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The UKFibromyalgia Forums • View topic - Pregablin



Pregablin

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

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Pregablin

Postby Ribbonsrabbit » Wed Feb 20, 2013 4:12 am

I was prescribed pregablin a week ago and with every dose.... theres no delicate way of saying this so here goes...
Every time I took a pill I seemed to go psychotic.... I felt like a big boiling pot and when someone asked me a question I was very rude to them and quite aggressive. I am very sure that the pills had the effect on me and it does say something about it in side effects but have any of you guys had this with this drug and does it ameliorate over time?
Actually, I think I need to not take these pills because I dont think feeling utterly miserable is gonna help my pain one bit and because I also have severe ADHD ....giving someone with no brakes in their head a pill that makes them psychotic is probably not a good idea.
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Re: Pregablin

Postby Iceskatemum » Wed Feb 20, 2013 8:36 am

I too have had wierd & wonderful side effects with this drug but given the actual effects on neuropathic pain I went with the idea even a little of the drug was better than none. By trial & error I worked out my own max dosage with which it seemed my body could cope & which the GP was happy to go along with.

Have just been advised to up my Pregabalin by a Consultant at the pain clinic . I know I have tried the level that I am now prescribed before a few years ago and seem to remember bad dreams etc but as this was fairly close to when I was first prescribed the drug I am hoping that as I have been on a maintanence level for the last year that the slight increase will not have the same side effects.
Will let you know how I get on but agree it and other meds prescibed for FM can be a very scary meds either on thier own or together.

Just as an aside recently read in a paper that if you have multiple percriptions that some of the medical profession would suggest a review of your meds on an annual basis just to make sure that they don't interact with each other or any over the counter stuff we may be self medicating on. It appears once prescribed a drug many with a chronic condition don't tend to discuss them with the GP on a regular enough basis .
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Re: Pregablin

Postby FluppyPuffy » Wed Feb 20, 2013 10:50 am

I'd go back and see the person who prescribed the pregabalin and explain how they are making you feel and act. Such behaviours tend to be one of the rarer side effects of meds, but could happen to any of us.

I have a meds review every 6 months and tbh thought that was the norm for everyone :-? :-? :-?

Altho you've only been on them for a week, just stopping them isn't a good idea. If you can't get to see your GP about this, ring and see if you could have a phone consultation and see what they have to say about what you're experiencing.


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Re: Pregablin

Postby lisaward127 » Wed Feb 20, 2013 10:50 am

Hello, I've been on the tablet for about six weeks and also had major side-effects to the tablets,really bad mood swings and nausea so I decided to come off the tablet with my GP, the tablets also causes weight gain and hair loss, I found that this was the case with me. People with Fibro are so sensitive to medication and I for one get them all, I hate trying new medication but pain drives me to them every time.
Good luck and hope you find a medication that works for you.

Lisa xxx
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Re: Pregablin

Postby tonydin » Wed Feb 20, 2013 8:39 pm

i just go high as a kite for a while :lol: :lol: :lol: :lol: :lol: :lol: :lol: had memory probs attrriated to them though
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Re: Pregablin

Postby Ribbonsrabbit » Thu Feb 21, 2013 3:41 am

So I can look forward to being a bald serial killer with no memory of my crimes lol.....
The point of stopping the meds without consulting the doctor... I think most times this advice would stand well but I have not taken them consistently and regularly for even a week and so I am less concerned about 'suddenly' stopping the drug than the fact that when I do take them and someone winds me up I want to punch their lights out. I tried double the dose and felt slightly sick but much calmer. Double the dose is actually the daily dose in a single dose, rather than split into two seperate doses and that seems to suit me better.
Now then, please do not go and attack me for my honesty and I most definately do not advocate anybody follow my lead there. What I would say by way of explanation is that historically my body has always responded in an unusual way to medication.
Generally I require the highest dose of most medication for a minimal effect and then rarely I am hypersensitive to some medications and my reactions are equally unusual and extreme.
I am in the middle of a fairly acute crisis with my back and an apparent spinal injury so I am consulting the world and his wife for help and intend on contacting the rheumatologist tomorrow and will most certainly let her know that the 75mg dose bd seems to leave me wanting to knock some sense into the t :swear1: ts I encountered on monday at hospital.
I have said a flat no to immuno-suppressants and steroids and theres not much more drug wise I can be offered so I am kinda hoping that she will approve the once daily 150mg dose.
If not then I will have to stop the drug because I dont have brakes in my head as it is... the last thing I need is a dose of psychosis.
Thanks for all the replies, they are much appreciated.
Last edited by FluppyPuffy on Wed Mar 06, 2013 1:34 pm, edited 1 time in total.
Reason: Removal of expletive.
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Re: Pregablin

