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The UKFibromyalgia Forums • View topic - i need some help



i need some help

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

Moderators: perseus, *Lisa*, FluppyPuffy

i need some help

Postby maxinevalentina » Thu May 15, 2014 10:54 am

I just got diagnosed 5 months ago with fibromyalgia and iv been getting support witch I need coz I feel a mess
But iv been going to my doctors every other week begging them to help but they keep saying I'm to young to be put on prescribed painkillers
I have tried every single painkiller over the counter nothing works nothing helps numb the pain iv tried creams gels pads everything.
I got to the docs pour my heart out and they do nothing. Iv changed doctors 6 times they just font believe me .
I feel like I'm going insane all I do is cry coz I'm in that much pain .
My family couldn't care less about me so they don't help but my mates understand witch is Gd.
But I just don't understand y after 5 months of begging for help by my docs they won't.
Has anyone else had the same problem I feel so alone frustrated . I used to be so happy
now I feel like this condition is a life sentence .
:(
Maxi
you'll never know how strong you are untill being strong is the only choice you have
maxinevalentina
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Re: i need some help

Postby hoysey » Thu May 15, 2014 10:57 am

Sounds like you don't need to change Doctors, you need to change the Surgery.
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Re: i need some help

Postby maxinevalentina » Thu May 15, 2014 11:07 am

Oh sorry wasn't clear iv changed surgeries twice and seen 6 different docs in that time
you'll never know how strong you are untill being strong is the only choice you have
maxinevalentina
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Re: i need some help

Postby hazely » Thu May 15, 2014 11:19 am

Hi sorry to hear that you are not getting any help how about asking about the pain clinic see if you can get a referral to there and hopefully that will help
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Re: i need some help

Postby Theresa34 » Thu May 15, 2014 11:23 am

Perhaps you could ask for a referral to a rheumatologist. My rheumatologist is the one that prescribes me the strong painkiller tramadol. I also use ibuprofen when I need to. How old are you? Are you sleeping ok? How much do you move around? I was giving a low dose antidepressant to get me to sleep. I am still stiff and sore in the morning but once. I start moving, I feel much better.
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: i need some help

Postby maxinevalentina » Thu May 15, 2014 11:28 am

Iv seen my rheumatologist few times and he just don't want to no me
He did nothing to support me . Iv asked to be referred to pain clinic
They say oh no that wouldn't benefit u iv done my research iv asked for everything
And I keep getting shot down
They no that my rheumatologist has diagnosed me but none of the doctors in my town seen to understand
Old young middle aged doctors none understand
I feel like I have to put my self in hospital to get listened to
to be taken seriously it's not right
you'll never know how strong you are untill being strong is the only choice you have
maxinevalentina
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Location: bournemouth

Re: i need some help

Postby maxinevalentina » Thu May 15, 2014 11:32 am

I'm 21 and sleep terribly like 3hs a night
and I got for walks everyday and feel even worse for it
Everything I do causes me more pain I feel useless
you'll never know how strong you are untill being strong is the only choice you have
maxinevalentina
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Location: bournemouth

Re: i need some help

Postby SchroedingersCat » Thu May 15, 2014 11:38 am

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Re: i need some help

Postby maxinevalentina » Thu May 15, 2014 11:48 am

My ruhmatolagist diagnosed me this is exactly what his said
Maxine after every test scan Uv had we finally no what's wrong ( he looked so pleased)
U have fibromyalgia here's a leaflet I don't want to see u for a year good luck
Bye
I complained that's not what ur ment to do I sure
Just feel like doing something stupid to actually get listened to
But I won't I'm to scared of doing anything Coz everything I do causes me more pain
I just want to not be in pain for my birthday in 2 weeks
you'll never know how strong you are untill being strong is the only choice you have
maxinevalentina
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Re: i need some help

Postby SchroedingersCat » Thu May 15, 2014 11:52 am

My rheumatologist signed me off back to my GP after confirming the GP's initial diagnosis ( 2 consultations, an X-ray and some more blood tests with the rheumatologist). I'd also already seen a neurologist and a physio by then who also agreed on FM. Rheumy offered to sign me up for a pain clinic but since it was a 6 week course during the day I said no as I was just starting a new job. I've managed since without anything from GP or any other physician. I suspect what you are experiencing is actually quite normal for the NHS.
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Re: i need some help

Postby maxinevalentina » Thu May 15, 2014 11:58 am

Iv done everything to get help to be understood
I just want to feel normal for one day .
I don't want this taking over my life and I feel like it is
I dont no what to do anymore feel lost
you'll never know how strong you are untill being strong is the only choice you have
maxinevalentina
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Location: bournemouth

Re: i need some help

Postby Theresa34 » Thu May 15, 2014 12:39 pm

A lot of people seem to blame the poor nhs. I have said it before and will again, the nhs has been brilliant for me and my family. They've always been quick with appointments and quick diagnosis. I've been using it a lot since last year, my daughter has used it since she was 4 and twelve now and both my parents are currently using it. None of us can fault it. I am sorry that you're suffering the way you are Maxine. I don't know what else to suggest. It is difficult when you feel that you arent being heard. I don't see my rheumatologist very often, every six months and see a special nurse inbetween those appointments. They have been fantastic.
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: i need some help

Postby Theresa34 » Thu May 15, 2014 12:42 pm

I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: i need some help

Postby SchroedingersCat » Thu May 15, 2014 12:54 pm

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Re: i need some help

Postby migrembe » Thu May 15, 2014 1:31 pm

I am very sorry that you believe your Dr is being mean to you, but pills are not the answer. What you could do with is someone to talk to, and i know you have come onto the forum for support and we do try to help each other but try and find a support group in your area so you can talk to others face to face.
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