Yet ANOTHER pointless doctors visit :(

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Yet ANOTHER pointless doctors visit :(

Postby richyrich » Thu Dec 03, 2009 6:09 pm

I went to the doctors today (involved two appointments over about 3 hours) just because I'm sick of the pain, they repeatedly tell me its pulled muscles but I simply don't understand how you can pull all the muscles in your body (and joints for that matter) without actually doing anything active (merely open a door and I've snapped a shoulder out). Add to that I've been having massive kidney pains (which I thought could be an infection) and the doctor refused to accept I could have a UTI because I was a man, and only decided to run urine tests after much pressing. She pretty much tutted when i suuggested fibro.

I'm sick of this, I'm really sick of being in pain, being so tired, having so many infections and general problems.

Over the counter painkillers just aren't working for me, and I really need something stronger. I appreciate this isn't ideal but when doctors refuse to help where else can you turn? Has anyone tried cannabis as a pain relief? I know its hardly legal (i'm actually a law student) and I really don't want to have to go down this road but it seems theres no choice right now.
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Re: Yet ANOTHER pointless doctors visit :(

Postby Angel777 » Thu Dec 03, 2009 9:59 pm

Hi
Has your Gp done the regular blood tests to see if all your levels are ok?
Yes sometimes the pain in the kidneys can feel like an infection but is actually the adrenals going on to overload because of the pain.
I found taking a smallish dose of Vit C helped this . but best to make sure all your bloods are checked and ok first.
The muscles pull easily because we don't get the nutrition to them . Where we don't sleep and our neurotransmitters don't kickstart the system to feed our muscles they do become weak.

I have found reading all I could about the condition took the fear away as much as possible and then though all the symptoms are still there they are lessened if that makes sense. Irritable bladder and bowel are all part of it, watch the acid /alkaline levels in the diet.

Managing the condition with knowledge and support are key things I find. It is a really difficult condition to understand for some people , did you take the print out from Shaz'z post with you so your Gp could read it? it gives a brilliant explanation.
Can you take someone with you next time who knows what you go through?

Keep posting and working through it, we have all been there and still are at times and can really empathise with you .
I have found so much help and support here.

Angel
Diagnosed with FM 2007 /Also have Osteoarthritis which I have had for many years .
Looking to connect with fellow FM people near me as well as making friends and having support from this forum .
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Re: Yet ANOTHER pointless doctors visit :(

Postby shazq » Thu Dec 03, 2009 10:46 pm

:welcome: to the forum Rich. :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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Re: Yet ANOTHER pointless doctors visit :(

Postby smiler22 » Fri Dec 04, 2009 12:09 am

hi to the forum .. my personal view is please dont go down the route of cannibis.... as i have stated on here before. the cannibis will ony make you feel better for short periods of time to the point where you will then have a right downer and there fore may think of taking more... to the point where you will become dependant and then youll end up with a whole lot of other probs...

in many cases people can actually find the pain becomes more. as you become more paranoid about it etc........ i hav elooked after patients in the past who have tried it. young and old. so i hav eseen it for my own eyes.

if you are a law student you may as well stop studying if you turn to cannibis. as im sure it will oinly mess up your marks..

if you havent got on well with your gp as you say . try and see if you can get a second opinion from another gp or another gp surgery. you can do that and they shouldnt stop you.... otherwise ask the gp to refer you for tests blood tests to rule out other things.. like inflammation of your muscles etc which could mean you may have arthritis.,, then if things can start to be ruled out then finally ask to see a rheumo specialist....... this is the route alot of us have had to go down.... for many it has taken several years to finally get a diagnosis..... but try not to give up........ keep telling your gp till your blue in the face that you need help and possible pain meds.........could you book in for an appt with another gp and ask them for pain meds. that is what i had to do in my slocal surgery.. the first gp didnt want to do much so i asked to see another gp and he has finally followed through.... i had all thetests under the sun, along with meds pain.... and only got diagnosed in march with fibro.......

keep your chin up...... tand if poss get theat second opinion and state that you cant stand being in pain and need to hav esome form of pain meds.

good luck.
live life to the full as life is what you make itxx
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Re: Yet ANOTHER pointless doctors visit :(

Postby Elsbeth » Fri Dec 04, 2009 12:10 am

HI

Lots of doctors unfortunatly don't know much about Fibro.

I recall going to a GP at my surgery and he had never in 40 years as a GP come into contact with it. When I asked to be refered back to my Rheumi he blatently asked what I that he could possibly do for me.

Getting diagnosed is so so hard. Keep trying.

