How many of you have PSORIASIS....?

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How many of you have PSORIASIS....?

Postby ladymanvers » Thu Dec 31, 2009 3:22 pm

Further to Elsbeth's post re her neuro appointment, she mentioned she had psoriasis...I, too, have this and have seen it mentioned elsewhere on the forum. Out of interest, who else has and could this 2% of the population defect be related to fibro as Elsbeth's neuro suggested?

Ju.x :wave:
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Re: How many of you have PSORIASIS....?

Postby shazq » Thu Dec 31, 2009 4:43 pm

I have had it for a few yrs, mine is mild though.
There is lots of it in my family. :cry:
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Re: How many of you have PSORIASIS....?

Postby Elsbeth » Thu Dec 31, 2009 5:53 pm

Mine is too.

I only get it on my foot, face and in my hair, which looks nice when it flakes all over a jumper.

Makes you wonder if there is a connection actually because i have sat and chatted to my family about it and my Psoriasis is always bad whenever I am having a flare up.
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Re: How many of you have PSORIASIS....?

Postby ladymanvers » Thu Dec 31, 2009 6:11 pm

Mine is mild too but at 14 I had a whole body thing for 9months; had sunray treatment three times a week at local hospital.
I get it on arms/legs and hair now and from being clear for a couple of years mine's re-emerging during my current flare. One exacerbates the other obviously; a chicken and egg puzzle again, like all our fibro symptoms!!!

Ju.xx
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Re: How many of you have PSORIASIS....?

Postby gillshutt » Fri Jan 01, 2010 10:33 am

I have, what I've been told is, bade excema on my face. It flakes and is sore most of the year so not sure if it is or not.

Last year I bought some emu oil and gave some to a friend with psoriasis and it has helped.
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Re: How many of you have PSORIASIS....?

Postby Elsbeth » Fri Jan 01, 2010 6:24 pm

Goats milk cream is a miracle as well. However, there is something called Magna soap, I think it can only be imported that my mum swears by. My nan gets Psoriasis too all over and she uses it and hers gets significantly better while using it too.
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Re: How many of you have PSORIASIS....?

Postby ladymanvers » Fri Jan 01, 2010 6:33 pm

Might get some of those; never heard of magna soap! :wave: Ju.x
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Re: How many of you have PSORIASIS....?

Postby tracytired » Fri Jan 08, 2010 3:29 pm

Ive got psoriasis too, since a teenager, thats when all my problems started. I use Epaderm to take the itchy dryness away. xx
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Re: How many of you have PSORIASIS....?

Postby ladymanvers » Fri Jan 08, 2010 3:52 pm

Hi Tracy and All,

We're, obviously, a special lot with special genes !


Ju.x :wave:
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Re: How many of you have PSORIASIS....?

Postby MsWhovian » Tue Jan 12, 2010 9:00 pm

I have psoriasis and was originally diagnosed with psoratic arthritis last April. Then I saw another Rhemotoligist for my follow up apointment and was told I have Fibro insteed due to the negative test results. I am totally confused about this .

I am not saying I dont have fibro as I have all the sympoms and have had for many years,and it was aparently down to depresion, though none of the treatment I was given ever worked. I am wondering if as well AS having fibro I could also have the early stages of psoratic arthritis, and if in the early stages would it show on test results scans, x rays etc. Cause if its early stages it has as yey done no damage that would show up. I give up trying to tslk to my dr sbout this he dont belive in fibro, thinks its a made up name for lots of symptoms and is psyclogical.

I just give up as I am to exhusted for all this , but I would like to get the correct treatment if I do have psoratic arthrits and figure it best to tret in early stages befor it does cause any deformity to my joints.

I am waiting to see rheumy in March hopefully I will see someone different , I just find it strange that the first guy took one look at me and said I did, has anyone else had similar experince or been diagnosed with psoratic arthritis. :banghead:
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Re: How many of you have PSORIASIS....?