Postby Ribbonsrabbit » Thu Feb 21, 2013 4:01 am

I have regular health reviews because I am on a controlled drug. I had bloods done on monday and also in december and all is normal. Pulse and blood pressure fine and I communicate well and am very honest with all the medical professionals I come into contact with. My medical history evidences my bodies abnormal responses to the expected drug doses as dictated by the BNF and I am fairly self aware and if I feel that a drug is having an effect on me that might be detrimental I am quick to let the docs know and also to make sure its recorded etc.
I just wasnt sure if I was going doolally with pain but I think I took enough doses to see that there was a direct link and just wondered if others had experienced similar because its a heck of a lot easier to go back to a doctor and say you want to stop this drug and try something else if its a known side effect rather than just me not being a 'people person'.xx
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Re: Pregablin

Postby Ribbonsrabbit » Wed Feb 27, 2013 11:47 am

Thanks again for all the replies with great advice and such refreshing honesty.
I did contact my rheumatologist and ended up speaking to her secretary because the doctor is out of the country.
I got sent an appointment for may... I have to have a scan done on my hands because I have arthritis and they have ruled our rheumatoid arthritis and now they are just scanning to see if its osteo arthritis or psoriatic arthritis because I have been blessed since the age of 2 with severe/acute psoriasis.
Anyways, I will try to just speak to the doctor on the phone before the may appointment and tell her the single twice daily dose makes me bonkers and the double dose might well make me calmer but I feel sick and I wonder if its making me totally wiped out and making my eyes to tired to focus sharply.
Gosh I hope I am making sense. I am sure I have made many spelling errors but I can feel a big sleep coming to steal me aay for another day and I am struggling to stay awake and I hate my useless body so much it make me want to cry and that make me angry at myself for my stupid weakness.....
I dont think these pills are right but how can I tell with so much pain from my injury... I can tell because this mental suffering is wrong... Im not taking them any more...
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Re: Pregablin

Postby Iceskatemum » Wed Feb 27, 2013 3:01 pm

As I said before the drugs we have to put in our system are horrid but if they offer a respite from the pain and fatigue I know I jump at the chance & to **** with the consequences.

May is such a long way away I think you have to talk to someone before then, so giving the GP a ring in the meantime might be an option, rather than wait until the consultant get back from abroad.

They may advise you to come off the dose previously recommended by the consultant or they may suggest another regime . Not sure how you been taking these tablets. With me, initially the consultant suggested I go straight in with 100 mg morning & evening.

Didn't work for me - too many side effects and if honest that time is a blob on my memory! talked with GP .....was prescribed 25mg tablets and very slowly increased the dose until I could take 75mg morning & evening. Was then told a total of 300mg a day is the usual theraputic dose but couldn't get to that level due to the bad side effects . as said before felt it better to have a low dose that seemed to help with the nerve pain than nothing due to severe reaction to higher doasage.

May be you need to titrate the dosages more slowly into your system , stopping for a few days before increasing the amount taken.

