Hypothyroidism

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Hypothyroidism

Postby mugglebornmico » Mon Mar 21, 2011 10:42 pm

Hi There

I have Hypo and it ended up taking 5 months to show up on my bloods even though I was telling the doc I felt rubbish. I got medicated with thyroxin and things got a little better.

3 months later I felt rubbish again, I thought I would just need more thyroxin but the doc said my levels were fine. After a year of pestering and repeated hospital appts I was diagnosed fm/cfs. I'm always in pain but I'm starting to feel a different kind of rubbish, kinda like I did when my thyroid malfunctioned.

The lines get blurred between the 2 conditions and I am just wondering of anyone has experienced this.

Mico (newbie) :)
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Re: Hypothyroidism

Postby loubie » Tue Mar 22, 2011 3:46 am

hi mico :wave:
welcome to our very own little fibro world :yikes:

i don't have thyroid problems but no they can be nasty
more or less like fibro :roll:

do you have regular blood tests for your thyroid, so that can be ruled out.
fibro is horrible and has so many different things attached to it that make you feel
rubbish, you could be in a flare with your fibro
hope you feel better soon. :hugs:
loubie xx

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Re: Hypothyroidism

Postby Adele » Tue Mar 22, 2011 4:43 am

hi mico. i have an underactive thyroid, fms and cfs as well. :wave: i think you're right
that early on the symptoms of a fm flare and a thyroid problem can seem similar.
have you tried speaking to a different gp about your concerns? also when was the last
time you got your levels checked? i get mine done annually and in between if i am having
symptoms.

it may be worth writing down the symptoms you're having to help your doctor diagnose
what is going on. there are plenty of things that can be making you feel rough such as
anaemia or vitamin D deficiency ( :dunno: just guesssing) or a change in medication. if you
haven't had fm/cfs long it may be that you are experiencing new symptoms. if your gp
isn't experienced in treating fm you might want to ask him to refer you to a pain
management clinic.

anyhow, welcome aboard the good ship fibro. :penguin: i've been aboard far too long and
my brain is mush from sleep deprivation tonight. :snore1: adele xx
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Re: Hypothyroidism

Postby shazq » Tue Mar 22, 2011 12:53 pm

Hi
thyroid problems do seem to be linked to fibro, i would get your gp to keep an eye on it, i have mine checked regally that way your gp will know what your average level should be.
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Hypothyroidism

Postby mugglebornmico » Tue Mar 22, 2011 1:33 pm

Thanks Guys

Unfortunately my doctors keep changing and I feel I have to start over everytime. I'm definitely pushing to get my bloods every 6 weeks but it's a bit of a fight.

I went to pain management but the doc there was one of those 'oh you must have been depressed to get fibro' when I argued I wasn't he gave me a tens machine and sent me on my way.

I've actually just been pretty much left to get on with it and feel a bit alone. I'm also getting sent to an occ health assessment with my work, even though I've returned, so I'm worried about that to.

I think the different approaches from different doctors makes it really hard to cope with fibro/fm.

Mx
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Re: Hypothyroidism

Postby loubie » Wed Mar 23, 2011 1:02 am

i agree with you on that one :roll:
it can be real upsetting and just gets you down every time you go :(
but keep going and see if you can see a different doc every time you go
until you find a good GP who has a brain and understands fibro
it makes a world of difference to how you feel :D

i wish you all the best and hope you find a good GP soon :hugs:
loubie xx

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Re: Hypothyroidism

Postby Milosmum21 » Tue Mar 29, 2011 12:42 pm

Hi all,
I too have hypothyroid & i know what you mean re:- thyroxine makes you feel better then you start to feel awful again I do think my Hypothyroid brought on my fibro for months i was sleeping 18 hrs a day it caused huge probs in the house as i all i did was sleep :snore1: :sleep: When i did have to go out i honestly felt like my body was made of lead i virtually had to drag myself along. So i had blood tests & Thyroid was diagnosed. Then about a year later Fibro was diagnosed then carpal tunnel . The problem i have is they get my thyroxine levels up they stay up for couple months then they drop so they increase thyroxine levels go up for couple months then drop................& so on & so on when it drops my fibro always seems worse? :dunno: I have just had thyroxine increased & latest blood tests show its not coming up to proper level so i guess it will increase again?

