Severe depression

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Severe depression

Postby Stephanie66 » Wed Dec 22, 2010 12:30 pm

Hello,
I have suffered from IBS CFS now recently diagnosed with Fybro a week ago. Before all of this started, I was a healthy size 16. No problems, no health problems and was happily carrying on with everyday life.
2 years ago I was diagnosed with IBS, after severe pains that was driving me insane on Boxing day, ruined my day and I was in aggony. Since then, everything went downhill. My energy, my eating habbits, my social skills and most of all - my happiness.
I recovered from the IBS by using Movicol which I have taken 3 times a day for the pas 2 years now, I say recovered because as I get trouble from it still, my illness of Fybromyalgia and M.E has overrided my pain of the IBS.
In the begining people didnt believe that I had anything wrong with me, parents just thought I was being lazy, friends thought I didnt want to bother with them, so I lost friends. I have a passion of singing which I had to give up to a certain extent as I was so tired in everday life. I have got to the point in my life now where I do not get out of bed, only to go to visit my Nan who lives down the road or go to the shop if my parents go, even then im bedridden for days after.
I have lost my friends, which means I dont socialise and my social skills have gone downhill, I have now been kicked off my college course due to me being off so much through being ill. I have been to the doctor on Monday and she told me that there is nomore they can do for me, the specialist cant do anything and neither can the doctors. She said I am going to have to find something I can do and not sign on the sick as I am young enough to do things. I thought this was very bad by them as it doesnt matter how old you are, you are in pain and can not do a normal everyday job. This shocked me. As everything has taken a turn for the worst, I just feel so down, and I am in bed even more so now than I was before as I see no point in getting out of bed, as there is nothing I look forward to anymore. Not even my singing which is a great passion of mine.
I could carry on writting loads in here but I dont want to bore you all. I am new here and just wanted to talk to people with the same problems as me. Someone who understands and dont think that it is a "mysterious" illness that dont exsist!
Hope everyone is ok to the run up of christmas,
Stephanie. :needhug:
Merry Christmas .... x
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Re: Severe depression

Postby tazzajay 1 » Wed Dec 22, 2010 4:36 pm

:hugs: to you.
"Judge not unless you judge yourself"
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Re: Severe depression

Postby Stephanie66 » Wed Dec 22, 2010 5:06 pm

Hey, thank you for the hug.... :hugs: how are you? x
Merry Christmas .... x
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Re: Severe depression

Postby shazq » Wed Dec 22, 2010 8:36 pm

Hi Stephanie

Sorry to hear you dont have a very understanding GP. Is there another GP in your surgery you could see? if not can you change? as having a GP on your side makes a big difference with fibro.
It is bad these days why some Gp`s dont understand/beleive in fibro because there is a NHS web site on fibro. :-
http://www.nhs.uk/conditions/Fibromyalg ... ction.aspx

Maybe print some info off from the above site and ask your Gp to read up on it?.

Was it a Rheumy who dx you with fibro Steph? or GP?

It makes me angry when they tell you there is nothing more they can do for you, there are lots of things to try help with pain/depression/. Lots of people go on pain courses (i have been on one) have physio. Dont let them fob you off. :hugs:

Have a good look around the forum and any questions just ask. :hugs: :xmaswave1:
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Re: Severe depression

Postby Stephanie66 » Wed Dec 22, 2010 8:45 pm

Hello,
A specialist for diabetics diagnosed me with CFS , and my GP diagnosed me with Fybromyalgia last week....
she told me to just get on with things as thats what I have to do , I should be out getting some qualifications etc
I was not happy atall with the way she was with me. :nono:

But I wont give up, she told me she will not sign for me to have DLA, which really annoyed me. I have been kicked off my college course, and have no money coming in right now, which is causing troubles at home.
:hugs:
Merry Christmas .... x
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Re: Severe depression

Postby tonydin » Wed Dec 22, 2010 10:22 pm

like you i kept taking time of work a few years ago and nearly lost ajob , now i just grin and push on and try to ignor the pain ( easier said than done i know . i know if i stop pushing that will be it if i stayed in bed or sat for to long i would get really bad and not be able to do any thing , i belive you have to ignore it if you can and keep active , some times i can hardly walk a 1/4 of a mile but (and this apllises to me and i know others may be differnt) if i get through that first 1/4 mile i can often then march at 4 mph for 3 or 4 miles and have less pain , untill i stop that is and sit down then it really kicks in. then i get out of the car and can hardley walk at all.
no one understands this condition unless they have fealt it , but i am sure that we have to keep moving , to much rest will worsen it as much as to much exersise.
i know it sounds hard but the docs can do little to help and although its not all in the mind . it does appere to be generated by a brain malfucntion so attiude and the way we react to it may well be a vital factor
take care
tony
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Re: Severe depression

Postby tonydin » Wed Dec 22, 2010 10:25 pm

i would like to add that i do not have CFS and can imagion that this coupled with fm must be a devistating combo as fm symptomes are bad enough on thier own
tony
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Re: Severe depression

Postby Stephanie66 » Wed Dec 22, 2010 11:05 pm

Hello ,
Yes I feel depressed alot and then that makes me not want to do things then.
Merry Christmas .... x
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Re: Severe depression

Postby FluppyPuffy » Wed Dec 22, 2010 11:12 pm

Hello stephanie :xmaswave1: So sorry to hear what you're going thru and what your GP has been saying to you :x I agree with shaz about having an understanding GP, it can make such a difference :hugs: If there is another doctor at your surgery, see if they are better than your current one, if not, see if there is another surgery with more helpful people.

