irritable bladder in fibro

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irritable bladder in fibro

Postby denise1127 » Wed Apr 13, 2011 9:58 pm

hi this is quite an embarrassing thing but ive heard fibro can cause irritable bladder ..........does anyone know the signs and symptoms or does anyone get this...........just when i go to the loo i sometimes find that after ive been that i still need to go and sometimes have accidents ............when i need to go i need to go ..............i have found myself drinking less but still going about 10 times a day at least..........anyone have any ideas.................i also have ibs .............god im so sick at the minute its just one thing after another ............and im in agony tonight ...........going to take my meds ............also i have been given pregabalin or lyrica capsuals ..........150mgs ..........anyone else tried them ..........going to ask about them being increased and see what happens................thanks for all your replies in advance cos i know this is a sensitive subject...................xx
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Re: irritable bladder in fibro

Postby shazq » Thu Apr 14, 2011 5:31 pm

There does seem to be a link between bladder problems and fibro sufferers as it affects the nerves and muscles.

I had a prolapsed bladder and bowel which needed operating on last year but i find i still have problems holding on to my bladder, if i need to go i have to go.

I tried doing pelvic floor exercises which the hospital told me to try along with meds as they said i had an over active bladder but they did not work either.

Its best to go see your gp about it but try doing the exercises to see if they help. :goodluck1:
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Re: irritable bladder in fibro

Postby loopyloo » Thu Apr 14, 2011 8:25 pm

hiya,

i was diagnosed with irritable bladder before i got diagnosed with fibro, some of the symptoms i had were the constant urge to urinate even though i didn't need to i did used to go more often aches and pains in my pelvic area and lower back very much like when you have a urinary tract infection but after pathology tests and an ultrasound they diagnosed irritable bladder there is medication they can give you to help but it's supposed to have some unpleasant side effects so iv'e never tried them, i just eat less acidic foods and drinks, i hope this is helpful for you :goodluck1: :hugs: :hugs:
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Re: irritable bladder in fibro

Postby pogster » Fri Apr 15, 2011 6:47 pm

there is a brilliant website (thebladderandbowelfoundation.org) which has some very useful info on these sorts of problems and has a helpline number too. I got a little credit card sized note from them which you pass to shopkeepers etc which states you have a medical condition and need the toilet quickly. Most places would then let you use their toilet and do it discretely.

I also have a RADAR key which lets you into disabled toilets locked by a key. I got mine from the local tourist info office for about two pound, but there is a website where you can buy them for around four pounds (www.radar.org.uk)

Hope this info helps someone.
Diagnosed with FM 22/3/11[/img]
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Re: irritable bladder in fibro

Postby thewireweaver » Sat Apr 23, 2011 10:48 pm

I have bladder and bowel issues. Bladder is worse, a lot of the time I feel like I've got a constant mild cystitis going on. Not nice :(
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Re: irritable bladder in fibro

Postby coral » Sun May 01, 2011 11:28 pm

Hi I too have bladder problems along with Fibro. Week last Tuesday I was admitted into hospital after a 4 hour ambulance wait as my GP thought I may have kidney stones. The pain was so bad and I couldn't get off the loo. Anyway after finally seeing a urologist I was told that they coudln't see any stones in my kidneys and the blood tests for liver and kidneys were fine. They seem to be pining my rib pain down to my gall bladder op I had in August 2009 and wondering if they've left gall stones behind. I'm waiting for tests to be carried out in a few weeks time (if they haven't lost my files) which includes endoscopy (2nd time), ultrasound and a possible MRCP.

Now I'm actually wondering if there is stones left behind because when all this pain started (admittedly after my op) I started to have a lot of pelvic pain and GP's assumed water infections and put me on antibiotics but most of the time after having my urine tested it kept coming back as blood in the urine and thats what I had 2 weeks ago too. So maybe it is all down to the Fibro.

I was speaking to a friend of mine the other day as I know she has Fibro too. She said that she ended up paying privately to see a Rheumy and he diagnosed Fibro. She was paralysed all down the one side and was convinced that she had a brain tumour so paid £1,000 for a private brain scan. Nothing showed up and apparently it was all down to Fibro.

So after speaking to her I'm going to have the tests done and if nothing shows up such as gall stones then I'm definitely going to pay private to see a Rheumy. It's so worrying all this pain in different parts of the body which feels like its some of the organs but with Fibro I guess it can be anywhere.
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Re: irritable bladder in fibro

Postby shazq » Mon May 02, 2011 6:41 pm

Hi coral
Cant you get your gp to refer you to see a rheumy on the NHS? thats alot of money to pay to see one private, once most rheumy`s have dx you with fibro then they discharge you into the care of your gp.Fibro will not show up in any blood test so if you have already been dx with fibro then its not worth going back to see the rheumy again.
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Re: irritable bladder in fibro

Postby denys » Mon May 02, 2011 9:39 pm

Hi Coral, I agree with Shaz, maybe you can put your money towards a nice holiday after your tests :hugs: :hugs: :hugs: :hugs:
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Re: irritable bladder in fibro

Postby clarkey » Sun May 15, 2011 7:15 pm

Hiyah ,
I would like to say that I have a lot of bladder problems but theyjust dont seem to sort it , I am still trotting to & fro hospital with it but was good to see its not just me , I also have leaks & one minute i can spend a penny a lot but other times I cant do a lot , i also get blood in my urine .
Is there anyone who gets the same ?

clarkey x
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Re: irritable bladder in fibro

Postby denys » Mon May 16, 2011 12:10 am

Hi Clarkey I suffer as you do but not the blood in the urine bit, maybe you need to push your doc for a referral :hugs: :hugs: :hugs:
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Re: irritable bladder in fibro

Postby Debs1967 » Mon May 23, 2011 7:43 pm

Hi
thought I'd add to this thread.
Since September of last year I have had intermitant Microscopic blood in my urine. i always get crippling pain in the kedney area when it happens. (I was diagnosed with Firbo and ME just over 2 years ago) I have had all the usual tests and they can find nothing wrong, no stones, nothing.
i've been told todaty that 20% of the population have this condition (blood in urine) with no known cause?

Kind Regards
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Re: irritable bladder in fibro

Postby Angel777 » Tue Aug 23, 2011 2:32 pm

Hi
Yes this has increased recently with me , I find its worse on standing , have found the only relief so far is a hot water bottle on the tummy seems to help the nerves and muscles of the bladder shaking so much and ease it ,makes me feel horrible and i do try and focus on something else but it is really difficult when there is the constant irritation , I find it makes my appetite lessen too .
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Re: irritable bladder in fibro

Postby karen42 » Wed Aug 24, 2011 12:43 pm

Hi
I also suffer with irratable bladder with fibro and i also have ibs.I take colofac for the ibs and vesicare for my bladder at the moment im seeing a gyneo nurse and im also doing pelvic floor exercise.As i have been told my pelvic floor is weak from child birth.Im only 5ft in Height and i have had quiet large babies at birth so that as added to my problems.But the gyneo nurse as told me the irratable bladder is down to me having fibro
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Re: irritable bladder in fibro

Postby karen42 » Wed Aug 24, 2011 1:32 pm

Sorry ive sent same post twice thats fibro for you it makes my memory bad :(
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Re: irritable bladder in fibro

Postby denys » Wed Aug 24, 2011 6:08 pm

Its OK Karen I've got rid of the first one as your second was a little more detailed :clap: :clap: :clap: :clap: love the fog :crazy: :crazy: :crazy:
Denys

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