Hope you are feeling better
Sue x
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Hypothyroidism

Postby mugglebornmico » Wed Mar 30, 2011 12:36 pm

Hiya

It's like your talking about me. And it's hellish how little support we get.

I got an abcess in my gum to top my month off and I'm off to occ health for my work today.

I hope your getting the help you need.
Mx
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Re: Hypothyroidism

Postby missusc » Sun Apr 03, 2011 8:26 pm

hi

have had fm for 3yrs now have been diagnosed with hypothyroidism. my opthamologist consultant who was seeing me for my eye probs asked my gp to check thyroid and after 2 tests months apart it was confirmed underactive thyroid (hypo).

therefore it shows communication between different specialists is imperative and i am lucky the specialists and my gp are working well together for me.

my symptons for hypothyroidism are different to fm and was going to mention to gp this week about these other symptoms, but they have found it first. so the advice given on the forum about mentioning any new symptons to your gp is good advice.

gutted i have this, more meds and another condition to manage and haven't got to grips with fm :yikes: .

take care :wave:
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Hypothyroidism

Postby mugglebornmico » Mon Apr 04, 2011 7:15 pm

Hi

That's excellent that your specialists communicate with each other. I hope you manage with your meds ok.
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Re: Hypothyroidism

Postby Adele » Mon Apr 04, 2011 10:16 pm

out of interest, does anyone know why having hypothyroidism qualifies us for free prescriptions? there are so many chronic illnesses that don't qualify. i've always found it a bit odd :dunno:

:hugs: adele
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Hypothyroidism

Postby mugglebornmico » Mon Apr 04, 2011 11:35 pm

Hi

I couldn't say for any other conditions but I was told by docs that as it is life threatening (more so hyper than hypo) without medication and it's life long that I would get free prescriptions.

Mind you, I live in Scotland so it'll be free for everyone soon.

Mx
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Re: Hypothyroidism

Postby motherelephant » Fri Apr 15, 2011 9:49 pm

I have had Fibro for more years than i would like to remember and have had hypo for 6yrs .My levels also go up at regualr intervals .
A couple of years ago i was so ill i was refered to an Endocrinologist .He told me that although my TSH was at the upper end of normal it is still too high for me .I now have to keep my TSH at below 2.I was also told that weight has to be taken into consideration when deciding on the amount of thyroxine you have to take .We are all different if you are still feeling very unwell then ask your GP to refer you to a specialist .If they can get your hypo controlled then it's easier to deal with your fibro .
Something else i was told about ,which in my opinion my Gp should have told me ,you should take your thyroxine at least 30 mins before you drink or eat anything .there are also certain foods that can make it difficult for your body to absorb thyroxine eg ,iron tablets ,calcium tablets and soya and even licorice haha much to my annoyance as i love it .Please dont suffer .go see your Gp again :fingerscrossed and get refered to an Endocrinologist . Big cottonwool hug Motherelle x :fingerscrossed:
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Re: Hypothyroidism

Postby bestnan » Sat Apr 16, 2011 1:16 pm

Hi

I have had Hypothyroidism for 17 years as did my mum. It took devious means to get checked as my doctor would not do the test. I had to see the nurse about my asthma and when I told her that I felt so tired, she did the test. :clap: The Dr was staggered but I only hope the nurse didn't get in trouble. :yikes:

I read on the internet that a Dr in America (Dr John Lewis) has done tests around hypothyroidism and Fibromyalgia. His tests showed that the T3 was high in people with both Hypothyroidism and Fibro. In the UK we only check the TSH levels and my Dr declined my request to have the test done before the Rheumatologist finally diagnosed me.

Take care all

Sheila xx
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Re: Hypothyroidism

Postby motherelephant » Sat Apr 16, 2011 4:29 pm

It is only a few weeks ago that i asked my GP if I could have my T3 tested as well as my TSH as I was suffering from depression (due to the hypo ) he put it on my blood form but the hosp would not do it .They said it is only necessary if hypo is genetic .Motherelle .x
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