Postby ladymanvers » Tue Jan 12, 2010 10:48 pm

There is no specific blood test for psoriatic arthritis; x-rays can sometimes diagnose this as it appears different from other forms of arthritis. I found this on the net:

"How does psoriatic arthritis get diagnosed?
There is no specific test for psoriatic arthritis. Diagnosis is made by looking for a history of psoriasis in you or your family, together with arthritis and inflammation in at least one joint. The pattern of the disease is also assessed to see if your symptoms fall into one of the subsets of psoriatic arthritis. Fingernails and toenails are commonly affected in people with psoriatic arthritis – the nail may show signs of pitting and/or becomes separated from the nail bed, and so the doctor may check for changes in the appearance. Some tests (such as blood tests and x-rays) can be done in order to rule out other forms of arthritis. Unlike rheumatoid arthritis, there is not a blood test available to specifically diagnose psoriatic arthritis – the blood test for rheumatoid arthritis appears negative in psoriatic arthritis patients. An x-ray of the joints involved can help to diagnose psoriatic arthritis, as the appearance tends to be different from other forms of arthritis."

I, too, wonder if I have this. It's no joke when docs don't take us seriously in their investigations and once we have anxiety or depression on our notes they assume everything thereafter is that - even if, like me, we subsequently get a long awaited diagnosis; it's SO frustrating. I bet if we paid we'd be having every blood test under the sun!

Did you see the guy who was hiccoughing for three years ? He was on The One Show the other night; he initially had been to his doctor saying it very often could be caused by a brain tumour but he had three years of NHS disbelief until a doctor in Japan gave him an MRI and it WAS!

Keep fighting; it may or may not be psoriasis related but you deserve a thorough investigation as do we all!

Good luck.

Ju.xxxx :wave:
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Re: How many of you have PSORIASIS....?

Postby minnie7126 » Wed Jan 13, 2010 7:00 pm

IS MY RASH PART OF MY ILLNESS??
I am new to this site but I am not a new sufferer I have had fibromyalgia for many many years now, but recently I have been suffering from an extremelly itchy rash all over my body except for my face, back last year I congested a parasite in something that I ate and made me very ill ( sickness etc) headaches too, but once the parasite was gone I developed this rash that started on my shin then very rapidly spreed over my body, I have been having light therapy treatment 3 times a week for many months now at the hospital, the rash is clearing but not gone, I have tried many creams too and seem to have found a steroid cream that is working.
The specialist took a punch biopsy from my leg and it came back as an un-known rash, but it looks very much like psoriasis and I am being treated for that, but after reading the forums today it has got me thinking, is my rash part of my illness???
anyones input would be very much appreciated
:D
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Re: How many of you have PSORIASIS....?

Postby LinzWorld » Wed Jan 13, 2010 8:13 pm

A rash or psoriasis is not a part of Fibro, but psoriasis and joint pain may be signs of PA.
I run FibroAction, a small national charity raising awareness of Fibromyalgia Syndrome. I am not a qualified healthcare professional. If you would like medical references for any facts quoted, just PM me.
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Re: How many of you have PSORIASIS....?

Postby gillshutt » Thu Jan 14, 2010 9:02 am

It's also possible to have psoriasis and arthritis which isn't PA. A friend has OA psoriasis and FM :(
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Re: How many of you have PSORIASIS....?

Postby Sophiex » Thu Jan 14, 2010 1:58 pm

MsWhovian wrote:I am wondering if as well AS having fibro I could also have the early stages of psoratic arthritis, and if in the early stages would it show on test results scans, x rays etc. Cause if its early stages it has as yey done no damage that would show up.


I believe that, even if you were in the early stages, it would still show up on scans. I had a scan of my whole body and it showed early changes in some joints and more significant inflammation in other joints.

I have inflammatory arthrtis but it's undifferentiated. I have mild psoriasis and I see my rheumy again soon, I'm pretty sure it'll be confirmed that I have psoriatic arthritis.

I hope this helps.
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