Fatigue help

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Fatigue help

Postby keaedmondson » Sun Aug 10, 2014 1:29 pm

I'm really sorry if the below turns in to a long one… I have looked through the topics on here so have read quite a lot and got useful information butI'm just looking to see if anyone has anything extra that they might not have said on here because it hasn't come up.
I find my pain is manageable both from CBT, the fact I have to work so I push it to the back of my mind, sometimes painkillers and pregabalin.

The symptom I find the hardest to deal with is fatigue. It just seems to be getting worse and worse!
I want to come off pregabalin because I have had huge weight gain. And because I am going to go back to my doctor, actually a new doctor that worries me, to try to start the coming off process I thought I ought to think about what medications might be useful and if anything in particular would help with the fatigue.

I have read a lot on here about the benefits of duloxodine sp so think that might be a worthwhile Avenue to at least try. I have done amitriptyline and nortriptyline in the past and although again they have some pain relieving benefit I did not find them particularly helpful. I think the pregabalin has been better but the weight gain has been so great! And as I said, my fatigue is getting worse and worse and worse and I am reaching the stage where I don't know what to do!

Before I go to my docs and suggest the above, does anybody else have anything they find particularly useful to help with relieving fatigue? I can sleep for up to 20 hours at a time when I don't have anything else to do. Orif I have done something the day before. See another post that I sent yesterday… LOL!

I work full time and although I am very good at coping with that I find that as soon as I get home in early evening I just go to sleep, the whole night through usually about 12 hours. This is not good as I am supposed to be working at home at that time too and I'm totally unable to and also wiped out for at least one day possibly too of the weekend and the same problem applies.

I am thinking that it might be time to try a combination. I have always done each medication independently so far. I have spent this morning looking up about 20 different drugs and nothing has really shouted out to me that it might work. They all seem to conflict with each other. I know I should really go to my doctor and see what he or she says but I am so used to having to go to the doctor and tell them what I want that I feel like that's what I need to do for my appointment this week. I am also going to ask for blood tests again. I had the year ago and they came up with nothing apart from raised inflammatory markers I think that's what it's called, but I keep wondering about HYpothyroidism as an option so I will asked to be tested for that again.
Any thoughts?

Thanks.
Last edited by denys on Sun Aug 10, 2014 8:52 pm, edited 1 time in total.
Reason: added a space between paragraphs just to make it easier to read
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Re: Fatigue help

Postby alibp » Sun Aug 10, 2014 1:52 pm

Have oh tried D-Ribose? I have been trying this for 3 weeks now and although I still suffer if I do above and beyond usual activity I can still suffer fatigue I have found it very helpful on a day to day basis and don't seem to get side effects
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Re: Fatigue help

Postby gilld » Sun Aug 10, 2014 4:31 pm

Hello. Do you not have a consultant/specialist? My GP just kept on treating one symptom at a time instead of taking a holistic view. God alone knows how you work full-time. Have your employers done everything they can to make reasonable adjustments for you? You shouldn't have to spending the precious little time you have awake seeking out meds...best wishes x
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Re: Fatigue help

Postby Chickenosaurus » Sun Aug 10, 2014 6:16 pm

Hi keaedmondson, I'm also coming off Pregabalin as it was beneficial to start with, but the side effects are beginning to take over. Along with the weight gain, oedema etc, my blood pressure has suddenly got high so hopefully that'll come down.

Have you seen a rheumatologist regarding your inflammatory markers? Do you know what's causing that?

The things that I've found improve my fatigue are warm, sunny weather 8-) but that's not too easy to arrange! Prozac/fluoxetine and the occasional b complex pill (this may be placebo, but I'm convincing myself and I don't care!) Prozac can be an 'energizing' SSRI (I'm not going to refer to it as an anti-depressant 'cos the more I read about serotonin, the more processes it seems to be involed in...) I don't take 20mg every day, but maybe 3 days out of 5. If I take too much it affects my sleep. I know when I need to take it as my vision deteriorates. Within hours of taking it my vision (and fibrofog) improve... Telling a doctor this meets with great skepticism, :-D especially as they tend to repeat the 'doesn't work for 2 weeks' bit - but looking into the mechanics of Prozac, it has a pharmacological effect pretty swiftly. It doesn't do away with fatigue, but I really feel that it helps 'lift' it a bit.

I've had a bit of a revelation in my medical care - after I discovered a rather major screw-up in my medical records, I had a good growl at my Doctor's surgery & they had to grovel a bit. This included asking if I'd like to be contacted by the pharmacist at the practice - I didn't even know they had one! She's stopped some of the things that weren't working (tramadol & gabapentin) gave me Acupam/nefopam to work with & increase the effect of my co-codamol; gave me Naproxen (NSAID) & stomach protective stuff for really painful days/when I'm stupid & injure myself :roll: and tried me on different doses of Pregabalin. Trying to organize that with my GP would have been impossible!

Have you been to a pain clinic/ pain specialist? These seem to vary greatly from place to place, but if you see someone helpful, they can devise a plan which (if they're good!) will include medical combinations, stretching, exercise, relaxation etc. Working full-time will wear you out though - is there any chance of you going part-time? (I know it's easier said than done!) I just know that my fibromyalgia got worse as I tried to pretend it wasn't there and pushed myself far too hard when I first got it. Please look after yourself! :-)
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Re: Fatigue help

Postby denys » Sun Aug 10, 2014 8:57 pm

Ive put a space in between your paragraphs just so it was a bit easier to read, another symptom many of us have is trying to read big blocks of text, you get half way through and have forgotten what was said/ lost your place and have to start all over again :lol: :lol: :lol:

Have you had your B12 checked as that can also add to the fatigue, I havent really found anything to help sorry :fingerscrossed: :fingerscrossed: :fingerscrossed: you find a combination that will work for you
Denys

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Re: Fatigue help

Postby zappa20 » Mon Aug 11, 2014 1:53 am

Might be an idea to also ask for your vitamin D, haemoglobin and sodium levels to be checked. Each of these being on the low side can add to fatigue levels. Sometimes GPs don't consider that just being 1 level below normal range can affect some people particularly if they smoke, and don't even mention it to you.

Other basic things to rule out seem like really simple things, which can also cause fatigue but it would amaze you how many of us don't realise we're doing it in busy working lives.

Ensuring you're drinking enough , as dehydration will cause fatigue. And that you're eating enough quality foods at regular times, eg not skipping lunch and later grabbing a chocolate bar and crisps etc will create havoc with blood sugar level swings, causing fatigue.

Ensuring your sleep pattern is good with regular hours and routines for when you go to bed and get up each day. Sleeping for 20 hours at a time doesn't seem a good idea when you consider you're probably dehydrating and burning ketones due to lack of food intake while asleep. Not to mention your body clock.
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