Pain Clinic

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Pain Clinic

Postby csangel » Tue May 21, 2013 4:35 pm


I hope this is the right place to put this post - I couldn't decide, stupid brain!

I've not been on here for a while. Got my diagnosis in January, and have been going through a bit of denial about the whole thing. Thankfully got a referral to the community pain clinic - I know how people have to fight for this, so feel like I've fallen on my feet to get this. I have been to see their doctor a couple of times, but we decided that aside from 20mg amitryptaline daily, I don't want to go further down the medication route just now.

So I've been to see the specialist physio today. It was more a going over of where I'm up to and how I am/not coping than anything. Spent 45 minutes there with here and ended up pouring my heart out over some awkward questions :cry: - I think I've got to the stage where I need to go the next step with the anxiety and depression and want to take the next step (she said that was really good and means I should get a reasonably positive outcome from it all). :-)

So I now need to go and see the therapist lady, and then they can give me the green light for the pain management course. All sounds good and there's talk of some one on one counselling if they decide it will be useful to me.

The whole reason for this post (sorry - the background was longer than I expected!) is that she asked me a simple question. Aparently they ask at the beginning of the 8 week course what you want to achieve by the end of the course - something for you, to make you happy, no one else. She said much of the time people get lost in what needs to be done when they feel up to it, and forget what they want to do - hope that makes sense. ANyway, she asked me, and I completely blanked... I've been thinking about it literally all day, and I can't come up with anything... I want to have a tidy house, and I want to make life easier for my hubby who's been looking after me, but I can't think of a thing that I want to do, for me, to be completely selfish about... :crazy:

Am I over thinking this? Anyone any idea what they would want to do if someone asked? I struggle to meet the targets I set for myself, and put myself under too much pressure, making lists of things I 'need' to get done, so thought maybe that might be why I've been having problems thinking of something. It's really been bugging me today though!! :-x
Health is not valued until sickness comes. ~Thomas Fuller
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Re: Pain Clinic

Postby whoami » Tue May 21, 2013 7:46 pm

Csangel....i have been dealing with fibro for over 23 years now and forgot about some of the things we go through when newly diagnosed.

I recall being asked something similar to the question you were asked. I smiled a bit as I recall that I probably felt as you do. I can only suggest telling this person exactly how you feel and how you would like to feel.

I think that our attitude to this condition has a lot to do with how we are going to cope. If we only see the negative in everything then we will not cope well at all. It is hard to think positively with all the pain, etc. Learning to be realistic about what we are able to accomplish, successfully accomplishing it, will then have us see positive.

I don't think there is a right or wrong answer to this question you were asked because all our answers would be different.

I really benefited from the info I learned from pain clinics. I feel I live a great life and am in a better place than 15 years ago. I accept the way it is. I push myself to the place my body says stop, and I am satisfied with what I accomplished.

My medications make my life comfortable, maybe after all these years it is more like a marriage, live together but we can really irritate each other at times. We are here for life, we accept the way things are.

You will find a comfort level with fibro, accept and learn what the pain clinic offers you. Well wishes!

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