Associated symptoms of fibromyalgia

For all your questions and experiences of illnesses associated with FM e.g. thyroid, IBS, TMJD etc.

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Re: Associated symptoms of fibromyalgia

Postby LinzWorld » Sat Nov 14, 2009 6:01 pm

You wouldn't know about neurochemical imbalances. If you have Fibro, you'll have this, but it's not something they can test for saefly.
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Re: Associated symptoms of fibromyalgia

Postby iddm » Mon Nov 16, 2009 4:48 pm

oh ok. What is it then?
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Re: Associated symptoms of fibromyalgia

Postby LinzWorld » Mon Nov 16, 2009 5:58 pm

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Re: Associated symptoms of fibromyalgia

Postby Harley » Tue Nov 17, 2009 12:55 pm

It's scary when you look at all the symptoms of FM written down in black and white isn't it!! :|

I can tick just about everything except the painful periods.
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Re: Associated symptoms of fibromyalgia

Postby iddm » Tue Nov 17, 2009 1:53 pm

Thank you for the link Linz World.
Its too much for me to take in right now.
I think I sat with my chin on my knee trying.
There seem to be a lot more certainties than CFS.
I'm going to take some time getting my head round it all
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Re: Associated symptoms of fibromyalgia

Postby LinzWorld » Tue Nov 17, 2009 4:25 pm

There are a lot more certainties, but in a way, that's good. A lot is actually known about Fibro now, although not many docs know enough to understand the big picture, so it's a struggle to get effective treatment.

But Fibro can be managed. And compared to some of the other neuro conditions, it's a walk in the park! I work with the Neurological Alliance and so work with people with MS, MND, brain tumours, etc and they struggle to manage their symptoms whilst knowing that one day their condition will kill them. Fibro sucks, but there are worst things to have!

Feel free to email me via the FibroAction email (info@fibroaction.org) if you'd like a chat.
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Re: Associated symptoms of fibromyalgia

Postby iddm » Tue Nov 17, 2009 5:57 pm

yeah definately.
I am a great believer in gratitude and keeping things in perspective.
I am finding at the moment there is a lot to know.
I'm seeing my GP tomorrow so amybe things will get a bit clearer... although hes not a specialist and someone I haven't seen before so we'll see
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Re: Associated symptoms of fibromyalgia

Postby LinzWorld » Tue Nov 17, 2009 7:16 pm

Good luck! :) GPs tend to not know much but you never know..... And if they're prepared to work with you, that's more important than a bit of knowledge about Fibro - you can learn together.
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Re: Associated symptoms of fibromyalgia

Postby hack1971 » Thu Nov 26, 2009 10:21 am

hi i can tick a few more since being diagnosed in august but also restless leg syndrome is also part of it
hugs nikki
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Re: Associated symptoms of fibromyalgia

Postby schmoo » Thu Nov 26, 2009 11:22 pm

Hi all my first visit here. can't beleive I recognise all the symptoms I have just read, I have most of them plus
auto immune disease and b12 deficiency, all got diagnised through test fro carpel tunnel. I have spinabidia occulta which
fortunately was minor, till I got cancer, after all ther radio and chemo I just seemed to have gotton everything. Had to give
up work 6 years ago, so here i am :lol:
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Re: Associated symptoms of fibromyalgia

Postby iddm » Fri Nov 27, 2009 2:14 am

I've had chronic fatigue syndrome for 9 years and have plagued gp's for a different diagnosis (one I can do something about).
I had 2 car collisions and ended up with whip lash.
NOW they diagnoses fibromyalgia.
AS time goes on I am finding myself less and less convinced of that diagnosis and feel I still have chronic fatigue with whip lash!!!!!

I understand the specific pain places, ....which I have
The rest of the symptoms are just as relevant in chronic fatigue syndrome.

I've started on Amitryptaline at night becuase that apparently is the treatment for fibromyalgia.

And all I am is more tired AGGGHHHHH

I seem to be getting worse not better!!!!!

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Re: Associated symptoms of fibromyalgia

Postby LinzWorld » Sat Nov 28, 2009 2:29 pm

AMitriptyline is not a very effective med for Fibro - it tends to only work for quite a short time and increasing the dose doesn't really help.
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Re: Associated symptoms of fibromyalgia

Postby iddm » Sat Nov 28, 2009 3:36 pm

Oh brilliant Linz
Thanks for telling me
Am I taking this for nothing then.
How do you get proper treatment.
It's all very frustrating

Should I just stop the Amitryptaline now......
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Re: Associated symptoms of fibromyalgia

Postby shazq » Sat Nov 28, 2009 3:50 pm

Hi ddim
lots of us use Ami, yes it might work for some but not others.
You should NEVER just stop a med, always consult your GP`S advice first. You will find with most meds that you have to reduce them slowly.
I have been on Ami for a number of yrs now and so have other people.
My GP has increased my a few times, you have to give them time to work. Only stop them when you have spoken to your GP.

Can i just point out that no one on here are DOCTORS, the advice you are given are purely on personal opinion only.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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Re: Associated symptoms of fibromyalgia

Postby LinzWorld » Sat Nov 28, 2009 6:52 pm

As Shaz said, never stop a med without checking with a doc first.

Ami does help some people and it is often used as a first line med for Fibro as it's cheap & easily available. There is no evidence to suggest that ami should be widely used as a treament for Fibro long term or at high doses though. That's not my opinion - that's the opinion of a research review: http://www.fibroaction.org/Articles/Hig ... Fibro.aspx

Some people are lucky and find that they can sleep well on 10-20mg ami and can do this long-term. But they are in the minority TBH (as the research says).
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