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The UKFibromyalgia Forums • View topic - Food/drink sensitivities Vitamin & Mineral Shortages and Air



Food/drink sensitivities Vitamin & Mineral Shortages and Air

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

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Food/drink sensitivities Vitamin & Mineral Shortages and Air

Postby Lisa_D » Wed Jan 08, 2014 1:38 pm

I'm throwing caution to the wind here. I paid to have a sensitivity test done yesterday at my friends Therapy Centre. It showes up that I am sensitive to 17 different food/drinks I have several different vitamin and mineral shortages and 9 airborne sensitivities. I have also been advised to have my Mirena Coil removed, I am on my second coil after having the first one in for 5yr then changed and currently half way through my second stint. The gentleman that did my sensitivity test yesterday has advised that Himalayan Salt is very good in your bath, that it helps you to sleep and eases joint pain, it can also be used on your food.

Have any of you lovely people had such tests, wondered about the effects of our diet or indeed the coil issue? Feedback would be greatly appreciated. Xx

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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby Happy(jerky)feet » Wed Jan 08, 2014 2:15 pm

Hi. Lisa D. I have recently taken a similar test and I was found to be intolerant to ,wheat,yeast,gluten, beef ,eggs and dairy ,I have since cut these foods from my diet,which is hard,but I am feeling a lot better . I still have my pain and the usual fm symptoms but some how feel better to cope sort of lighter if that makes sense.
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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby FluppyPuffy » Wed Jan 08, 2014 3:12 pm

I've been looking into Himalayan and Dead Sea salts to use in the bath. I've come across some with combos of essential oils in them which are said to help with stress, insomnia etc.

Wrt to the sensitivity tests you had done, this is just based on personal experiences and in no way is meant to suggest that your friend's centre is of the same ilk. Having had a few of these tests carried out over time (altho not recently) then going to see my GP about things I was supposedly sensitive to and short of, the results they give tend not to be regarded that highly, esp by those who run more in~depth clinical tests to investigate sensitivities/allergies/intolerances.

For any sort of potential food or drink sensitivity, it tends to take time for it to be determined if it is a genuine and troubling one as time needs to be spent to see how the patient reacts when consuming it over suitable period, then the same length of time spent without consuming it so that a comparison can be made. Plus tests, scans and/or exploratory procedures may also need to be done as part of the process.

Wrt diet, some have found that cutting out wheat, gluten and lactose/dairy can make a difference to them, but for others it seems to make no difference at all. There are diets that claim to be able to improve FM, but these essentially involve removing certain foods that are thought to aggravate FM symptoms, but when you start looking for evidence about this, info is sketchy at best, esp iro of results of studies to support the claims being made. Following a healthy and balanced eating plan, which allows for a little treat now and again, tends to be the most sensible approach.

With the vitamin and mineral deficiencies you have been told you have, seeing your GP to discuss them might be an idea, esp as there seems to be more and more FMers finding that they have things like a Vit B12 shortage, which can mimic symptoms of FM in some. If you do feel that you may benefit from boosting some of your levels, a decent quality multi vit and mineral supplement may be helpful. You do need to be careful tho, as too much of some vits and minerals can cause problems, such as Vitamin A. Exceeding recommended levels can potentially cause liver~related problems.

I'm not trying to mock what you've had done, or deride the centre your friend has established, I know from my own experiences that there can be a lot of benefit gained from using natural treatments, remedies and approaches. When it comes to tests that can be done quickly and give you a result which says you have multiple sensitivities and shortages of things, I tend to be sceptical, and would suggest that anyone who has had such tests that they go and discuss them with someone, maybe more suitably qualified, to gain a little more info and perspective on things. When I had similar tests carried out, it suggested I had a severe problem with wheat and gluten. So off I went to see my GP, who based on what I was saying, history etc sent me off for a barage of tests etc, only for the results to come back saying that there wasn't any sign of any sort of problem :oops: :oops: :oops: :oops: :oops: :oops:

As far as your Mirena is concerned, having it removed it an extremely personal choice. The hormones the Mirena releases are synthetic, but in relatively low levels for it to do its job. If it is proving to be effective for you, then that needs to be weighed up against why he suggested that you have it removed. It may have been suggested due to the hormones it uses not being "natural" huu~mon ones. I have a Mirena fitted, I'm on my third one, and they have all been brilliant for me. I personally wouldn't change to anything else.


