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The UKFibromyalgia Forums • View topic - Fibromyalgia - Prison sentence of pain



Fibromyalgia - Prison sentence of pain

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Fibromyalgia - Prison sentence of pain

Postby Claire Spong » Sat Apr 23, 2011 12:56 pm

Fibromyalgia – Prison sentence of pain

I didn’t ask for this, why did it choose me?
But now I have it, why can’t people see
The pain I feel is etched upon my face?
But of it they seem to see no trace.
To me it is obvious, all-encompassing and severe,
To them; “Oh yes, I get aches too dear”.
After a list of their minor aches and pains,
How do I then find the energy to explain?
The exhaustion that makes you tired before you’re even out of bed,
The way the Fibro messes with your head.
The pain that is there, daily, from top to toe,
No let up, no way to make it go.
The way some days I can barely walk,
And other days I can’t find the words to talk.
The way I have to plan everything I do,
Because if you do too much Fibro bites back at you.
Too much exertion means the next day in bed,
Or dragging around limbs made of lead.
The way just going upstairs makes my legs fill with pain,
Then wobble and shake as I go down them again.
The depression I feel that this is now me forever,
The prison sentence of pain that will never get better.
The fear of how much worse it could get,
A wheelchair? Housebound? I don’t know yet.
If I am lucky I won’t get much worse,
But even so it is still a curse,
To know that I can’t do the simplest of things,
Like ironing or gardening or emptying the bins,
Without forward planning and lots of breaks,
Which quadruples the time it used to take,
To try to avoid being struck by pain,
That will force me to be bed-bound again.
To have to refuse things I’d like to do,
Because I can’t manage it, is upsetting too.
How I wish I could go back to how I used to be,
Little did I know then what was waiting for me.
If I had known I would have done more,
Had children, got married, had a career I adore.
Now, for me, all those dreams lie in tatters,
And because of that my heart just feels battered.
But the ability and energy just isn’t there,
My body’s in pain just washing my hair.
Just getting your way through each day is a chore,
So there is no way for the things I hoped for.
So if people curse me and say I’m a quitter,
Make sure you tell them that you know me better,
Because you’ve read this poem and have the insight,
As to how having Fibro can change someone’s life.
And if they don’t believe you, tell them again,
That no-one would want this prison sentence of pain.
Dx March 2011
Read my blog about how I'm coping with finding out I have Fibro on: http://fibronewbie.blogspot.com/
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Re: Fibromyalgia - Prison sentence of pain

Postby MichelleJ » Sat Apr 23, 2011 2:40 pm

Claire, that sums living with fibro up so well.
Dx with fibromyalgia m.e/Cfs and asthma
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Fibromyalgia - Prison sentence of pain

Postby Niki d » Sat Apr 23, 2011 2:46 pm

An amazing poem Clare only a person with fibro could write some think like this.
When you know somebody feels exactly like you do life seems a bit more bearable.
Hugs and flowers niki 
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Re: Fibromyalgia - Prison sentence of pain

Postby carrieokay » Sat Apr 23, 2011 3:24 pm

Brilliant - one for the unbelievers!
Sorry I can't cheer you up today, will try again tomorrow.
x
Carrie

My doctor told me to stop having intimate dinners for four.
Unless there are three other people.
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Re: Fibromyalgia - Prison sentence of pain

Postby Claire Spong » Sat Apr 23, 2011 5:04 pm

It cheers me up just to know you appreciate the poem. Unfortunately none of my friends on Facebook would appear to have read it! Maybe I should give them the benefit of the doubt, after all it is a nice day so maybe they are out and they haven't been on Facebook yet today!

Sent from my HTC Wildfire using Tapatalk
Dx March 2011
Read my blog about how I'm coping with finding out I have Fibro on: http://fibronewbie.blogspot.com/
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Re: Fibromyalgia - Prison sentence of pain

Postby shazq » Sat Apr 23, 2011 5:13 pm

Very good Claire. :clap: :clap: :clap:
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Re: Fibromyalgia - Prison sentence of pain

Postby Nellyphant » Sat Apr 23, 2011 8:01 pm

Brilliant! Going to save that. Thanks for sharing.
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Re: Fibromyalgia - Prison sentence of pain

Postby denys » Sat Apr 23, 2011 9:04 pm

Nice one Claire :clap:
Denys

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Re: Fibromyalgia - Prison sentence of pain

Postby angelina101 » Sun Apr 24, 2011 10:16 pm

wow thanx for this poem claire its exactly how i feel.its brilliant.i wish i could explain it so well.x
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Re: Fibromyalgia - Prison sentence of pain

Postby fabme » Mon Apr 25, 2011 10:47 am

So true, it defiantly feels like that somedays :(

Thanks
Fab :D
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Re: Fibromyalgia - Prison sentence of pain

Postby Ellen Tracey » Mon Apr 25, 2011 5:28 pm

:clap: :hugs: :flowers:
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Re: Fibromyalgia - Prison sentence of pain

Postby crystalkaz » Tue Apr 26, 2011 1:05 am

:clap: :clap: Claire thats brilliant,sums up exactly how im feeling at moment, you just do not know how your going to feel from the time you wake up...every day brings different symptoms for us to cope with. Thanks for sharing your poem :hugs: :flowers:
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Re: Fibromyalgia - Prison sentence of pain

Postby emily73 » Tue Apr 26, 2011 5:55 pm

Hi Clare

What a great poem it hits the spot so well, it explains how we all feel and i have saved it to explain to people how i feel as i never know how to put it to words.

Brill

Emily xx
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Re: Fibromyalgia - Prison sentence of pain

Postby Ellen Tracey » Wed Jul 20, 2011 5:56 pm

Just brilliant :clap:
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Re: Fibromyalgia - Prison sentence of pain

Postby loubie » Thu Jul 21, 2011 2:38 pm

:clap: :clap: :hugs: :flowers: :blowkiss:
loubie xx

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