[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 112: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 112: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4780: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4782: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4783: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4784: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
The UKFibromyalgia Forums • View topic - Pain Clinic, what to expect?



Pain Clinic, what to expect?

All your questions and experiences of medication and treatments on the NHS or Private Healthcare.

Moderators: perseus, *Lisa*, FluppyPuffy

Pain Clinic, what to expect?

Postby changeoflife » Mon Aug 03, 2015 7:49 pm

Finally have appointment on Wednesday for the Pain Clinic, any pointers as to what I should expect?
Stand for something or fall for everything!
changeoflife
UKFM Member
 
Posts: 231
Joined: Thu Apr 09, 2015 8:45 pm
Location: Weymouth Dorset

Re: Pain Clinic, what to expect?

Postby lizashfield » Mon Aug 03, 2015 10:17 pm

Reading what other people say, the clinics tend to vary quite a bit. I was referred by my GP to our local one. My partner and I attended a meeting with two members of the clinic. One was an occupational therapist and I cannot remember (Fibro fog) what the other lady was. We talked with them for about an hour which was very helpful as I'd not talked so long before about it. We discussed symptoms, pain, what I could no longer do, pacing, my state of mind, etc.

From that meeting they referred me to a Pharmacist having previously explained that there were several members of their team specialising in different bits. The meeting with the pharmacist was useful as we discussed drugs that I had been on and what I was taking now. He then made some recommendations to my GP about what we had discussed.

My next session was a whole morning with a group of about ten patients suffering with chronic pain. Various aspects of pain, its affect on our lives, exercising, breathing was touched upon. Personally I found this session a bit too generalised as I was the only one there with Fibro.

The next stage will be a seven week course of half a day per week with various members of the pain clinic. A friend of mine who has just been on this course thinks that this will help me - she too has Fibro.

Best of luck - I hope the Pain Clinic helps.
lizashfield
UKFM Member
 
Posts: 40
Joined: Thu Nov 13, 2014 9:58 pm

Re: Pain Clinic, what to expect?

Postby emma_poland » Mon Aug 03, 2015 10:37 pm

Hi, I've recently finished a 10 week course ( only 2 mornings a week, don't worry ) at my local hospital in Eastbourne. Altho I was really worried that I would cope with it I went, with my pillows and pain relief and it was a small group of 8 people, run by a physio and occupational therapist.
The main help it gave me was seeing there are other people like me with their own stories to tell but all of us having so much in common. We had time with a pain consultant, physio, participents from the previous courses ( and someone else, mind blank but another medical person. WE were taught how to pace ourselves during the day, breath properly to ease the pain, what pain relief we used and advised by the consultant pros and cons. |We were helped to learn how to relax whilst listening to meditation cds ( may sound silly but if u can concentrate it actually helps u nearly doze off). An occupational therapist came round to the house to see if they could supply anything to help u try and live a normal life ! bannisters fir stairs, perch stall to sit on in the kitchen to help cook ....) but the best thing at the end was that as a group we became friends and so if we have a flare up now we have people to ring who understand our pain and may have an idea I not thought of to help me or even just to understand.
I hope I haven't waffled on for too long but give it a go, if it doesn't work, well you tried!!!! xxxxx
Emma
emma_poland
UKFM Newbie
 
Posts: 3
Joined: Mon Aug 03, 2015 9:44 pm

Re: Pain Clinic, what to expect?

Postby Joan 100 » Tue Aug 04, 2015 6:54 am

The experiences described sound great so I looked up the one run at my local hospital and it sadly doesn't do the same things, the one near me does the following.

Information on nerve blocks, simple local injections procedures, simple joint injections, tenderpoint and Botox injections by the medical staff, use of TENS machines and acupuncture therapy. :(

Disappointed as having read the experiences of the other 2 people I thought It might help me to get a referral but I guess the service you get depends on where you live.

I hope the clinic goes well for you changeoflife and is like the ones described above :-)
Joan 100
UKFM Member
 
Posts: 34
Joined: Mon Aug 03, 2015 2:21 pm
Location: Lincolnshire

Re: Pain Clinic, what to expect?

