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The UKFibromyalgia Forums • View topic - Gabapentin



Gabapentin

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

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Gabapentin

Postby felinefine » Mon Nov 25, 2013 9:09 pm

Hi

I had an emergency apt today at the docs for my head pain, I have been prescribed oramorph now so at the mo I'm on:

paracetamol
tramadol
stomach protector (can't be bothered to get up to get the name)
aspirin
oramorph as required
zopiclone (as a trial)
Gabepentin

I asked the doc today for more gabapentin as I am running out of what the hosp gave me last week, I was told that although the hosp had given it to me and it was listed on my discharge letter as it did not say to continue she is not allowed to prescribe it to me as its not licensed for FM. I am waiting for an urgent apt with the rhuematology dept and hope that happens quick so I can continue to get the Gabapentin.

As anyone else had this problem as I have noticed some of you are on this drug. I am also worried about just stopping it, is this one that you should be weaned off of

thank you xx
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Re: Gabapentin

Postby JYB » Mon Nov 25, 2013 11:52 pm

I am in the UK. I have taken Gabapentin in the past prescribed by my GP for migraine and facial pain. It worked really well for 3 months then stopped working. At least I had that break. I hope you can get it prescribed. It seems a bit petty for the GP to refuse just because of the wording in the letter. Can you ring and speak to the specialists secretary and explain what is happening? Gabapentin wouldn't be given for just a week or two you need to take it for longer than that to get the full effect.
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Re: Gabapentin

Postby JYB » Tue Nov 26, 2013 12:15 am

Drugs can be used "off licence" ask you pharmacist about it.
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Re: Gabapentin

Postby PennyJ » Tue Nov 26, 2013 9:12 am

Mornin', I was prescribed Gabapentin back in the summer for pelvic pain and pain in the back of my head. i saw a locum doctor and she did not hesitate to prescribe me this. I now have it on my repeat prescription and my normal GP is ok with it. It has helped me although I have had to increase the dose. If it did help you I suggest that you do ring you consultants secretary and see if she will help. I feel your GP has his own agenda on this one. Good luck. :-D :-D :-D :-D
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Re: Gabapentin

Postby felinefine » Tue Nov 26, 2013 10:08 am

Thank you for your speedy replies, I did feel that the GP was a bit jobs worths, the last one in the practice did mention gabapentin to me and then changed her mind and referred back to the rheumy clinic.

I will call the hospital today and see what can be done, trouble is I find my confidence is flagging too now :(

xx
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Re: Gabapentin

Postby joyster14 » Tue Nov 26, 2013 3:12 pm

hi! i was at the pain clinic again last week and i've been taken off gabapentin as the pain clinic studies showed that they couldn't prescribe a high enough dosage for it to be effective, but, i felt it worked for me. i'm now on pregabalin and gently building up the dosage. i'm currently up to 175mg twice a day. i was a bit skeptical at first but i'm finding that slowly increasing the dosage seems to be working. the only thing wrong with going from gabapentin to pregabalin was the amount of pain i felt. my hands were agony, as were my hips, knees, neck, shoulders... blah blah blah! so i'm gonna stick with this and see how it goes. i'd be interested if anyone else on pregabalin gets itchy skin, it's driving me berserk!! :crazy:
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Re: Gabapentin

Postby FluppyPuffy » Tue Nov 26, 2013 4:01 pm

Joyster, what you're experiencing with the itchy skin may just be a side effect that will start to ease off as your body gets used to having Pregabalin instead of Gabapentin. The info sheet should tell you about the potential side effects. If it continues, or gets worse, then a trip back to your GP may be needed to see about it. I find that aloe vera gel often helps calm my skin when it is sore and itchy.

Felinefine, Gabapentin is prescribed on a regular basis for conditions like FM, even tho it's licensed use is for treating epilepsy and neuropathic pain. It can also be prescribed for helping prevent migraines.

It's a med that shouldn't just be stopped, it needs to have it's dosage gradually reduced when coming off it, just as when you start taking it, the dosage is gradually increased until the prescribed/maximum level is reached. It also needs time to build up and take effect, this tends to be around a month, but for others it can take as long as 2~3 months for benefits to be felt.


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Re: Gabapentin

Postby DeedleDee » Tue Nov 26, 2013 10:09 pm

Hi all,

New on here - hope everyone is well??

I've had mixed results with gabapentin. Been on it for about a month now at 300mg three times a day and to begin with I felt great (placebo effect maybe?). However the past ten to twelve days have been a nightmare. I'm under a lot of stress at work so am fully aware that this will be adding to any flare up, but my symptoms are worse than they have ever been. I was only diagnosed this year after years of tests, osteo, physio, medications and treatments for apparently numerous ailments, and can honestly say since diagnosis I have felt relieved that there is actually a medical condition causing all my problems. But currently I am not sleeping and am in constant pain (arm and hand numbness, shooting pain up legs when walking, hips burning and stabbing pain when on the move, constant neck and back stiffness...blah blah blah) to the point of tears. I am also on co-codamol and will openly admit I probably take more of these than I'm meant to most days to try and give me some relief. I am also on venlafaxine for depression, although my doctor advises these may be tapered off in the long term as my fibro may be causing this too.

Anyway side effects - I've also had the light headed / floaty feeling and my face has broken out in spots :-? However other than that it certainly agrees with me better than amitriptyline did. In terms of being prescribed it, my GP had no issues offering this as a treatment for fibromyalgia - maybe he's classing it as neuropathic pain, for which gabapentin is licensed?? I have the doctors next week so hoping maybe a dosage adjustment might be available, as I'm confident that something will help me and my work is the biggest issue at the moment. I just need to be equally confident there is a way of controlling the pain.

Would love to hear how everyone else getting on with this? Or any other suggestions?

D :crazy:
D xx

catch the moments as they fly, and use them as you ought....
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