Anyone have this?

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Anyone have this?

Postby coral » Thu Apr 15, 2010 7:37 pm

Just wondered if anyone suffers with a dry, sore tongue. I've had it since January now. GP thought it was thrush and gave me drops, they did nothing then I had lozenges. Cleared up for about 3 days then back again. GP was totally confused and gave me a spray for saliva, that don't do much either. Back to GP's again and different Dr wanted me to have blood tests to see if I had anaemia. They came back normal, so she said she will refer me to an oral specialist, probably take 3 months or more like the other referral I had. Nothing is quick is it?
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Re: Anyone have this?

Postby lesley45 » Fri Apr 16, 2010 5:46 am

That happened to me when I tried Amytriptiline, what meds are you on?
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Re: Anyone have this?

Postby coral » Fri Apr 16, 2010 12:40 pm

Well it started in January when GP thought I had stomach problems and I was on Omeprazole from December until February. I stopped taking them because I thought it was making my tongue sore but it made no difference. I haven't been on anything else really just pain killers for the all over pain. GP put me on Citalopram Monday but I came off them yesterday, side effects were just too bad now she's put me on Amitriptyline 10mg to start off. Waiting to see a specialist about my tongue.
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Re: Anyone have this?

Postby LinzWorld » Sat Apr 17, 2010 9:25 am

If its not medication related, it may be a sign of Sjogrens - http://www.medicinenet.com/sjogrens_syn ... rticle.htm
I run FibroAction, a small national charity raising awareness of Fibromyalgia Syndrome. I am not a qualified healthcare professional. If you would like medical references for any facts quoted, just PM me.
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Re: Anyone have this?

Postby fibrofighter » Sun Apr 18, 2010 12:32 pm

hi
Yea i too get this even before i was placed on meds. Dry tongue, swelling in gum which is tender then just dissappears. My tongue when it starts feels like i have burnt my tastebuds. Dont know if yours in similar.
:hugs:
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Re: Anyone have this?

Postby coral » Sun Apr 18, 2010 1:41 pm

Yes Fibrofighter that just how mine feels, like the tastebuds are burnt. It's really horrible and like a metalic taste in my mouth when its really bad too. I used to Cordorsyl mouthwash 2 days ago and that seemed to help. I notice that when all my other symptoms are at their worst so is my tongue.

Did look at older posts last night on here and some other people said they have the same with their tongue, so maybe thats part of the Fibromyalgia. I had a good day yesterday (almost pain free) and my tongue was much better and its ok today (not normal) but better than it has been for the last 2 weeks. Really weird isn't it?
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Re: Anyone have this?

Postby fibrofighter » Sun Apr 18, 2010 3:49 pm

Hi Coral
yea it is very weird, sort of glad it could be related to FM tho, for some reason mouth cancer always worries me when it starts. I'm having a bad day today and funnily enough my mouth is sore :cry: maybe it is linked to FM huh. Very strange ailment if you ask me but by the strange looks i get off people when i describe FM it appears to be a strange illness full stop :lol:
Hope your good day continues for a longer period of time :wink:
Kaz x
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Re: Anyone have this?

Postby coral » Mon Apr 19, 2010 9:21 am

Thought it was just thrush in January when it started and it came on very suddenly but the treatment for thrush didn't work. There was just no let up and I am a right worry guts and like you thought cancer of the tongue or something. Waiting now to see the specialist about it. I definitely think its connected to FM. I'd never had it before all this other stuff started so makes you think.

Not too good today, very difficult to get out of bed this morning, top of my back especially around the left ribs feels like someone is continually punching me and still got the pain in my coccyx where i fell down the stairs 10days ago even though the Dr said it should go within 7 to 10 days, thats a big NOPE.
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Re: Anyone have this?

Postby fibrofighter » Mon Apr 19, 2010 11:51 am

Aww poor you falling on your Cocyxx, :hugs: nothin worse is there!! I too struggled get out of bed because my back and shoulders are agony today. However had to get up for a drink because my mouth was killin me :lol: .
Hope your feelin better soon :hugs:
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Re: Anyone have this?

Postby coral » Tue Apr 20, 2010 9:45 am

Hi fibrofighter and hope you are having a better day today. Touch wood (actually did that lol) my tongue isn't quite so sore these last 3 days, just a bit raw. Just hope it doesn't come back full blown for a while. I took my Amitriptyline before I went to bed last night instead of in the morning because it doesn't say on the box when to take it and I took 2 painkillers and managed to get out of bed better this morning, so will try that every night now.

I'm in work this morning (I do volunteering for a domestic abuse service) and I'm so tired even though I had a good 7 hours sleep last night. Just hope I don't fall asleep at the pc lol.
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Re: Anyone have this?

Postby fibrofighter » Tue Apr 20, 2010 12:23 pm

Hi Coral,
glad your feeling better!!
I was told to take Amitriptyline a night as it helps me sleep without constantly waking up to turn over because of pain. However, i find i sleep great but wake up more stiff as i have been in same position all night and my muscles dont seem to like playing that game :lol: . I too volunteer :D in a prison and as a substance addiction support worker, however the prison one aint lookin too good as its built on a hill so the walking is killing me :( .I am rubbish at this replying thing as i cant see what you put and my memory is atrocious :crazy:
Hope you continue god days :D
Kaz xx
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Re: Anyone have this?

