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The UKFibromyalgia Forums • View topic - Anybody Seen A Neurologist?



Anybody Seen A Neurologist?

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

Moderators: perseus, *Lisa*, FluppyPuffy

Anybody Seen A Neurologist?

Postby wornoutbloke » Fri Aug 08, 2014 8:00 pm

I finally managed to go to my GP yesterday and explain just how bad things have got for me recently. I've had an awful year or so I told her everything, I'm pretty scared of doing that because I hate having tests and being poked and prodded.
The dr did an examination of my legs and she doesn't think they're moving how they should be, they constantly shook and trembled when she was bending them so she is going to refer me to a neurologist to see if there is something that's been missed.

I'm pretty nervous and was wondering if anybody had been down a similar route to this and could give me some idea what might lay ahead.

Thanks.
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Re: Anybody Seen A Neurologist?

Postby stripes64 » Fri Aug 08, 2014 8:11 pm

Nothing to much to worry about, they will ask you questions about problems you have, go over your medical history, then ask you to do things like standing with your eyes shut, maybe walking a short way, test your reflexes nothing extreme, it is important its to easy to miss things as Fybro can mask other possible problems that could be fixed :-)
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Re: Anybody Seen A Neurologist?

Postby gilld » Fri Aug 08, 2014 8:21 pm

Hi! Have MRI brain scan and neurologist appt in October. It's a bit frightening but am putting it down to fibro specialist being thorough (well trying to). Have ESA Tribunal in Sept...not sure which one is scaring me most...fb a nightmare really as its symptoms so diverse. some days I just want to lie down and try to forget it all....wish I had cuddly bloke who understands...its really hard being single (and 57) with this. Sorry having a whinge x
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Re: Anybody Seen A Neurologist?

Postby morette5 » Fri Aug 08, 2014 8:37 pm

Just asked to be referred today. I have had difficulty focusing and thinking and planning and anything requiring multitasking.
I used to plan and multi-task all day and all night. Now my brain gets a cramp after 15 seconds of thinking.
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Re: Anybody Seen A Neurologist?

Postby wornoutbloke » Fri Aug 08, 2014 9:13 pm

Thanks for your responses. Put my mind at rest a bit. Sorry to you're all having difficult times too, I'm new to this board and it's nice to be able to talk to people who are going through similar things.
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Re: Anybody Seen A Neurologist?

Postby Joannee1969 » Fri Aug 08, 2014 9:39 pm

Hi I went to see my G.P today as i have been having headaches since june and being sick.I think it is down to my fybro but the doctor is referring me to see a neurologist. Im worried as well,really don't want to keep having tests just in case as I'm getting fed up now.Sometimes i really hate having fybro but i know i have to live with it.Best of luck morette5 when you go.
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Re: Anybody Seen A Neurologist?

Postby Theresa34 » Fri Aug 08, 2014 9:41 pm

I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Anybody Seen A Neurologist?

Postby migrembe » Fri Aug 08, 2014 9:53 pm

My GP and neurologist agreed that i have a marked left sided weakness, enough to think i had had a stroke, but the MRI brain and neck scan didn't show anything, so they are saying it is the fibro, but i still have to live with it every day.
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Re: Anybody Seen A Neurologist?

Postby steve_728 » Fri Aug 08, 2014 10:17 pm

Hi GillD, I too suffer from FM, as well as psoriac arthritis. Just been sacked by DWP because my FM messes with my head as well as the rest of my body, and yes it is difficult living alone. I am 55 and find because you dont look ill no one actually thinks you are ill do they?
I have just got an appointment with my Rheumatologist in 3 weeks so I think I will ask about a MRI on my brain. As for Atos medicals, if you attend then they say you are fit to work. Dont refuse to attend just say you cannot get there alone unless you can park literally outside the door, helps if you have a blue badge. A medical assessment can be carried out at home if required and you are allowed to have someone there with you also. I have my appeal against the sacking in 2 weeks but even if that is overturned, the stress has made my FM worse so I wont be fit to work anyway.
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Re: Anybody Seen A Neurologist?

Postby trigger » Fri Aug 08, 2014 11:56 pm

Hi wornoutbloke
I go this week to see my nuero as i had an MRI of the head and it looks like i mite have MS. Gentle hugs to you
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Re: Anybody Seen A Neurologist?

Postby gilld » Sat Aug 09, 2014 11:37 am

OMG Steve! Sacked by DWP? unbeleivable....no wonder we are all suffering from IDS if his own dept will do this to an employee. I wish you the very best for 2 weeks hence and hope you kick their butt. I agree with you tho...the stress of it all takes its toll on the fibro. Take care and tell us how it goes x
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Re: Anybody Seen A Neurologist?

Postby Planet of my own! » Tue Aug 19, 2014 12:11 pm

I was refered to a neurologist by my pain specialist. She tested my reflexes ans said they were very fast and she wanted an mri to look for ms. But after weeks of worry she said. Nothing Shown up on mri of concern. I then had a special eye test VEP, that came back slightly abnormal, but not enough to show MS. So I was told it's the fibro!
Is this really why my brain acts so weird, because I have some abnormalities and can fibro effect these things and show abnormal or is this something else?

Good luck to you all
:-) deb
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Re: Anybody Seen A Neurologist?

Postby Jo90 » Sat Aug 23, 2014 7:30 pm

I'm having a six month wait to see a neurologist and the appt is due in Sept. I'm very nervous, I don't want invasive tests. I'm hoping we can just chat about my symptoms, lol, wishful thinking, I guess.
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Re: Anybody Seen A Neurologist?

Postby Planet of my own! » Mon Aug 25, 2014 7:28 am

Hi,
In reply to Jo90, I was nervous too especially as I knew this neurologist, she had previously diagnosed my husband with young onset Parkinson's disease at the first appointment! So I knew this is a very knowledgable lady. But she put me at ease, doing different tests, with leg strength, reflexes and a certain test on my feet.
She then told me she was looking for MS only nothing else, because I had various neurological signs. Otherwise I'm sure she would not have put me I. For an MRI.
The waiting time is the worst because as humans it's natural to worry. Let us know how it goes, I wish you all the best.

Deb xx
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Re: Anybody Seen A Neurologist?

Postby Jo90 » Fri Aug 29, 2014 5:40 am

Thanks Deb x
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