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The UKFibromyalgia Forums • View topic - Has anyone tried any harder drugs? e.g. types of morphine



Has anyone tried any harder drugs? e.g. types of morphine

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Has anyone tried any harder drugs? e.g. types of morphine

Postby Jont » Thu Oct 02, 2014 1:57 pm

Hey guys

Like most of you I am sure I have been on Amitryptiline, Gabapentin, Duloxetine over the years. I have never had more than a 15-20% benefit from these drugs.

Has anyone been put on hardcore pain killers like Morphine types of drugs? I don't know anything about them but would like to ask my GP on the next meeting.

I'm a little bit stuck because I think I will be loosing my benefit payments soon so I really want to get back to work. But I can't get back to work because current imflamation & pains means anything other than laying down is currently too painful. The only thing I can think of now is come kind of hardcore anaesthetic.

Thanks a lot.

Jon
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby zoomie » Thu Oct 02, 2014 2:26 pm

Hi Jon,

Are you taking no pain relief at all? If not try less addictive drugs first like paracetamol, ibuprofen, codine, nsd' s (non steroid anti-inflammatory drugs) if your already taking those the next step would be opioids, tramadol, butrans patches, then you have opiates, morphine, patches/pills...
I have taken all of the above, some make you very sleepy, (but when you have fatigue your there already right) the opiods & opiats made me feel sick to start with, and a little more unsteady/dizzy than my usual, but that all wore off within a few weeks.
I've not tried pressure point injection anaesthesia, but some people have said it has helped them greatly.
I would advise you to buy a Tens machine if you can, as this helps greatly.

The best thing you can do is explain to your gp/specialist what it is you need him to help you with and be willing to try anything.

Take care, I hope you get the help you need xx
Fibromyalgia comes in many shapes, sizes and abilities... DON'T DISCRIMINATE!!!!
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby shaz best » Thu Oct 02, 2014 2:38 pm

Personally I have been offered harder drugs to deal with the pain but I could not function day to day. I broke my shoulder in two places a few years back and had to take morphine but I could not do anything, wash, cook or look after myself. I take tramadol to a level I can still do day to day stuff. :-D
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby sieffon » Thu Oct 02, 2014 2:52 pm

Hi Jon. I have had oxycodne for pain relief. It is an opiate. From my experience my body got used to it very quickly and I ended up on a massive amount, 120mg modified release twice a day.
The worst thing was coming off of it. Please be mindful of all the side effects of being on them and what would happen if you had to come off of them.
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby eileen4891 » Thu Oct 02, 2014 2:54 pm

Hi yes I have tried them all. I was allergic to the actual patches . the liquid and capsules gave me really bad heart burn indigestion and all so with drew from them sweats shaking feeling sick this was hours before I was due to take the next ones. . yes they all eased the pain . just couldn't take them due to all the side affects . hope this helps
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby Garyl » Thu Oct 02, 2014 3:22 pm

was rushed to hospital with bad chest pain Sunday, was put on liquid morphine to help with pain, found it did help with my fibro in my hands and was good however home again n liquid morphine and do not want to get hooked n it so not persuing it a the moment
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby jaqui45 » Thu Oct 02, 2014 3:32 pm

Hi jont, my doctor put me on morphine slow release tablets after trying everything else that didn't do anything for my pain i started on 40mg and and i have to say they made me feel really woosy but after a while that feeling went and i was still in a lot of pain so was put on 60mg i wasn't happy taking them so decided to stop them without consulting my doctor... bad move, boy was i ill so i had to get them into my system again, i would say try other medication before going down the morphine road.
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby heatherjswiegers » Thu Oct 02, 2014 3:51 pm

Hello Jon
I have tried dyhidrocodeine, stronger than cocodent, this did not work for long. Tramadon did not work for me, no pain relief and could not sleep on it. I use oral morphine with dyhidrocodeine together but had to take way to much to get pain relief and the fall coming off the hieght was terrible and then had to build back up.