Postby coral » Tue Apr 20, 2010 7:22 pm

Hi Kaz. CAn understand the hill situation, I live on a hill which is quite steep and it takes me ages to get home. Lots of hills where I live in the welsh valleys and of course I don't drive so have to bus it everywhere. Must admit been feeling better these last couple of days but still always oh so tired, starts about 11am every day and continues throughout the day, tongue feeling better too which is sooooo nice. Something odd today though, my eyes are really blurry mainly my right eye (the good one, left is so bad anway) feels like its wet all the time and running. Don't know whether its to do with Fibro or maybe something else.

Think I will stick to taking the Amitriptyline in the nights now and a painkiller too, it was so much better getting out of bed this morning. This may sound stupid but all my symptoms seem to get worse around about the date my periods would have been due, did say this to my GP but they dsmissed it. Haven't had a period now since last November and thought maybe I might be on the menopause, GP just shrugged at that one.

Ah well its almost 7.30pm, roll on bedtime me thinks. Will try to hang on until about 10pm then off to the land of nod. Not working tomorrow I only do Tuesdays and Thursdays. Don't know how some people with Fibro manages to keep up doing a full time job, I wanted to put my head down on my desk this morning and just sleep.
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Re: Anyone have this?

Postby fibrofighter » Tue Apr 20, 2010 8:36 pm

Hi Coral
I imagine living in Wales is Beautiful but can see your point about the hills. I too cant drive, keep trying to learn but i get a dead leg having it sat on the acellerator pedal with my ankle at a funny angle, so end up putting my foot down too hard because i cannot feel the pedal, my other half not impressed at my fantastic ability to scare the heck out of him :yikes: .

As for your eyes, funnily enough mine do that too sometimes never considered it could be FM just thought it was one of them things :lol: . Dont even mention periods to me, i have PCOS and rarely have periods, 12 months ago was my last one :? . Good job i was sterilised at age 22 or i would panic every month :lol: Trying to lose weight at the minute because am getting married in 2 yrs in the Maldives and dont want to be a whale :lol: however PCOS causes weight loss to be near impossible and the FM dont help as it hurts to exercise :cry: . Ah well keep trying!!!

Busy looking for a job at the mo, recently graduated in Forensic Psychology but had to leave my Masters course due to the FM (i traveled 40 miles each way daily to uni on train). Finding a job which fits around my FM and my babies is near impossible :x

Hope you have a great sleep and the Amitriptyline work their magic :wink:
Kaz xx
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Re: Anyone have this?

Postby coral » Wed Apr 21, 2010 6:24 pm

Hi Kaz. Wow forensic psychology eh? Well done. I can imagine how hard it is for you to lose weight with the PCOS and FM together, must be very difficult. Congrats on your future wedding by the way. I got married 3 years ago this coming June to a Moroccan. He came over here October 2008 so have to apply for his permanent visa now in September. I wonder sometimes with all the stress of running back and for to Morocco, marriage out there, then visa applications, refusals, embassies, solicitors etc kind of brought this all on. They say stress don't help FM and I've certainly had my share of that. Seems like since he got here just about everything seems to be going wrong with me. Just over a month after him coming I had to have a cervical polyp removed. Then in the December (our first xmas together) I started having all these stomach, chest and back pains (probably FM) but had a diagnosis of hiatus hernia then an ultrasound discovered a large gall stone. So then waited months for op to remove that which I had last August and since having it out I've been in constant pain every day now. Had loads of tests done but nothing ever shows up thats why Dr said Fibro but I'd still like to see a Rheumatologist to confirm this.

Took my painkiller and Amitriptyline last night before I went to bed at 10.30 (wow so early, I used to be a night bird but not anymore) only to be woken at midnight by my hubbies loud voice. I came downstairs and he was talking to his mother and sister. They speak arabic and my god they are so loud so I wasn't too happy about being woken up after only about an hours kip. Ended up taking a sleeping tablet then because I was wide awake and in pain. My hubby too doesn't really understand whats wrong with me. Because I limp owing to my back he asks me if my foots no bettter? I did sit him down and explain to him the other day what is wrong but I don't think he fully understands it. My 17 yr old son doesn't want to understand, he thinks I am there to be at his service whenever he wants and when I say "I can't", he says "you're always ill". Think the dog understands but I'm not talkiing to her because she's the one who tripped me down the stairs lol.
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Re: Anyone have this?

Postby fibrofighter » Wed Apr 21, 2010 7:14 pm

Wow, Congratulations on your marriage :D . I imagine dealing with Visa's and stuff is a real stress!! I know my sister in law married a Kurdish man and they still struggling with Visa's. No wonder your in pain. Yea i have always had pain but seemed it was the intense stress of uni, finances and running a home and kids (as my other half works 72 hrs a week) that suddenly made this pain increase ten fold until finally Doc diagnosed it. So i imagine your increased pain is down to stress. Nightmare isnt it.

I thankfully have been lucky so far and my other half and our children are pretty patient when it comes to my pain. I have three boys aged 11, 9 and 7, as their dad always at work they tend to take it upon themselves to look after me :lol:. Cleaning is one thing they wont do but they will behave for me which is something at least :lol: Just trying to teach them to put their own washing away, thought they were doing well until i found it all stuffed down the side of their wardrobe :lol: lil sod pots!!

Well i sure hope you get all the paperwork etc regarding Visa's out of the way, then maybe the flare up will ease a little, Fingers crossed!!
:hugs: Kaz xx
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