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The UKFibromyalgia Forums • View topic - duloxetine!



duloxetine!

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

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duloxetine!

Postby bex26 » Wed Aug 22, 2012 6:41 am

Hi everyone. I was put on duloxetine a couple days ago. So started to take it yesterday morning. And it made me feel horrible. Was dizzy, felt sick, really sleepy. And spaced out. And to be honest i don't want to take another one! Does anyone know anything else that is similar to this but not so bad side affects? I could hardly move of the sofa yesterday feeling like that and i have a son to look after which if Im like that i can't do very well. Any ideas would be good. Thanks all xx
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Re: duloxetine!

Postby babajane32 » Wed Aug 22, 2012 7:08 am

You can get an anti-nausia tablet that might help and on a couple o my own meds i elt really bad for the first couple of days,but it did pass so might be worth percivering with or talking to your doc about it...sorry don't have any info about alternatives though.
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Re: duloxetine!

Postby silentlybroken » Wed Aug 22, 2012 8:34 am

Hi :)

I was put on duloxetine a week ago.

The first day I took it I was exactly the same as you. It's taken a week for me to get used to it. This was a week of extreme nausea, loss of appetite and inability to eat (well hey, at least I lost some weight).

What I can say is it does ease up a bit. I decided to keep going for a week to see if I got used to it a bit, and I did :) I'd recommend doing the same as I did if you can stick it out. If not, go back to your GP and say it's not for you :)
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Re: duloxetine!

Postby bex26 » Wed Aug 22, 2012 11:44 am

Thanks for your reply. I can't cope with feeling like that. Its worse than i feel day to day and i don't want that. Plus i have my son to look after. And the way that made me feel i can't look after him. Which is horrible because he needs me. I don't mind if i have somethin to take which makes me feel a bit sick or somethin but the whole dizzy feeling and tiredness i can't do. I could barely move of the sofa all day till bout 5pm. And just wanted to go to bed all day but that would have messed my sleep routine up at night which is already crap :-(. Plus i didn't eat all day cause of how i felt and i can't afford to lose weight. I've lost a bit due to having chest infection last 3weeks and now down to 7 and half stone! I have only just got my appetite back don't want to lose it again. Sorry for the moan but don't want to feel like this taking medication. And don't want it to make me feel worse than i already do. Xx
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Re: duloxetine!

Postby silentlybroken » Wed Aug 22, 2012 12:21 pm

I was only really dizzy and lethargic for the first couple of days. After that the only lingering feeling was the bad nausea and lack of appetite. I'm still not sure if I'm 100% on the appetite front but the nausea has mostly gone unless I travel / smell food I can't cope with.

I can understand your worries - I'm not supposed to lose too much weight for a whole host of reasons but it does even out quite quickly. I was close to coming straight off it but was convinced to stick it out a little longer!

I have noticed I sleep longer at night now as well, but I can still do stuff during the day. I went to a conference on the Sunday and only had the typical fibro issues, the duloxetine wasn't a problem.

The other thing you can do is lessen the dosage if you are struggling. I was whacked straight on the 60mg, but there is a 30mg option which might be less problematic :)
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Re: duloxetine!

Postby denys » Wed Aug 22, 2012 1:44 pm

I think Sarah's advice really good, if you are still feeling really rough talk to your GP
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Re: duloxetine!

Postby LauraInWonderland14 » Wed Aug 22, 2012 1:46 pm

PLEASE, PLEASE PLEASE READ:


Be super careful when both using duloxitine and withdrawal.

The withdrawal is awful, trust me or Google it. Just be super careful.

Withdrawal is so bad that many people I talk too have ended up opening the casing and removing one Tiny bead each week!!!
The withdrawal includes "Brain shocks"(were it feels like your brains ripping apart) ,Nausea,Constant Vomiting, Diahreor,Migrane,Panic Attacks,AL (bum leaking) and loads more.

I am not trying to scare u, I had to endure a MONTH of this Withdrawal, and I do not want ANYONE else to have to go through the same as me.

Good luck & much love xxx
Your fighting this horrible illness,this awful system.
You've helped me so much & we've never even met.
Thank you & Stay strong.

Laura x
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Re: duloxetine!

Postby bex26 » Wed Aug 22, 2012 2:52 pm

I have only been put on 30mg for now. But feeling that crap just after that.. I think i am quite sensitive to meds now a days. Im worried to take them anymore cause really don't want to feel like that. Hopefully my doctor is going to ring me tomorrow so will see what he says. But i don't think he really knows a Lot about fm. I went to him as i needed app asap For anxiety and depression and his was the closest one i could get. I don't know what to do to be honest. Thanks for all your replies xx
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Re: duloxetine!

Postby LauraInWonderland14 » Wed Aug 22, 2012 4:09 pm

See bex, YOU can do it anyway you want, Don't let anyone dissuade you. If your Gp is s*** find a new one. I had loads of crap from Drs and specialists but when I found the right one EVERYTHING got better. Now I've come off half of all my meds, and even been able to start exercising again(it took 3 years til I finally found the strength I needed) but I'm doing it so can you xxx
Your fighting this horrible illness,this awful system.
You've helped me so much & we've never even met.
Thank you & Stay strong.

Laura x
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Re: duloxetine!

Postby denys » Wed Aug 22, 2012 5:24 pm

It is your body and your decision, most of us have trouble with chemical sensitivities and if this med isnt suiting at the lower level then it makes sense to stop before you get to far in and have to suffer the withdrawal effects.

I agree change docs if you arent happy with the one you saw find one that believes in FM and try to see them all the time :fingerscrossed: :goodluck1:
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Re: duloxetine!

Postby shazq » Wed Aug 22, 2012 7:22 pm

Hi Bex
I was the same when i first started Duloxetine, i found taking them at night was better as you sleep through the side affects.

The side affects only last a short time so bare with it if you can. Fibros are known to be sensitive to medications so you will find that you will get the side affects before you get the affect of the drug.

They can take up to 4 weeks to fully kick into your system.

Most meds have withdrawal affects but everyone can react differently so dont let ones persons story put you off trying a medication because this could be the medication that could work for you.
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