is headache normal

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is headache normal

Postby yonark » Mon Oct 19, 2009 11:04 pm

hi, i started getting severe headaches (migraines) about 8 months ago, i was put on a beta blocker but after a couple of months i got use to it and they came back big time, i am now on Propranolol which takes the edge off them but i have always got a numb head feeling with a small throb like feeling at the back of my right eye, and if i forget to get my prescription and i don't have a couple of pills then a mega migraine kicks in. is it normal when you have fms to have headaches 24/7
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Re: is headache normal

Postby DaveD » Mon Oct 19, 2009 11:13 pm

Yes its by far the worst part of my condition , excruciating pain behind the eye that used to be so severe it actually made me sick ! Had it for the last two days and its not nice at all , the good bit is that Gabapentin has all but cured it and the reason I have suffered the past couple of days was not helped by eye strain . I have a constant groggy sort of headache but not a full blown migraine , thats very rare nowadays thank gawd !

A friend of mine told me it was so debilitating that it totally ruined his life ... thats very sad indeed .

You have my sympathy

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Re: is headache normal

Postby yonark » Mon Oct 19, 2009 11:32 pm

what kind of medication is Gabapentin
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Re: is headache normal

Postby FluppyPuffy » Mon Oct 19, 2009 11:52 pm

Another headache sufferer here as well :banghead: I take propanolol as well. I have a migraine-intensity headache all the time, which flares up into a full blown migraine 2-3 times a week. Before taking propanolol, a good week was having 1 day that was migraine-free, altho I was so exhausted from the other 6 days it didn't really make much difference :( There has been a recent thread about migraines which might be worth a look at. I hate the grogginess and eye pain, and would love to have a bit of pain-free time, I can't remember a time when something didn't hurt :yikes:
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Re: is headache normal

Postby smiler22 » Tue Oct 20, 2009 12:41 am

i get these heads tto. i am on pitzofen for my migraines and i find them very helpful. i still get the odd severe migraine if im really streessed eatenm too much chocolate etc.....


do you eat sausages, cheese and chocolate. one or more of these in you rdiet can cause migraines..... have you tried cutting one out at a time over say a couple of months and see if you still get migraine or not.......

if not it just could be something to do with what i call tablet heads. or simply fibro.

gabapentin is a drug that is also used to help epilepsy. it is something to do with the brain signals it stops. that is helpful for people who suffer badly with fibro. it helps stop the pain. alot of people sware by this and another similar drug called pregablin (lyrica) that has fewer side effects than gabepentin. if you type gabepentin into google it will bring up the proper reading on it.

hi again just added on end here. if you type in MedicineNet.com it will show alot on about gabapentin an dfibromyalgia as well as epilepsy etc.
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Re: is headache normal

Postby yonark » Tue Oct 20, 2009 12:14 pm

thanks to all who replied. i have never been bothered with headaches let alone migraines, so went through the usual list of checking foods, medication etc but all was fine so doc says it's my fibro that is causing it. its a pain in the backside, when they really kick in i kind of pass out, its like a total shut down. i have even had to go to hospital before because the pain was that bad, and believe me i have a high pain threshold (i think you have to when you have fibro). the Propranolol is keeping them down just now but doc said the next time i get one she is sending me to see the neurologist.
it makes the rest of my body pain feel like a tickle.
when will it end
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Re: is headache normal

Postby shazq » Tue Oct 20, 2009 1:33 pm

Sorry to hear you are another sufferer.
I have really bad migraines and are also sick with them, mine can last for 5 days and sometimes more, i then get a few days off before they come back again.
I have tried all the meds on the other posts and still nothing works for me.

My GP is sending me back to see the neuro team as he cant think what else to try, he said i have had the book thrown at me. :dunno:

I have since come off some meds and at mo i am not getting the migrains as often.
I was on 4 types of strong pain killers as have another illness as well as fibro.
I have reduced 14 pills a day and feel my head is much clearer.

Hope you find a med that suits you.
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Re: is headache normal

Postby LinzWorld » Tue Oct 20, 2009 9:46 pm

Just because you have Fibro, there's no reason you have to have headaches 24/7!

A common cause of intractable headaches in Fibromites is myofascial tension in the neck and shoulders. A good myofascial release specialist can deal with this, although it may tae a few treatments.

If it's not myofascial pain, then look at nutritional deficiencies, dehydration and poor posture.
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Re: is headache normal

Postby yonark » Tue Oct 20, 2009 10:38 pm

i mentioned tension to doc as my mum suffers from tension headaches but it has been ruled out along with lacking in sertain chemicals etc. as for dehydration that doesn't seam to be a problem. i basically told the doctor i was wanting to be sure as i was getting paranoid as both grandmothers died of brain problems (i know that sounds silly). the only thing they haven't done is scanned.
i also attend appointments at bio mechanics and they haven't found a problem around my neck, back etc
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