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The UKFibromyalgia Forums • View topic - Duloxetine



Duloxetine

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

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Duloxetine

Postby kikidee » Mon Oct 29, 2012 7:38 pm

Hey guys

I'll try keep this short but I have a tendancy to waffle. I think this topic best fits my question but ill give a quick background. After 5 years of symptoms and seeing various specialists at the hospital, I finally saw a rheumatologist last October (2011). She was 90% certain I had fibro but my vitamin D levels were quite low and apparently that can cause similar issues. So, she took me off the Amitriptyline I was on that day (just a clean stop) and told me to take vitamin D suppliments for 6 months. I already had bad pains but after only a week I was in agony but was told to keep going. A long, painful, depressing 6 months past, blood tests done which were more than ok for my vit D levels. I only found this out from my G.P in June as the hospital cancelled my rheumatology appt twice so I'm still waiting to see her, this will eventually be in Feb 2013. So, via a nice letter which had been demended by my G.P, I was finally told I had Fibro and have been prescribed Duloxetine. The first 2 months I was on 60mg which didn't work at all, so since then I've been on 90mg. The main reason I've been put on this is because in the previous years I've tried everything else mentioned in the other topics mentioned, (tegratol, gabapentine, amitriptyline, pregabalin)

I've been told that I can't really have a higher dose on these tablets, but this is mainly because my G.P can only go on the advice given by the rheumatologist in her letter, or rather scrawled note, that she sent him in summer. This last month I've noticed my pains are coming back more, my left ear has had constant white noise/humming in it causing difficulty hearing, I'm completely shattered, my joints and tendons are stiff and tight, the fibro fog is a lot worse, my eyes keep rolling as if i'll faint and my mood's pretty much a level nothing. I've no interest or enthusiasm for anything. From reading other posts I know I'm still very lucky compared to other sufferers. I can still get around and go to the gym (or make the best effort to) and can hold down a 59hr a week job for the police (shift work of 6 days in a row then 4 days off which probably doesn't help). Maybe I'm just moaning about nothing and should be thankful i can still work, I really do feel for you guys who are worse off. I'm just wondering if anyone else has been put on Duloxetine and know how well its meant to work. I get the impression from my G.P that these tablets are my last option. The hospital are no help at trying to get me seen sooner. It'll be 16months since I first saw the rheumatologist to when I eventually get to see her again. I'm still waiting to be referred to the pain management clinic etc so I'm just feeling a bit lost and unsupported, hurrumph.

Thanks in advance for any help or advice
Kirst xx
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Re: Duloxetine

Postby sknowles456 » Mon Oct 29, 2012 8:13 pm

sounds like you need proper pain releif and the pain clinic sounds a good way forward. Duloxetine is primarily an antidepressant but is known to help with fm. my only worry for you is if you are on strong pain meds would you be able to do your police job?
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Re: Duloxetine

Postby kikidee » Mon Oct 29, 2012 8:38 pm

Yeah, I thought it was a bit odd I'd been put on it but the rheumatologist reckoned it was the new wonder drug and docs in America are prescribing it. I don't like the thought of being on such a high dose of antidepressants, which I've always said to the docs, but I just get told I'm not on them for depression so don't worry. The only other thing I've been told is to take anti-inflammatories like nurofen when I feel the pain (which makes me think they didn't quite understand). I've done that in the past tho and become slightly immune to the effects so am a bit worried of going down that route again. My job is basically admin and at the moment I've got a nice understanding supervisor and chief insp, tho I still feel they get frustrated when I have my blank foggy days. I feel yet another trip to the doctor will be needed

Xx
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Re: Duloxetine

Postby gimpyphil » Tue Oct 30, 2012 9:45 am

They have been trying to get my pain under control for years.I take 300mg of Tramadol daily and wear a patch of buprenorphine 20 micrograms per hour,tried getting a higher dose but it made me very sleepy.Also 20mg citalopram.
Night time I take zopiclone 3.75mg to sleep,Amitriptyline 125mg,Tramadol 200mg slow release and I still get pain.I have been to pain clinic and they more or less said they did not belive me that what I take does not take the pain away completely,I told them it does not.My doctor has no idea what I can take long term that is different from what I have now.
I have a injection in my knee every couple of months to stop the pain and that does work,but only short term but better than nothing.
Good luck getting help,but if it does not work that great don't beat yourself up over it.

Phil.
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Re: Duloxetine

Postby shazq » Tue Oct 30, 2012 4:32 pm

Hi
I am on Duloxetine as well, they are an antidepressant so it no wonder you are in pain. :hugs:

You need to go back to see your gp to get some pain meds. here is a link for some meds used to treat fibro-

http://www.nhs.uk/Conditions/Fibromyalg ... tment.aspx

The change in weather affects us more, the cold & damp gets to the joints causing more aches & stiffness, wheat bags & hot water bottles help.

