According to my calculations . . .

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Postby MCT » Sun Mar 01, 2009 11:39 pm

Here goes for my 3rd attempt

Provision of dedicated Regional Fibromyalgia Clinics or Centres within the UK

It is widely accepted within the NHS that there is a prevalence of between 2.0 – 4.5% of the UK population with the extremely debilitating condition known as Fibromyalgia (FM) which affects every aspect of their lives. (Please see information contained on the NHS website:
http://www.nhs.uk/conditions/Fibromyalgia/Pages/Introduction.aspx?url=Pages/What-is-it.aspx)

FM is an “invisible illness” where sufferers may look well but suffer from chronic fatigue, cognitive problems, mobility problems, widespread pain and extreme sensitivity where even the slightest touch can be very painful.

If the population of the UK is 60,943,912 (as at July 2008) and using 3.25% of the population as an average, there are approx 1,980,000 people with the illness - more than the populations of the cities of Edinburgh, Dundee, Cardiff, Belfast and Leeds combined.

Fibromyalgia is a complex condition and sufferers have great difficulty in obtaining treatment due to a general lack of understanding of the condition. The main NHS Fibromyalgia Clinic is run by Professor John E Davies at Guy’s Hospital in London, there is one in Poole and another in Bolton.

There are almost 2 million people affected by this illness and the NHS provisions for treatment are inadequate as this debilitating condition often precludes travelling long distances. There is little or no provision for those living in Scotland, Wales, Northern Ireland and most areas of England.

The undersigned would like the NHS to address the issue of lack of specialised care for FM by setting up of dedicated Regional Fibromyalgia Clinics or Centres in Scotland, Wales, Northern Ireland and England.


Getting better???????
http://petitions.number10.gov.uk/FMClinics/

My get up and go just got up and went!!!

As you slide down the bannister of life, may all the splinters be facing in the right direction :)
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Postby cat123 » Mon Mar 02, 2009 9:49 am

Wellput,mct!!!whats the name of the clinic in bolton?...........cat123
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Postby LinzWorld » Mon Mar 02, 2009 12:37 pm

If you contact the Bolton support group, they have all the details.
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Postby cat123 » Mon Mar 02, 2009 6:26 pm

Thanks linz,I had no idea it was there..cat123
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Postby MCT » Tue Mar 03, 2009 12:24 pm

I have submitted the petition and it is now awaiting approval before being published on the Petition site.

Once it is published you should be able to find it here:

http://petitions.number10.gov.uk/FMClinics

It was too long so some minor adjustments have been made to it so that it fits.

Remember we need over 200 signatures if we are going to have a reply from the Mandarins at Westminster.

We the undersigned petition the Prime Minister to address the issue of lack of specialised Fibromyalgia care by the setting up of dedicated Regional NHS Fibromyalgia Clinics or Centres in Scotland, Wales, Northern Ireland and England.

It is accepted within the NHS that the prevalence of Fibromyalgia (FM) is between 2.0 – 4.5% of the UK population.FM is a debilitating, “invisible illness” affecting all aspects of life. Those with FM suffer chronic fatigue, widespread pain, extreme sensitivity to pain, cognitive problems & mobility problems.

If the population of UK is 60,943,912 (July 2008) & using 3.25% sufferers as the average, there are approx 1,980,000 people with FM, more than the populations of Edinburgh, Dundee,Cardiff, Belfast & Leeds combined. FM is a complex condition & sufferers have great difficulty in obtaining treatment due to a general lack of understanding of the condition.

The main NHS FM Clinic is run by Professor J E Davies at Guy’s Hospital, London. There is one in Poole and another in Bolton.

Almost 2 million people are affected by FM and the NHS provisions for treatment are inadequate as this debilitating condition often precludes travelling long distances. There is little or no provision for those living in Scotland, Wales, Northern Ireland and most areas of England and this should now be addressed by the NHS.
http://petitions.number10.gov.uk/FMClinics/

My get up and go just got up and went!!!

As you slide down the bannister of life, may all the splinters be facing in the right direction :)
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Postby gillshutt » Tue Mar 03, 2009 1:24 pm

I think your get up and go just found itself again :D Will keep an eye out and sign it as soon as it comes up. Thanks

Gill x
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Postby Corinne » Tue Mar 03, 2009 9:00 pm

Spot on! Will definitely sign :)
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Postby MCT » Thu Mar 05, 2009 6:26 pm

The FM Clinic petition has been approved and ready for signing.

http://petitions.number10.gov.uk/FMClinics/

Remember, we need a minimum of 200 signatures to get a response from the Government so spread the word folks.
http://petitions.number10.gov.uk/FMClinics/

My get up and go just got up and went!!!

As you slide down the bannister of life, may all the splinters be facing in the right direction :)
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Postby Corinne » Thu Mar 05, 2009 7:21 pm

Signed!

Do you mind if I post a link to this on the other forum I use?
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Postby Kayzee » Thu Mar 05, 2009 9:22 pm

Signed and thanks for submitting it MCT. :)
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Postby LinzWorld » Thu Mar 05, 2009 9:47 pm

I'll put it on the FIbroAction site.
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Postby MCT » Thu Mar 05, 2009 10:59 pm

Corinne & Linz

Please feel free to post the link on other sites - the more signatures the better!
http://petitions.number10.gov.uk/FMClinics/

My get up and go just got up and went!!!

As you slide down the bannister of life, may all the splinters be facing in the right direction :)
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Postby cat123 » Fri Mar 06, 2009 10:11 am

Signed .cat123
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Postby LinzWorld » Fri Mar 06, 2009 3:48 pm

I signed it and put it on the website - it'll be in the e-newsletter too as I'm only getting round to doing that today!

http://www.fibroaction.org/News/New-Num ... erers.aspx
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Postby motherelephant » Fri Mar 06, 2009 5:05 pm

signed motherelle
Like sunshine in the morning, may this brighten up your day and show you that you're thought of in a warm and loving way.
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