'Off Label' Medications

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

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'Off Label' Medications

Postby Electrophone » Sat Sep 06, 2014 8:31 pm

I have been through all the usual treatments, amitryptiline, gabapentin, tramadol etc and all have been absolute rubbish for me.
My former GPs were pretty understanding and after assessment have prescribed me several things 'off label'. These were more to fight the fatigue rather than pain relief (Ritalin - works really well, and Wellbutrin - not very helpful at all)
What other things could I explore via this route? I have heard of Low Dose Naltrexone (??), would this be prescribed in this way? Are there any others?
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Re: 'Off Label' Medications

Postby migrembe » Sat Sep 06, 2014 10:09 pm

Nothing as helped me either, not even all the fad diets in the world but i am more or less vegetarian and healthy diet these days. nothing helps the fatigue but meditation helps me sleep - most night.

It might be worth you looking at alternative treatments such as meditation or acupuncture, etc.
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Re: 'Off Label' Medications

Postby HazelB » Sun Sep 07, 2014 4:43 am

I've been on ldn for just over 2 years, and for me it's been life changing. My pain has reduced to a level I can function at... I'm still in pain 24/7 but I'm not in excruciating pain all the time. General energy levels at also better in that I don't have energy dips.
Very few doctors will prescribe ldn on nhs. My GP writes me a private prescription but often people need to go through an independent doctor to get through prescription. Dickson's chemist


has a fact sheet you can download for your GP and also links to doctors who will write you a prescription if your GP won't.

http://www.ldnresearchtrust.org is another good site for info on ldn.

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