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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby denys » Wed Jan 08, 2014 9:02 pm

I'm sorry to say that I totally agree with fluppypuffy, I sincerely hope you havent got all the intolerances and deficiencies that have been listed and would definitely see your GP for conformation.
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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby Happy(jerky)feet » Thu Jan 09, 2014 3:39 pm

I had my test done on recommendation from a GP and it was a reparable lab . I have got diet advice and as I said yesterday I am feeling better. Anything that makes our lives a bit more tolerable is got to be a good thing .
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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby denys » Thu Jan 09, 2014 6:42 pm

Thats the main thing using a reputable lab for the testing especially if recommended by the doc, though why you couldnt have it done on the NHS is worrying.

You are 100% right anything that helps is a real benefit and not to be dismissed. But sometimes we hear about places that claim to have all the answers when all they have is the ability to empty our already depleted bank accounts.

So I hope you continue to find the new diet helpful and get some much deserved relief of your symptoms :-D :-D
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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby mandiw » Fri Jan 10, 2014 8:05 pm

It's not nice to hear people being negative about something that someone has tried that may help them. Have you ever heard of the Placebo effect.

If somebody feels that something they have tried is helping, surely that is fantastic, whatever it is.

we have all tried many things, prescribed or not, to help our condition. As it is still not known what causes our condition or what heals or helps it, there seems to no one answer, as you know.

If a person gets relief from their symptoms, if only even for a few days , that has got to be welcome. It may not suit everyone, I for one cannot take certain drugs or supplements because I have had a Renal transplant, but if it helps the person concerned then Good For Them.
Please don't try to tell them they are wrong.
Last edited by FluppyPuffy on Sat Jan 11, 2014 1:07 am, edited 1 time in total.
Reason: Made paragraphs a little clearer for easier reading.
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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby FluppyPuffy » Sat Jan 11, 2014 1:44 am



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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby denys » Sat Jan 11, 2014 10:31 pm

I wholly endorse Fluppy puffy's reply it is not negative to advise caution or even to advise against if believed to be dangerous, this forum is here to offer advice and support when and where requested and we moderators are around to remove anything upsetting or to off set anything deemed to be negatively pointed at the original poster :nono: :nono: :nono: :nono: :nono:
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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby Lisa_D » Thu Jan 23, 2014 3:57 pm

Wow! I hace just fot through the above comments which I appreciate from you all. I am sceptical myself of the tests I had done but as certain food were flagged, I am willing to give anything a go as I personally don't want to be on a cocktail of prescription pain killers. Each to their own. But understand that some individuals do need prescription meds. I have gone wheat, gluten and dairy free and cut out other foods and I did have my Mirena coil removed. It will take some time for my body to determine if these changes make a difference. My ibs certainly has improved. I am on a phased return to work and said to my mam just earlier today that I could do with a support bandage for my whole body or a fluffy cloud to sit on. I am back to see my Muscular Skeletal specialist next week and will be talking to him about all of the above and listening to his opinion. I have been having Dead Sea Salt baths but honestly can't feel anything different to a normal bath.

I do appreciate the feedback from one and all, that's what I requested.

Wishing you all a happy, comfortable day xx

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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby helen.whittaker.125 » Thu Jan 23, 2014 4:21 pm

From the people in the fibro group I'm with in Somerset it does seem we all have food intolerances mainly wheat and gluten and dairy. And yes vit B12 seems to be one we don't lack but have a lot of trouble absorbing, one of our group was a nurse practitioner and before he suffered his partner did and again she had the same food and victim issue. I would say take these results to your GP and tell him of the improvement so far, he may well agree that the tests are correct or he may ask you to try different tests or food illumination diets. We did one in our house when the paediatrician wanted to see if there was any food that triggered my daughters sensory illness.
Glad to hear you've found an improvement xx


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Re: Food/drink sensitivities Vitamin & Mineral Shortages and

Postby denys » Fri Jan 24, 2014 1:01 am

Hopefully you will get some further relief with all the eliminations you are trying :-D :-D :-D
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