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The UKFibromyalgia Forums • View topic - My pain falls on deaf ears!!



My pain falls on deaf ears!!

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

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My pain falls on deaf ears!!

Postby Gizmo01 » Tue Oct 09, 2012 1:06 pm

Hi i was told i had FM 4 months ago but i have been suffering for a couple of years, for the past 2 months i have had chronic pain in my neck, shoulders,back & random other places and some days i can hardly move with the pain even though i have 3 children to look after. I have been to my docs alot since this flare up started and at first he put me on one 10mg Amitripyline at night and it didnt help so went back to him then he put me on one 100mg of Gabapentin at night again made little difference so no sleep and lots of pain! All they seem to keep saying to me is that the best thing i can do to help my pain is exercise! Yeah right when im in agony and exercise causes much more pain than i had before, What a joke they would not leave a bloody dog in pain but quite happy for me to be :( It is really getting me down now, i dont know about anyone else on here but for me having FM makes me feel that i am so alone and that no-one understands. Thanks for listening x
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Re: My pain falls on deaf ears!!

Postby stageside » Tue Oct 09, 2012 1:20 pm

Hi Gizmo you're not alone i think we all feel like this I suffered from being young with aches and pains that no doctor seemed able to put a diagnosis to until last yr I still have trouble getting people to understand
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Re: My pain falls on deaf ears!!

Postby jackie 35 » Tue Oct 09, 2012 1:33 pm

hi gizmo i found out i had fm in august i was just on tramado then they put me on amitriyline has well having both tablets helps but it dont take all the pain away and i was told not to exercise by a pain manegment consaltent at frenchay hospital and they are the only ones that will help me my doctor just did not want to know
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Re: My pain falls on deaf ears!!

Postby Gizmo01 » Tue Oct 09, 2012 3:37 pm

Has anyone else on here been told to exercise to help with pain relief?
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Re: My pain falls on deaf ears!!

Postby dobby » Tue Oct 09, 2012 5:19 pm

everyone who has fybo i think has been told to exercise,but how can u when u are in so much pain.
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Re: My pain falls on deaf ears!!

Postby Poseypig » Tue Oct 09, 2012 6:23 pm

I have lived with fibro for the last 13 years. I have been told lots of times that exercise will help. I even had a medical referral for a gym. Desperate for any relief I do try to do as much as I can but mainly because sitting or lying in one position for too long just increases my pain levels. I think with exercise you have to be sensible and know your limits. Exercise doesn't need to be going for a run or joining a gym. A slow walk down the street is better than nothing. I know it's hard when you hurt so much. In the last 13 years I can honestly say I haven't had a single pain free moment. My fibro doesn't ever reduce only increase but the bit of exercise I can manage makes a positive difference. It's finding what's right for you which may take you some time.
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Re: My pain falls on deaf ears!!

Postby mabel » Tue Oct 09, 2012 8:59 pm

i've has fibro for 7 years... no real support from GP, struggle with pain never really had any gd medication. im still under the impression that cos we look ok, there is still an element of belief that this is a psycological condition. they keep telling me to exercise and i just cant. it feels like ive run a marathan for about 3 wks after... a gentle walk is ok if your back and hips dont start hurting alot shortly after you set off.Basically i am at my wits end with this condition. you are so out there on your own with it.
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Re: My pain falls on deaf ears!!

Postby FluppyPuffy » Tue Oct 09, 2012 9:36 pm

Sorry to hear how this are for you at the moment Gizmo. Did your GP say anything about how long the amis and gabas could take to fully get in your system, or were you just left to think that they would probably start helping immediately?? Only reason for asking is that both of the meds need time to get into your system and build up to make a difference.

The amitriptyline can take about a month to get in and start having an effect, and sometimes the starting dosage isn't high enough to make a difference for some people, so an increase is needed to help them.

With the Gabapentin, it can be anywhere from 1 to 3~4 months before you can tell if it's helping. This is due to it's dosage needing to be steadily increased over a period of time until you reach a suitable level. Taking just one a night is very unlikely to make much of a difference, esp if you haven't been on them for very long.

It's also possible to take the amis and gabas together, which is something quite a lot of us do. I think you should consider going back and discussing things, possibly with a different GP who may be of more help to you.


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Re: My pain falls on deaf ears!!

Postby Gizmo01 » Wed Oct 10, 2012 9:33 am

Hi fluppypuffy i was on amitrityline for about 2 weeks then i went back to him and said that i was still in so much pain even though i was on normal pain killers during the day too and he took me straight of them and put me on gab and i was on them for a couple off weeks, i then went to see my specialist who said that she would recommend that my doc give me tramadol as the gab was not working but need to exercise more! I am an active young women who doesnt stop from the moment i get up to the time i go to bed. Doc did not mention that it takes weeks to start working what a joke and why didnt he just up the dose? I think its time i went back to docs and kicked off as its getting me nowhere just trusting what they say. x
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Re: My pain falls on deaf ears!!

Postby sknowles456 » Wed Oct 10, 2012 4:18 pm

i think you should ask your gp to refer you to a pain clinic and let them deal with your pain. Suzy x
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Re: My pain falls on deaf ears!!

Postby FluppyPuffy » Wed Oct 10, 2012 4:40 pm

Suzy's suggestion about a referral to a pain clinic might be something to see about Gizmo, and sometimes using a different approach when you see your GP can really help. Tramadol can be effective for some of us, but like all things FM related, what helps one may not be as effective, so it can take a bit of time, trial and error to find the right cocktail for each of us.

I can't believe that you weren't told about how long it can take for the meds you were given to take effect, it's one of the things that usually follows after a med has been suggested by a GP :facepalm: :facepalm: :facepalm: If you'd have been given the right info from the start and had an idea of how you might feel while things were building up and as you get used to the meds, you may have found things a bit easier to manage.

There is loads of info about meds on here, from linkys about them to our various experiences from taking them. It's not unusual for someone to take some info about meds and/or treatments with them when they have an appt, so rather than waiting to see what may be suggested as the next thing to try, they can take more of a lead with their appt ask if something might be suitable for them to try. Maybe something to consider for a future appt :mrgreen: :mrgreen: :mrgreen: Either that, or try a different GP to see if they are any more helpful :shock: :shock: :shock:


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