Fibro and raynauds

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Fibro and raynauds

Postby iomjax » Fri Mar 18, 2011 1:42 pm

Is there anyone out there who is suffering from both fibro and raynauds. Raynauds came into my life only this year and its hell! This was the final straw to my diagnoses for fibro this is a secondry condition (raynauds). it does not matter if its hot or cold but the slightest temp change sends my fingers and toes into spasms and then its the attractive blue tinge. I am on my third set of antibiotics now for my toes as they are so infected. As soon as I am off the anti biotics they get infected again. Anyone experienced this how can it be managed without a barage of drugs. I am on drugs fo the raynauds but they are not doing a good job but doc is now getting to point of not knowing what to do next . HELP lol
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Re: Fibro and raynauds

Postby denys » Fri Mar 18, 2011 1:49 pm

Hi there is another post on here regarding this and I believe quite a few people have both. :hugs: :hugs: Sorry you seem to be suffering so much at the moment. Why are your toes infected, I didnt realise raynauds caused infection???? sending you some gentle :hugs: :hugs: :hugs: :hugs: :hugs: :fingerscrossed: your doc finds a solution soon :hugs: :hugs:
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Re: Fibro and raynauds

Postby iomjax » Fri Mar 18, 2011 1:52 pm

oh sorry did not realise there was another post will look :dunno:
My toes get infected due to the stagnant blood getting old and infected my raynauds is pretty severe.
thanks x
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Re: Fibro and raynauds

Postby denys » Fri Mar 18, 2011 1:55 pm

OOhhh right, it doesnt matter that there's another post I only mentioned it for info, its an older one so its quite alright for there to be another on the same subject as we have a number of new people here. We can always merge a post if 2 people post at similar times :hugs: :hugs: :hugs: :hugs: :hugs:
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Re: Fibro and raynauds

Postby shazq » Fri Mar 18, 2011 8:35 pm

Hi
Your raynauds does sound sereve :hugs: it does seem to be linked to fibro,I dont think i have heard of anyone who has had it as bad as you seem to, it sounds so painful, :fingerscrossed: this lot of anti bots work. :hugs:
my feet are always freezing cold but i have never been dx with it.

Hope someone else can give you some tips. :goodluck1:
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Re: Fibro and raynauds

Postby nutty1 » Sat Mar 19, 2011 1:47 pm

:wave: i was dx with raynauds before fm ,apparently they said it was carry on from having chilblains ,extremly painful ,but nothing like you say .must be awful .they told me wear cotton socks and cotton gloves .
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Re: Fibro and raynauds

Postby loubie » Sat Mar 19, 2011 11:00 pm

sounds very nasty :(
sending you a :hugs: :flowers:
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Re: Fibro and raynauds

Postby Ldyalb » Sun Mar 20, 2011 12:05 am

I'm borderline, my toe tips go very red, the underneath of the nails go a beautiful bluey purple tinge but my Rheumy said he can't diagnose me with it until my whole toe tip changes white or blue which has happened once, I took my socks off and had one toe white, the rest olive/red like normal. I suspect it's happened more, but usually when I get numb toes I'm outside and not in a position to whip my many layers of tights and socks off to check.

I do know in severe cases Raynaud's does cause infection, it can cause blistering and ulcers if I'm correct? has your GP sent you to a specialist? I think it would be a rheumy for Raynaud's. Have you asked him about massage? I find I can ease mine by massaging my feet to stimulate blood flow, however I appreciate I'm borderline. If your GP can't help push for a referral to a specialist, whether a foot doctor, rheumy or blood specialist, whoever deals with this type of thing - your GP shouldn't leave you to keep getting infected if he doesn't know what to suggest.

http://www.cedars-sinai.edu/Patients/He ... menon.aspx

The bottom suggests some ways you can help yourself during an attack, I hope that helps
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Re: Fibro and raynauds

Postby Ldyalb » Sun Mar 20, 2011 12:13 am

http://www.patient.co.uk/doctor/Raynaud ... omenon.htm

This is a Patient Plus article so it's written for Drs, they're always better than the patient ones;

"When to refer
Most patients can be managed in primary care.16 However, referral (usually to a rheumatologist) should be considered in the following circumstances:

The diagnosis is in doubt.
A cause for the Raynaud's phenomenon is suspected.
The cause is suspected to be associated with the person's occupation, (in which case, refer to occupational health services).
The patient is a child under the age of 12 years.
If the symptoms are poorly controlled, despite appropriate treatment.
Ulcers develop or cuts/sores do not heal in affected areas"

Ask to see a Rheumy if the meds aren't working.
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Re: Fibro and raynauds

Postby m2kl » Fri Mar 25, 2011 7:02 pm

I too have Raynauds but not to the severity of having infections.

I do however have problems at all temperature change and often loose all the colour in my fingers down to the knuckles.

I have been told to wear gloves always(even in the summer but dont think i will lol) and to wear many layers. My hands affect me worse than my feets but they are always freezing and rarely warm up.

I have seen heated gloves available, if you do a search some will be found and i will be getting myself some for next winter. They are expensive and bulky though but seem to heat on batteries so seem ideal. Not sure if heated socks exist, i will do a search in a sec. I find the microwavable wheat slippers a god send too to add heat to my toes.

Definately get a referal to Rhuemy and even occ health to see if there are things available to help with this.

:hugs: :hugs: :hugs:
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Re: Fibro and raynauds

Postby m2kl » Fri Mar 25, 2011 7:14 pm

Just found this fab site that does everything heated!!!

http://www.primrose-london.co.uk/heated ... -c-37.html

These from the site look fantastic!!! I will be getting myself some of these come winter!!

http://www.primrose-london.co.uk/warmaw ... th=37_1263

A pair of heated socks this time. I actually prefer the idea of the insole as these dont sound too easy to wash. Maybe good as bed socks though?!!

http://www.lazyboneuk.com/products/Batt ... Socks.html

I googled heated socks, heated gloves and heated clothing and LOADS of sites came up.

I think the heated socks/insoles would really help your circulation and blood flow and may help reduce the infection. However heat can make infection worse at times so double check with your doctor first xxx
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Re: Fibro and raynauds

Postby Ldyalb » Fri Mar 25, 2011 9:39 pm

Those gloves look awesome, am tingly just thinking about how cosy they must be :) Might invest next winter if I'm suffering again!
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Re: Fibro and raynauds

Postby m2kl » Sat Mar 26, 2011 12:21 am

I know they are def on my to get list as i am worried as my Raynauds is worsening rapidly. It will be nice to have warm fingers/toes as they are always so cold i cant feel them!!!
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Re: Fibro and raynauds

Postby MichelleJ » Sat Apr 02, 2011 4:10 pm

I was diagnosed with reynauds about 13 years ago. Hands and feet go deathly white when they get cold then are agony when they warm up again. Its nowhere as bad now as it was back then. I used to live in a house with no central heating, just storage heaters and we had no heating in the kitchen or bedrooms. It would hurt ot the point I couldn't move them. I was advised always to wear gloves in the cold and cotton socks. It eased off when I moved to a centrally heated house and while I still get it happening, its not so bad now.
Dx with fibromyalgia m.e/Cfs and asthma
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