myoclonic seizures

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myoclonic seizures

Postby Adele » Fri Jan 21, 2011 10:32 pm

i have a history of seizures and i just realised that i have probably been having myoclonic seizures for the last week.

i have just taken diazepam and i am resting now after one. jerking around the bed involuntarily has worn me out. i don't want to have a full bown seizure which can happen.

it's time like this i hate living alone. anyway, i need my meds and can't just stop them all. anyone know which one could be to blame? i know that the doctors blamed my last full blow seizure on tramadol so i will cut that out. i have only recently started on the oramorph and butrans patches.

my meds are:
thyroxine
adcal-d3
symbicort inhaler
paracetamol
diazepam
dihydrocodeine
tramadol
oramorph/mst
butrans patch
omeprazole
sertraline
quetiapine
zopiclone

thanks for reading, you all help me feel less alone, adele :blowkiss:
Last edited by Adele on Sat Jan 22, 2011 4:02 pm, edited 2 times in total.
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Re: MYOCLONIC SEIZURES

Postby fibro-lu » Fri Jan 21, 2011 10:48 pm

hi
would suggest you read the by pack info and check them out on the side effects
or
search the net
either for side effects paracetamol (and all the other meds)
or
seizure paracetamol (and all the other meds)
if there is a link it will show

maybe that's different
i twitch quite often

maybe others can be of more help
on detox
:flowers:
all the best :cow-wave: Lu
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Re: MYOCLONIC SEIZURES

Postby nutty1 » Fri Jan 21, 2011 10:57 pm

:wave: sorry hear you having seizures ,but my advice would be see your dr. or specialist .to stop tablets etc,would be fatal without there expertise :fingerscrossed: things improve for you soon :hugs:
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Re: MYOCLONIC SEIZURES

Postby Adele » Fri Jan 21, 2011 11:02 pm

i have been going in circles on the net unfortunately.

i normally twitch or have a tremour, this is alot more. i am waiting to see my neurologist again about my seizures. i was misdiagnosed with epilepsy 10 years ago. i have a low seizure threshold.

it just proves how bad fibrofog is. i've been having seizures for a week and only just realised. :facepalm:

seriously though, i have enough to deal with. i used to have almost constant myoclonic seizures and about 10 full blown seizures a day. do not want to go back there.

adele
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Re: MYOCLONIC SEIZURES

Postby sleepyrich » Fri Jan 21, 2011 11:30 pm

That is alot of medication!
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Re: MYOCLONIC SEIZURES

Postby tonydin » Fri Jan 21, 2011 11:53 pm

adel read the butrans sheet . i had to ditch valiam ad codine befor they would let me try butrans, you take a big mixture of pain killers and need to make sure there are no contradictions.
take care
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Re: MYOCLONIC SEIZURES

Postby Adele » Sat Jan 22, 2011 12:14 am

i know. it's a load of pills and i don't know what to do about it. i can't walk if i don't take them or get myself out of bed.

each doctor i see just wants me to take more. in hospital they had me on 20mg of morphine every 2 hours if i wanted it. it's a good thing i came home as the surgeon wanted to "get my pain under control" with more meds. the rheummy wants me to start gabapentin and the neurologist hasn't even started yet.

i am on less pills than i used to be. the pain specialist said that as my pain is chronic i wasn't to worry about becoming addicted to the painkillers as i am not going to stop taking them.

i checked my meds with my gp and he says the doses i am on are safe together.

....i phoned the doctor tonight and she's not worried by the seizure.
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Re: MYOCLONIC SEIZURES

Postby denys » Sat Jan 22, 2011 12:28 am

Hi Adele when do you go to see the neurologist :?: :?: You could go and talk to a pharmacist who should be able to check out all your tabs and look for any contraindications with them, if you just explain that you are a little worried because of the twitching and then if there are any or combination of any that might be causing them you can go to see your doc and ask if there are any alternatives that maybe would cause you less problems. Sorry I cant be more help, all my tremors and twitches have been put down to my FM :hugs: :hugs: :hugs: :flowers: :goodluck1:
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Re: MYOCLONIC SEIZURES

Postby Adele » Sat Jan 22, 2011 3:03 am

thanks for the advice. i'm ok now. i'm sick of being sick i think.

my neurologist wants to see me again soon for a follow up. i have just had an eeg and other tests.

wishing you all the best of health :blowkiss:
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Re: MYOCLONIC SEIZURES

Postby nutty1 » Sat Jan 22, 2011 9:56 am

:wave: i think denys has given good advice here .is there any family or friends near by that would sit or stay .and where denys says about her twitches etc being fm i get them through dystonia .it is very frightening and more upset you get your fibro will flare too .i,m lucky that my doc takes time explain what diff meds are and do .even nurses are helpful at our surgery :clap: and my neurologist .try phoning but please dont stop any meds without their support
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Re: MYOCLONIC SEIZURES

Postby Adele » Sat Jan 22, 2011 4:01 pm

i just want to clarify that i have a seizure disorder. i spoke to the out of hours gp last night who agrees it was a seizure.

i also twitch and have a tremor because of my fibro.

i am on a lot of medication because i have several illnesses and a spinal injury.

i am well versed in pain management techniques, meditation and relaxation.

i just needed some support as i was scared. adele
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Re: myoclonic seizures

Postby shazq » Sat Jan 22, 2011 6:06 pm

Hi Adele
If you are still feeling worried about being on all your meds i think you should have a chat with the pharmacist like Denys said, they are very helpful, if you take all your meds with you they will go through them with you, our chemist has a private room to discuss things. :hugs:
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Re: myoclonic seizures

Postby denys » Sat Jan 22, 2011 9:59 pm

Hi Adele, hope you are feeling OK today and a little less scared, I know from some of your other posts that you have a lot to put up with health wise and :fingerscrossed: your neurologist will sort out your seizures :hugs: :hugs: :hugs: :wave: :wave:

You can always rely on our support :hugs: :hugs:
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Re: myoclonic seizures

Postby budda » Sun Jan 23, 2011 3:08 am

We are all here to support you Adele :hugs:
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