What you've said about her telling there is nothing else that can be done for you, that you need to just get on with life and refusing to help with the DLA stuff sounds like a lot of the bigoted comments I've heard over time. As she made the dx, rather than referring you to a rheumatologist, suggests she has at least heard of FM, so I can't understand why she would make a comment about there being nothing else that can be done. Altho there isn't a cure, there are various meds you can try to see how they might help you. Admittedly, it can take a while to find the right combo for you, but there is a life with FM, albeit a different life to what you may have thought of. As well as the meds, some people find things like physio and pain clinics can help them as well.

I can empathise with you about the loss of friends and not wanting or being able to socialise. I'm still very reluctant to go out, and I can't go out alone, even if it's to somewhere I know well. I'm scared in case something happens, what people might say to me and lots of other very random and catastrophic thoughts that spring into my head and take over everything. I now only socialise when it's something very special to me. The important people in my life know how I am, and accept me for me. If anyone makes snide comments, I work on the basis that it says far more about them than it does me :tongueout: :tongueout:

Have you told your college what you have been diagnosed with and how it is affecting you?? They usually have someone who specialises in dealing with students with illness/disabilities to help them with problems that can arise. Just wondered if it might help you with the possibility of getting onto a course in the future :dunno: :hugs: :hugs:

For the financial side of things, regardless of what your GP has said, it might be worth getting in touch with CAB or some other similar organisation to see if you could possibly qualify for some help moneywise.

I hope things start to feel a little brighter for you soon :hugs: :hugs: We're here for you :grouphug: :grouphug:
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Re: Severe depression

Postby Stephanie66 » Wed Dec 22, 2010 11:24 pm

Hello there
Yes I have told the college what I have, and they were relucent to allow me onto the course. But they did allow me an I havent been able to have full attendance - which they were strict on. They told me that I have low attendance and that I should be in more. They said they are sympathetic, but only to a certain extent - I told them thats fair enough but please take into considersation that I did tell you about my illnesses before I enrolled onto the course, and also told them that my attendance would be of a low standard due to my illnesses, which they understood and said yes.
:|
Yes, I am going to go to a new doctor as of next week to see what another , more understanding doctor will do.
It gets so depressing on times. In my mind I want to go out, do things, see friends etc. But right now I have alot of things on my mind, going on in my life etc that stops me from doing the things.
The doctor gave me Prozac to take - god it was terrible, I stopped eating - being sick, feeling dizzy - and that's after a week of taking them. So I had to stop, and when I went back she told me there is nothing else she can do to help me....I was devesated.x :hugs:
Merry Christmas .... x
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Re: Severe depression

Postby tonydin » Wed Dec 22, 2010 11:31 pm

anxiety and dpression go hand in hand with fibro and i have had my fair share, but not now , i found hypnotherepy worked wonders for me in that respect , best thing i ever did
tony
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Re: Severe depression

Postby Stephanie66 » Wed Dec 22, 2010 11:46 pm

I need to try different methods to kick this depression into place. I went to the doctors and all they said was .. take this:Prozac. Once that didnt work it was out of the window for me!!
so I am trying methods myself like Yoga i have been told is good for feeling down and achy etc
Merry Christmas .... x
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Re: Severe depression

Postby FluppyPuffy » Wed Dec 22, 2010 11:55 pm

Depression can come with fibro, along with anxiety, as well as your mind not switching off and finding the general day-to-day things overwhelming. I've been in a place like that, it took a while to find the best way for me to deal with it, and even now I don't always get it right. I still think I can everything like I used to at times, until my body gives me a painful reminder.

I can understand you feeling so devastated when you were told there was nothing else your GP could do, but there are things that can be done and used to help, from meds to physio to counselling/CBT etc. It's good that you're going to see another DR :fingerscrossed: you get the help and support you need. I tried Prozac and didn't find it any help at all, but there are other anti-depressants that could help. The symptoms you said you had in the week you started to take them could have been side effects, as it can take a while for them to get into your system and start to take effect. Don't be put off with how they made you feel as there are numerous other ones to try, and as I seem to be saying rather a lot :facepalm: , it can take a while to find what works for you.

I struggle with balance and getting into even the easiest positions so I've not had much success with it, but that doesn't mean you'll have the same problems with yoga :fingerscrossed: :fingerscrossed: it can help you :hugs: :hugs:
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Re: Severe depression

Postby Stephanie66 » Thu Dec 23, 2010 12:04 am

Yes everyday things get me down so much, even down to getting out of bed.
The doctor just diagnosed me with fybro and specialist with M.E - specialist discharged me and it was like .. there you go then, that's it. You have it now deal with it. I wasent told there were any of these groups, or anything like CBT, nothing. Just told to go home and just keep active. But now you have mentioned other things, I am starting to see that there areother ways to try and cope with this.
Thank you for taking your time to reply to my mail I send here. Very kind of you.
Im Stephanie by the way. :wave: x
Merry Christmas .... x
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Re: Severe depression

Postby tonydin » Thu Dec 23, 2010 12:12 am

fluppy thats interesting that the mind running on all the time is associated with fibro , i used to get thisall the time long befor the pains became a real problem , its a horribal feeling that i manage to control now when i feel it comeing on.
its amazing how many bits of this puzzel there are and how they srtart to fit togethrer
tony
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