As for the Cannabis, I really would stay away from it. If you do have Fibro it is only going to make coping harder as it relaxes you, and being tired all the time and foggy will not mix well with the weed.
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Re: Yet ANOTHER pointless doctors visit :(

Postby LinzWorld » Fri Dec 04, 2009 8:48 pm

TBH, if you can afford street drugs, then why not put that money towards seeing a specialist privately? Even if you needed to get private prescriptions as well, some drugs are inexpensive and you'd be better off with a private prescription for clonazepam (a cheap drug often used effectively for Fibro) than a bag of weed.
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Re: Yet ANOTHER pointless doctors visit :(

Postby princess » Fri Dec 04, 2009 9:38 pm

Change your Dr !!!!!!!!!!!!!!!!!!!!
Phone around your area and see if there is a sympathetic to ME/fibro dr.
Or e-mail all the surgeries.
Thsi is what i did when moving house to a different area.
I did find one.
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Re: Yet ANOTHER pointless doctors visit :(

Postby bookworm » Fri Dec 04, 2009 10:01 pm

I would certainly ask to at least see a different doctor and change surgeries if necessary, before you go down the road that you are thinking. Or perhaps as Linz as suggested, see someone privately if you can afford to, not that you should have to though.

Linz - you seem pretty clued up on the drug side of fibro and such, if you don't mind me asking are you a pharmacist or work for a gp? I used to be pretty clued up on different drug groups, needed to be as I had children rewuiring lots of different meds - but not now. I can't even remember the name of mine without looking them up?

Princess - I have heard many talk of tramadol, what is it exactly - is it a very strong pain killer or something else?

Sorry for all the questions - I'm just trying to learn more :)
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Re: Yet ANOTHER pointless doctors visit :(

Postby LinzWorld » Sat Dec 05, 2009 10:31 am

Hi bookworm. No I'm not a pharmacist or healthcare professional (that is stated on my profile, not sure why it's not in my signature :| ). I run a small national charity, FibroAction, raising awareness of Fibro and in particular providing up-to-date and accurate information on the condition, so I've learnt a huge amount about the science of FIbro in that role. As well as regularly reading research papers and getting updates, I've been fortunate enough to be able to meet with and discuss Fibro with some of the world's top experts in the condition.

Any questions, ask away or email info@fibroaction.org . If I don't already have an answer, I'll try and get one from our Advisory Board as finding out about Fibro is basically my job now! :lol:
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Re: Yet ANOTHER pointless doctors visit :(

Postby bookworm » Sat Dec 05, 2009 11:45 am

Linzworld - thanks for the reply, that makes sense to me. Many years ago, I was very very clued up on a number of rare chromosome abnormalities, from which chromosome/s was/were affected to how they presented themselves and the drugs used to treat the different aspects of each associated disorder. Like you I was lucky enough to be in touch with many leading specialists from around the world - I also was in touch with a geneticist from a local hospital that would explain in detail anything I didn't understand.

I also used to be really on the ball with asthma and it's treatment - had to be as my youngest had so many 'near misses' with this condition that it aggravates me to this day when someone says - oh it's just when you get a bit out of breath :x :x :nono: If only people knew.

Sadly, I don't hold the information long enough to get to remember it now - I would have loved to have trained as a specialist nurse in either area, but alas that was not to be.

Thanks again for your explanation Linz :)
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Re: Yet ANOTHER pointless doctors visit :(

Postby Harley » Mon Dec 07, 2009 12:12 pm

I can honestly say that cannabis is not a very affective drug as far as FMS goes, I used to smoke and when the FM started to get really bad the weed had the affect of relaxing the muscles but giving crippling joint pains that are worse than anything FM can throw at you.

I'm not the only one who has experienced this as I have spoken to quiet a few people who have tried weed or were users before the FM kicked in and everyone seemed to experience the same reaction. I can't even sit in a room with smokers anymore so if I was you I'd steer well clear no matter how desperate you are for some pain relief.
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Re: Yet ANOTHER pointless doctors visit :(

Postby smiler22 » Mon Dec 07, 2009 10:37 pm

harley that is great of you for being so open and admitting on here that you have smoked dope in m= the past so well done for being so open and giving your opinion on the side efeects of the weed.


Tramadol is one of the pain relief medicines that belong to the group which morphine belongs to ..... cant remember the group at the mo. opiods i think without looking........ This means that they should help the pain signals be reduced and help in lowering the pain.......

Alot of people swear by them as helpful and i know alot of people particularly with rheumotoid arthritis who swear buy this.. however i tried tramodol as pain relief before going on the ctringeest co codomal you can get and therefore i ended up with sickness and i was very allergic to it...... so again tramadol has alot of side effects like most drugs but if it works for you then go ahead.
good luck.
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