Postby changeoflife » Tue Aug 04, 2015 11:13 am

Many thanks guys for your input and welcome joan 100 :lol: ill let you know how i get on. Ive got the sleep problem sorted, in the main the pain is sort of under control, although neck, wrist, knees and elbow pain is still a nightmare each morning. Im also really struggling with stairs lately, and having my bedroom in loft conversion is becoming increasingly more difficult. I think ive finally got my head around having this condition, but sometimes still feel sad about not being able to do some of the things i used to do. Retirement isnt fun when your otherhalf is still working full time. After thinking for a while, ive begrudgingly bought a scooter, but will only use it when alot of walking is required. I still have been unable to leave house by myself since last Oct, god im such a changed person. Anyway, ill put an update once ive been tomorrow. Xx
Stand for something or fall for everything!
changeoflife
UKFM Member
 
Posts: 231
Joined: Thu Apr 09, 2015 8:45 pm
Location: Weymouth Dorset

Re: Pain Clinic, what to expect?

Postby emma_poland » Tue Aug 04, 2015 11:14 pm

emma_poland
UKFM Newbie
 
Posts: 3
Joined: Mon Aug 03, 2015 9:44 pm

Re: Pain Clinic, what to expect?

Postby changeoflife » Wed Aug 05, 2015 1:41 pm

Well, just back from pain clinic, had about an hour talk about my condition, what I would like to change, what were my goals, medication etc, I'm going to try to cut down on gabapentin further until I should be off it in about 4 weeks. Talked about TENS machine that I thought I might try, and was told wait I could borrow one if I find it useful from them. I start an eight week course in September with a group (could go individually if wanted) where we talk about improving our activity and gain a better knowledge together of fibromyalgia and dealing with pain relief and feeling better in general about ourselves. I'm a bit sceptical but am willing to give anything a go. Just a bit of a pain having to pay taxi each way, hey ho!!
Stand for something or fall for everything!
changeoflife
UKFM Member
 
Posts: 231
Joined: Thu Apr 09, 2015 8:45 pm
Location: Weymouth Dorset

Re: Pain Clinic, what to expect?

Postby Joan 100 » Wed Aug 05, 2015 2:25 pm

Joan 100
UKFM Member
 
Posts: 34
Joined: Mon Aug 03, 2015 2:21 pm
Location: Lincolnshire

Re: Pain Clinic, what to expect?

Postby changeoflife » Wed Aug 05, 2015 2:36 pm

Yes she did say maybe someone in group might offer a lift, we'll see :lol: she said she would try TENS on me first before lending them out to me. It all seemed beneficial to me. And yes, fingers crossed as I detox from the gabapentin :crazy:
Stand for something or fall for everything!
changeoflife
UKFM Member
 
Posts: 231
Joined: Thu Apr 09, 2015 8:45 pm
Location: Weymouth Dorset

Re: Pain Clinic, what to expect?

Postby Joan 100 » Wed Aug 05, 2015 4:58 pm

[quote="emma_poland"]Oh Joan that's really rubbish, Where do you live?
My local hospital is joined to 3 others so if yours is maybe one of the others can help you.
Good luck, but if I can help with what i've learnt I will. I've written it all down cos my memories shoking x

Thank you for the offer of sharing what you've learnt with me :-) I live near Lincoln and there are other hospitals its just there all too far away for me to get to so I always get referred to Lincoln County. I've actually bought a book I found on amazon with therapy techniques in it like pacing, logging, stress management, emotion management it's titled 'The CFIDS/Fibromyalgia Toolkit: A Practical Self-Help Guide so I'm hoping it will give me some good information and helpful ideas, I'm just waiting for it to arrive.
Joan 100
UKFM Member
 
Posts: 34
Joined: Mon Aug 03, 2015 2:21 pm
Location: Lincolnshire

Re: Pain Clinic, what to expect?

Postby AlisonL » Tue Sep 01, 2015 4:41 pm

First pain clinic I went to majored on drugs - useful as far as it went but limited. BUT then I got myself on to the pain management programme at St Thomas's Hospital in London (they take referrals from all over the place). Four weeks, and you have to live there Monday-Friday. Sessions include education about causes of pain , drug information, occupational therapy, physiotherapy and psychotherapy. A lot of the work is based around Mindfulness. What can I say? Transformative is the word that springs to mind. And I made some really good friends who understand what it means to have fibro.
AlisonL
UKFM Member
 
Posts: 37
Joined: Tue Sep 01, 2015 9:45 am


Return to Treatments & Medication

Who is online

Users browsing this forum: No registered users and 3 guests