If your gp is not to keen in giving you pain meds try to see another gp as having an understanding gp makes a big difference with fibro. :goodluck1:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: Duloxetine

Postby kikidee » Wed Oct 31, 2012 12:39 am

Hi,

Thanks for your advice :-) .I think I will head back to the G.P, I moved surgeries just over a year ago and he's been the one pushing for me to see specialists so has really helped so far. However as they've tried me on most of the other tablets before I got diagnosed, he's now left with taking the advice of the rheumatologist who was the one to suggest Duloxetine. She said that because it increases the seretonin and noradrenaline levels it would help both the pains and my mood, which it seemed to do for the first 2 months I was on the 90mg dose, but now I seem to be going backwards again

Why does this condition have to be so damn confusing? It really is getting me down and I'm trying so so hard not to let it win, but some days I just feel like giving up. Hopefully my gp can fight my corner a bit more to get me seen by by the hospital again before Feb

xx
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Re: Duloxetine

Postby kikidee » Wed Oct 31, 2012 1:04 am

Crikey Phil, sounds like you've got it quite bad (sorry, I'm new to forums so only noticed your reply too). Its awful when doctors don't believe you. Just because they think it should work doesn't mean they should dismiss you when it doesn't. Everyone's different, so a combination of tablets that works on one person won't necessarily work on another. Are you still going to the pain clinic? I'm yet to be referred but hoping they can offer me some more advice when I get there.
I do keep thinking I'm in a better condition at the moment compared to others who've written on here (like yourself), so keep telling myself to 'man-up' and count myself lucky and just as i'm getting myself better something will crop up and it feels like my world has tumbled backwards.

I remember thinking all these pains and things were just normal and everyone got them, so just put up with them until a few sharp pains kicked off when I happened to be at the doctors. He was the first one to say they weren't normal
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Re: Duloxetine

Postby sparky630 » Wed Oct 31, 2012 1:59 am

Hi Kikidee
I am really lucky as I get seen at Liverpool neuro centre so they are really understanding about nerve pain and fibro. I injured my back working

On front line emergency duty. I was ill health retired 5 yrs ago at the age of 39. Not only was I left devastated that Id lost the career Id worked so hard to get but I

Was left with lots of damage below my waist. As if that wasn't enuf 2 yrs later I woke up and couldn't move, I had fm. No career, loss of identity

and couldn't look after my children on my own. My hubby worked frontline duties for the emergency services and one day he went to work

and said " I can't do this, I have a wife and children who need me" he has been my life saver.

I was referred to Liverpool and it was only then that I felt like they knew what they were doing. My GP is gd but she will admit that they are

The specialists.

I am on gabap 1300
Venlaflaxine for pain and depression cant remember dose.
Amytript 50 mg
Dulox 60 mg for bladder prob and pain
Mst 180mg spread thru the day
Oromorph wen required
Diazepam wen required

Think Ive remembered them all.

Then just over a yr ago I was diagnosed with type 2 diabetes.

I am telling u all this not to moan in any way but just then u understand they are treating the damage from my back too.

I agree with above that u need to go to a pain clinic. I did go to Preston 1st but they didn't. Instill me with confidence.

Even though I take all this rubbish I am still in pain. Today I have taken enuf oromorph to sink a ship and I have taken 15mg of Diazepam

which scares me to death. I am still in a lot of pain. I think I need a vet lol. I never used to take a paracetamol. I hate taking all these drugs.

My other thought is that u do quite a lot with the gym and ur shifts. Is there anyway you cud cut back on any of it?

Are u afraid to cut back in case u feel its giving in? I take my hat off to u. I used to be quite a sturdy bird :-) as I had to carry kit, now Im as weak as a : :cat2:

I cant even lift a kettle some days. Im just really worried that you are pushing yourself too hard as I did that and my body finally said enuf.

Please take care and I really hope u get the help u need. With pain like ours we need a few types of pain relief as they all do a diff job.

Sending you gentle :hugs:
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Re: Duloxetine

Postby kikidee » Tue Nov 06, 2012 9:59 pm

Hey Sparky

Sounds like you've had quite a tough 5 years or so. Its good that you've got some good specialists at Liverpool who know what they're doing and can help you as best they can. Is your back still injured? It's such a shame that this has all lead to you having to take medical retirement, and at such a young age. I don't think some people realise how debilitating FM is, because as we all know on here, its not something you can see. At least you have the support of your husband, kids and I'm hoping close friends.

I'm still waiting for the pain clinic to happen, and hopefully bring my Rheumatologist appt forward a bit. My G.P has never suggested taking a mixture of different tablets (other than ibuprofen / paracetamol to help with the pain), but I think I'll go ask if its something he'd be able to do, although I'm guessing he may need the specialists 'ok' with it all.

I think i'm trying not to let FM win. I used to be so fit and healthy and was on a x-country team, happily running 8 miles or so a time. Now I can barely run for a few minutes without my legs being in so much pain and feeling like they're gonna drop off. I probably manage the gym once or twice a week if that because of my shifts, I do a well paced hill walk on the treadmill for 30mins or so, then maybe the bike for 10, so compared to before i'm not exerting myself too much, but I guess I do feel quite ashamed I can't do more. I'm in a bit of catch 22, because my physio told me I have the hamstrings of a middle-aged unfit man (i'm a 27yr old female) and that i'm to keep up with the gym and do stretches etc.. i'm just so damn tired all the time :sleep: and then my muscles lock up more. hmm.

Thanks for the hugs, i think they've helped a little. Hope you're feeling better too :hugs: xx
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Re: Duloxetine

Postby mel38 » Fri Nov 30, 2012 11:49 am

Hi Guys,

In relation to the Duloxetine, I was started on it about 3 months ago, after many trials with other meds Gab, Pregab, Amt ect. I was started on low dose and now taking 120mg per day, this has defo enhanced my mood and I reckon that helps with coping with the daily pains, but in reality the pain has not subsided, I am just more acceptable to it, I also take Tramadol and Co-codamol. As we all know explaining how we feel and how our medications work is a task of its own, but I hope this makes a bit of sense and helps a little.

Hope everyone has a good Fibro day :-)

Melanie x
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Re: Duloxetine

Postby Iceskatemum » Fri Nov 30, 2012 3:41 pm

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