I am now on MST slow release morphine. This gives me a really good base line. I am only topping up with oral morphine. It feels great to not have to take large amounts of pain meds. This might not work for you. I am also on gavapenton, working my way up to a level that can stay awake on. Hopefully I will be able to take less of the MST once I get to a manageable level of the gavepenton.

Tens machine helps a lot and lidicane patches are a life saver(local anaesthetic patch).
I have had injections into my back when I lived in South Africa, yes they worked and I had 16 at a time. The professor that was treating me worked me down from once a month to once every six months. I would still prefer what I am on at the moment

Good luck
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby leswaltdave » Thu Oct 02, 2014 6:03 pm

Hi Jont
I take tramadol at the end of a days work just for the pain to help me sleep and it works a treat!

I don't take it during the day as it prevents me functioning like a real person.

1200 mg of ibuprofen is usually enough to get me through most days.
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby annikins59 » Thu Oct 02, 2014 6:46 pm

Hi, I am on 70 mcg per hour Bupenorphin patches, which I wear for 4 days at a time, with sub lingual tablets for breakthrough pain. Apart from fibromyalgia, I also have chronic pain following a gallbladder operation in 2007. This is much stronger than morphine and just about let's me function.
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby whoami » Thu Oct 02, 2014 6:53 pm

Jon...
.......I have had fibro over 25 years. I have had every drug offered. I now wear Fentanyl, a high dose. I have been on this same dose for. 8 years. It let's me function. I have no side effects such as drowsiness, stoned feeling etc. "because" the drug and the amount I take is being used properly and needed.
........Fentanyl is about the strongest pain med you will get. It is a lot stronger than morphine or bupenorphin. Look it up!
........You have to already be on a high level of opiate before it is prescribed.

........Would I recommend it? It is not for me to say. You need to discuss any meds seriously with your Dr. I have had many surgeries over the years along with other issues. I have built up a tolerance to some meds.

........At one point was taking over 10 oxcy a day. The oral meds have wrecked my stomach. I do not want to take more oral meds than needed.

........A stronger medication sometimes is not what is needed. It may be a change of meds that will work. I hope you find something that helps.
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby Joannee1969 » Thu Oct 02, 2014 10:51 pm

Hi Jont,

Im on fentynel patches they have been great for me i am one of the lucky ones that has had no bad side affects from them,i have tried every tablet going but they just make me so ill,I'm on a slow release patch i just change it every three days and it has made a great difference i can now function.I know if i have forgotten to change it as my pain levels rise,as with most fybro sufferers i have memory problems and forget to change them sometimes but my body soon lets me know.
It took me two years of servere constant pain and trying everything else before they decided to give me morphine based patches,they have worked for me so lets hope they work for you.
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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby Betakitten » Fri Oct 03, 2014 10:57 am

I've been on most pain relief and to be honest found that morphine wasn't working too well for me pain wise. I've just been put onto Tapentadol (newish drug in the opiate line), it's not only an opiate but it's given for nerve pain too! It's strength lies somewhere between Tramadol and morphine.... it's really starting to become a big thing in Fibro treatment and stuff. It's given me the most peace of mind of anything i've taken so far!! I know all treatment is personal, but to those still having issues it might be worth asking about! It also does NOT disturb my sleep, i could cry i'm so happy!!! ♥♥
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Re: Has anyone tried any harder drugs? e.g. types of morphin

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Re: Has anyone tried any harder drugs? e.g. types of morphin

Postby Betakitten » Fri Oct 03, 2014 6:35 pm

There seems to be a preference among some of the more forward thinking medical professionals for prescribing it (Tapentadol) these days. But this was suggested via my pain clinic doctor, but it is really prescribe-able by anyone! It just depends if your medical professional keeps up with the prescribing trends. But a visit to a pain team would sort you out with this easily.

My husband also working in a pharmacy and he said it seems to be a growing trend to prescribe this. He's seeing it more and more.... i can only hope that is good news for everyone!
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