Good luck with what ever you do and hope you get prescribed something that helps very soon.
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Re: Pregablin

Postby Ribbonsrabbit » Sun Mar 03, 2013 8:13 pm

Ok well so much makes sense.... the inability to stay awake and foggy head, not thinking clearly... but mostly the complete inability to remain awake.... the pregablin was stopped by my gp on friday and gabepentin was started but then by friday night I was being carted off in an ambulance to hospital with the worst case scenario of back problems... not that they diagnosed me that I can remember because I actually lost a day with drugs and sleep but I got a trapped nerve and sciatica and now my right leg to the knee is f******* and the spasms had me screaming like I was whelping a litter of elephants... amazed the neighbours didnt call the police because I must have sounded like I was being murdered.... these muscle spams.... I didnt know they were fm related til very recently but also now I have a disc and muscle injury I am so much more likely to get spasms related to both fm and muscle memory.... I am getting no help and whats the deal with doctors discussing my case openly on a ward where all can hear?
I am so exhausted with pain and everything else I feel to weak to fight my own fight but also with my professional background I am so very very aware of how wrong and unprofessional it is to talk about patients infront of an entire blasted ward... it has happened every single time and its illegal. Whats to do, oh whats to do.
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Re: Pregablin

Postby hooplykim » Wed Mar 06, 2013 1:04 pm

I too tried these and they did not agree with me at all, for one they did little for the pain, but it was the other side effects they caused that made me decide to come off them, like someone else said in their post, they made me gain a lot of weight and i started losing a lot of hair, i am low on iron anyway so these did not help, the mood swings they gave me were horrible, we can be a little grouchy at times when our poor bones and muscles hurt but on these i was literally like a bear with a sore head! needless to say i was not on them long, it is so tricky when one tablet will work for one but not the other it really is trial and error and i am still very much on the trial side of the fence, i am just about to start nortryptiline so it would be great to hear what others have thought of this if they have been prescribed it?
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Re: Pregablin

Postby thescream » Thu Mar 07, 2013 10:27 am

hi I am new to the group. I have had fibromyalgia for about 15 years i have been taking tramadol for my pain and 125mg of amitriptyline but I am now have a bad flare up I'm in a lot of pain and struggling to walk and not sleeping and suffering with muscle spasms in my legs and arms. I went and seen my GP and she give me sleeping tablets and acupan. I didnt take the sleeping tablets but start the acupan but I was in constant pain so stop them. I waited 4 weeks to see a different docter who has now put me on steroids,i start take 8 tablets yesterday but was in pain all night.I did ask if i could try gabapentim or pregabalin but he wouldn't give me them.Can GPs prescribe these meds or do you need to see a specialist. I am now having to find a good docters surgery that is up on fibromyalgia but how would I find one could i ask all the docters if they treat fibromyalgia . thanks
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Re: Pregablin

Postby hooplykim » Thu Mar 07, 2013 10:57 am

Hi thescream. It was my GP who prescribed them to me. It's amazing how all the doctors opinions vary in meds
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Re: Pregablin

Postby thescream » Thu Mar 07, 2013 12:28 pm

thanks for your reply hooplykim. It's seems so hard to find a good GP for us with fibromyalgia. In the 15 years since i got diagnosed with fibromyalgia i have only seen a rheumatologist twice.I am in derby so if anybody lives in derby and can recomend a GP surgery i would be very grateful. It's bad enough cope with fibromyalgia and then see docters that just don't take you and all your symptoms seriously and won't prescribe medication for you to try and help you is so depressing and i seem to be bang my head against a wall and not getting anywhere and just feel to tired now and just accept i have a crap GP.
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Re: Pregablin

Postby hooplykim » Thu Mar 07, 2013 12:42 pm

Hopefully you will find a good GP, I've had a few bad ones but the one I'm with just now is fantastic, she takes time to help and it means a lot cos we all feel so pathetic half the time with our pain and when the doctors that are supposed to help us make us feel worse its horrible.
15 years is such a long time to have had this condition without the proper support so big respect to you there! I was diagnosed last year and as I say I did have a few bad NHS experiencing leading up to finally being diagnosed, but after reading what some have gone through I know I'm lucky to have found such a good GP so quickly, I still haven't found the right meds yet but I know my the GPs help, I will in the end

Good luck and gentle hugs xxxxx
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