Fibro and Allergies to meds

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Fibro and Allergies to meds

Postby Schip » Sun Jun 06, 2010 1:21 am

Wondered if any others have problems with their medications?

Over the last yr I've become reactive to any medication even the antihistamines my dr's say I need to control the allergies. In the last 3 mths I've had to stop pain meds, anthihistamines, hrt, antibiotics, anti inflamatories, I now only need to take 1 pill to get a reaction. Usually within an hr max I start to feel faint, followed by increased heart rate and blood pressure when my adrenaline kicks in, depending on how much my body doesn't like it as to how long an episode lasts, generally 72 hrs upto a wk.

I had to stop my last course of antibiotics after 3 days as I couldn't walk was shaking from head to toe, with my whole body feeling like jelly and exhausted. I can no longer drink tap water even boiled and have to use bottled water, very expensive I can tell you, Drs suspect I'm reacting to a chemical cleaning agent used to purify our tap water, thought it a tad extreme when he suggested it but after 2 days my shaking, heart rate and bp started to drop again, now a wk later they're all back to normal.
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Re: Fibro and Allergies to meds

Postby Ellen Tracey » Sun Jun 06, 2010 9:05 am

Hi Schip, As time goes on my body seems to get more sensitive to everything :roll: , I am alergic to two types of anti-biotic's anyway but i cannot take any anti-imflams at all anymore, this happened since the doctor gave me diclofenac just over a year ago and with having arthritis this is tough at times :( my left heel is very sore and i thought the bone had come out at the back but doc says its a ligament/tendon?? its hell and all i can do is put anti- imflam gel on it which doesnt do much good to be honest :crazy: .

Take Care,
:hugs:
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Re: Fibro and Allergies to meds

Postby denys » Sun Jun 06, 2010 10:50 am

Hi Schip, one of the symptoms of FM is sensitivities to medications and chemicals, you seem to have an extreme case of it though my doc used to say I had usage allergies, the more I used things the more likely I was to become sensitve to it and so antibiotics are used very sparingly and only if there is no other option. poor you though allergic to tap water, do you have to use bottled to make a hot drink :?: :hugs: :hugs:
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Re: Fibro and Allergies to meds

Postby tireesix » Sun Jun 06, 2010 1:07 pm

I react to loadsa stuff now as well, still recovering from mirapexin this time, I ballooned (literally lol) from just under 9 1/2 stone to over 11 stone in just 3 weeks (lost my vision while on it as well)........

I am refusing any new meds for the moment, I can tolerate the ones I am on and I really don't want anymore funny stuff.
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Re: Fibro and Allergies to meds

Postby LinzWorld » Mon Jun 07, 2010 3:22 pm

I knwo Prof Davies has noticed this in some of his patients (who have then spoken to me). If they can see him privately, he often uses a course of Myers (lidocaine and vitamin/mineral injections) and no other meds until the sensitisation has eased, as the Myers are often well tolerated and the vitamins and minerals can help.

Some people with (and without) Fibro do also have MCS or Multiple Chemical Sensitivities which can be extremely debilitating if you can't get it under control as you end up having to avoid more and more things.
I run FibroAction, a small national charity raising awareness of Fibromyalgia Syndrome. I am not a qualified healthcare professional. If you would like medical references for any facts quoted, just PM me.
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Re: Fibro and Allergies to meds

Postby Schip » Mon Jun 07, 2010 11:16 pm

Interesting about the useage sensitivity, I've had some drugs for a while then a break as they became ineffective but when I went back to them upto a yr later I reacted by the 2nd tablet, my GP was shocked last yr when that happend. I now realise it was one of many episodes of this problem getting worse over the last 5 yrs, unfortunately we just thought it was side effects so nothing out of the ordinary.

I am due to see my Rheumy next mth so will be looking to him for some serious help with this because if I get an infection that needs antibiotic treatment its usually at the 2000mg per day doseage for 10 days! I've also got a letter today from immunologist clinic at Leic Royal to arrange an appointment but apparently it could be mths down the road due to a lack of specialists. Confess to wishing I could have gone today as I boiled my potatoes and made gravy with tap water yesterday so in a bad way with the shaking, tingling/numb face lips, elbows, thankfully my heart rate and blood pressure have gone down again by this afternoon just want the rest to go too lol.

Am I being a baby wanting to just sit down and cry in sheer frustration and pain?
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Re: Fibro and Allergies to meds

Postby denys » Tue Jun 08, 2010 3:20 pm

No you are just being human, it gets to us all at times :cry: it must be awful to have to think about how your food is cooked, difficult if you want to eat out! water is something we take for granted :yikes: :hugs: :hugs:
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Re: Fibro and Allergies to meds

Postby Schip » Wed Jul 21, 2010 11:54 pm

Went for a dinner out Monday night with friends, had chips, peas and gammon - it arrived chargrilled which you'd think would be ok. Oh no it wasn't and I'm still suffering the effects not sure if it was the salt of the gammon, friends said it wasn't very salty at all but to me it was like eating a mouthfull of salt, or something they put on the grill but my symptoms started within mins of the first mouthful.

Rheumy gave me amitriptyline pills to help - still trying to figure out which bit of my reaction to medication regardless of it being in capsual, patch or pill form he didn't hear? He decided my bp was too high at 150/90, I thought that was good the temper I was in and certainly better than it had been for a couple of days before due to something I'd come into contact with.

The immunologist appointment isn't until October so here's hoping I don't get an infection before then needing antibiotics - this is really getting me down, have figured out Pepper is a no no for me now.
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Re: Fibro and Allergies to meds

Postby LinzWorld » Thu Jul 22, 2010 9:06 am

If you can see Prof Davies privately to try the Myers, I would. It's the only thing I've heard of above supplements that has helped patients in such a state of sensitisation.

Can you tolerate probiotic capsules? Might help with warding off infection and also if your GI system is out of whack.
I run FibroAction, a small national charity raising awareness of Fibromyalgia Syndrome. I am not a qualified healthcare professional. If you would like medical references for any facts quoted, just PM me.
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Re: Fibro and Allergies to meds

Postby Schip » Sat Jul 24, 2010 12:47 pm

I've tried patches, capsuals, tablets, liquid forms to no avail I used to take a range of supplements including a good mutli vit, calcium, garlic, apple cider vinegar, flakseed, vit c and lechithin which kept me infection free until dec last yr which was good going, normally Sept I get my first infection.

Have just had to come out my greenhouse as symptoms started up, only got toms and melon's in there, peppers, chili and aubergines have been infested with white fly and succumbed. Seems to be any of the leaves touch me, I start to itch and get the nettle sting type pain in my lips, here we go turning into Margo off the good life with me marigolds on to garden lol.
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