becoming a Hermit

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Re: becoming a Hermit

Postby sleepyrich » Fri Jan 14, 2011 1:51 am

I have always been a fan of staying in too, however there was a period about 9 years ago when I was made redundent and decided to learn web design myself at home, I started to get agrophobic and then the thought of going out would bring on anxiety, they were dark times compared to now. I allready feel I'd rather stay in and to be fair getting out appears to take me so long that it gets too late to bother. I would rather have to spend a day or 3 in bed recovering after nice day out in a country park than go to that place again.

Regardless of how much I would stay in, I found that going for walks in the country was very good for my mind and in the summer we did a geocache with the kids which was good fun! just need the iphone app. I will be completely gutted if I am unable to do that sort of walking as walking is something I loved doing.

Tip for shopping, find a 24 hour supermarket, 10pm till 1am is a great time to have the store to yourself, if they are stacking shelves with pallets in the aisles then trolly up the main isle and leave it at the ends while you walk up each isle getting what you need, if the staff are stacking you will find you have your own personal assistant for each aisle :D
Although i have to say i was knocked back when I went shopping for a few bits when my symptoms went to the next level as a girl of same age as me asked if I needed help getting the naan breads off the 2nd shelf up! :facepalm:

Re: becoming a Hermit

Postby sleepyrich » Fri Jan 14, 2011 1:58 am

matthew wrote: These days I when I think about going to town, like Shaz said, with people and lights and noise, it's like I'm thinking about going to war. I can go for a short walk most of the time around the village, so I see no reason why I can't handle the physical aspect if I sit down often enough, take it slowly and use my stick, but somehow my brain cannot now deal with town and all the hustle and bustle that goes with it. :?

Maybe it's the fibrofog.

This is a major part of the cognitive issue I am having, I went to a busy shopping centre I was there 2 minutes and nearly started crying on the spot. I was trying to focus on my wife as she weaved through the crowds but my eyes were all over the place being distracted left right and center!

I also notice this when I am driving, anything moving out the corner of my eye and it pulls my attention away from where I should be focusing. I have limited myself to the essential trip to the 24 hr supermarket late at night which is not even a mile away. Not sure what I am gonna do about it but I wont be driving until I can be sure I am ok to.

Re: becoming a Hermit

Postby animalhouse » Mon Jan 17, 2011 8:21 am

i have stopped doing even tghe local supermarket after i went one night and when i got home realised i had forgot to putr lisghts on.
street lights were well lit and it is onlly at end of our road 2 minutes away but realise i also use to get jumpy so was too nervous to drive.
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Re: becoming a Hermit

Postby nutty1 » Thu Jan 20, 2011 10:10 am

:wave: seems to be a major issue with us all :( and what sleepyrich says is a better option :) i have probs with too many people around me esp when spasms are going shakes face twisting get so :oops: but the worse oe is peole can see you are struggling balance but still walk or bump into you :evil: i end up all over place .however on a more cheerful note :lol: go to the cafe on here or fibro farm or hopefully princess will come back and arrange one of her hols :crazy: .let your imagination take you to happier places :yikes: :wine:
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Re: becoming a Hermit

Postby denys » Thu Jan 20, 2011 2:38 pm

Sounds good Nutty :hugs: :hugs: :wave:

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Re: becoming a Hermit

Postby Lesley46 » Sat Jan 22, 2011 6:58 am

I know exactly how you feel Shaz I am the same. I dread bumping into anyone I know at the supermarket because I just don't want to talk to anyone. When they ask you how you are if you tell them the truth they sometimes look at you as if they don't believe you then I wish I hadn't bothered saying anything. I find now that I've given up trying to tell anyone about my illness I only want to talk about it with others who have it and understand. So for that reason sometimes the depression can set in and I don't want to socialise with anyone. It got so bad recently that I unplugged my phone for a week and wouldn't answer the door to anyone. I hate travelling by bus anywhere now as that can be really stressful too and I just want to get home and feel safe again. The things normal people can do without thinking about it are such a struggle for us. I know it's not healthy to hide ourselves away and I would like to go out to some nice places in the countryside etc but don't have a car or know many people with one who could take me so that's out of the question too. Oh well just have to look forward to the days when I feel well enough to walk up to the beach. :)
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Re: becoming a Hermit

Postby efrem » Sun Jan 23, 2011 8:44 pm

hello,i am also getting to dread going you said the thought of getting washed and changed feels like a chore.also do not like driving to far as it makes my arms ache,rather potter around the place at my own pace.what a fun life i now have-not.take care :D
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Re: becoming a Hermit

Postby mellabella » Fri Jan 28, 2011 1:20 am

Yes, i'm glad i'm not the only one. I find i have to try and plan and manage my time out. I't rare for me to go out in the evening . The last time i tried that, i had a painful three days in bed after. If i know i have to go out at some point - even if it's a week in advance. I worry and fret about it so much.. what will the weather be like, will there be parking, will i feel exhausted, will i have to stand, walk ect.. so many variables that if not carefully catered for, can cause a flare up, that it is just so much less stressful not to bother however, then you get into the realms of total despondency that i usually end up forcing myself and somehow managing it. The worst part of it is having to make excuses that people understand to explain your behaviour for not socialising with them. I mean it's difficult for a person to understand that for them a meeting up for a coffee and a chat is a simple time out bonding social experience that they do amongst other things going on in their daily life, whilst for you it is akin to an arduous military operation of meticulous planning, often starting the week before and ending with a thorough debriefing and if your lucky, a soothing massage off a family member whilst your crying in exhaustion.
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