Hypothyroidism

For all your questions and experiences of illnesses associated with FM e.g. thyroid, IBS, TMJD etc.

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Hypothyroidism

Postby mugglebornmico » Tue Apr 19, 2011 3:31 pm

That's very interesting, I wonder why the completely refuse to test it. Someone told me to ask for a 'Thyroid Antibody' but I have no idea what that is

Soz took me ages to check back, Bad Week :( getting better :)

Mx
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Re: Hypothyroidism

Postby motherelephant » Tue Apr 19, 2011 8:42 pm

I was told recently when admitted to A&E, that they dont test T3 in this counrty because they have found that TSH is a perfectly good guide as to whether the thyroid is working properly or not . An antibody test shows if you have auto-immune thyroid disease,and that your thyroid is in the process of auto-immune dysfunction .Many people do not realise that there are different reasons for the thyroid to malfunction . I was diagnosed with the auto-immune version 6 yrs ago . I was also told recently that once you have one auto -immune disease you are suceptable to others. Motherelle .x
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Re: Hypothyroidism

Postby hazelairedale » Sat Apr 23, 2011 12:50 am

I have hypothyroidism too which was diagnosed almost 2 years before the fibro. Despite being on thyroxine I still didnt/don't feel great. I wish the gp would go by my symptoms rather than blood test results. I was borderline for a while before they would give me anything. It took for me to see another GP who was lovely to try me on thyroxine. Thats an interesting comment about the weight you are. I'm going to go and find out if they can up it a bit as I am very overweight and I'm only on 75mcg
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Re: Hypothyroidism

Postby motherelephant » Mon Apr 25, 2011 3:00 pm

Hello Hazeldare ,im sorry you are not feeling too good .I totally sympathize with you ,what were your TSH levels last time you were tested .Too many Gps just go by blood test results ,they are not specialists if you continue to feel bad see if you can be refered to an Endocrinologist .Hope you feel better soon .Motherelle x :hugs:
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Re: Hypothyroidism

Postby hazelairedale » Wed Apr 27, 2011 8:51 pm

Hi Motherelephant,

When I asked the last time my gp just said everything was fine. No specific numbers. I always forget to ask about TSH levels as I still find the whole thyroid thing quite confusing :? I'm sure I'm numerically dyslexic or something because when numbers and letters go together like T3 and T4 etc I just switch off as it reminds me of maths as school :roll: .

I'm waiting to have the mirena coil fitted next week for suspected endometriosis as I have been off work since Jan. Apparantley gynae probs can be associated with fibro too. I can manage the underactive thyroid ok, but the endometriosis has taken its toll so I'll be glad when thats under control . Anyway started on one topic then went off to another ........sorry :lol:
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Re: Hypothyroidism

Postby MarilynneT » Sat May 21, 2011 11:01 am

I am 59 in July and I was diagnosed with Hypothyroidism 2 years ago. I was put on Levothyroxine starting with 50mcgs which was increased to 100 which is what I take now. About 12 months ago I started getting a lot of aches and pains all over but just put it down to my job. I work in a factory 42 hours a week and do a lot of heavy lifting. I took 2 soluble co-codamol and 2 ibuprofen in a morning but noted that co-codamol can affect your TSH blood tests which I was due to have. I stopped taking the tablets for that reason and they weren't working anyway. I have also been tested for arthritis and to see if there was any inflammation anywhere but these came back negative.

I was in such a lot of pain I went back to see my doctor (not my usual one) he said I had Fibromyalgia. I mentioned my T3 levels but he dismissed it and put me on Amitryptiline 10mg at night and is sending me to see a rheumatologist. I went back to see my regular doctor and mentioned my T3 levels but he didn't want to know either. I said I thought I had all they symptoms of undertreated thyroidism - weight gain, hair thinning and fibromyalgia but he said my TSH levels were fine and that the T3 would show up if things weren't right. He has put me on Tramadol 25mg 3 times a day. I have found they help a lot and only need 1 in a morning and 1 when I come home from work. Then I take the Amitryptoline about an hour before I go to bed.
I go to see the rheumatologist in June so I shall ask him about my T3 levels and see what he says.

Just to add insult to injury I have a bad shoulder and hand (RSI) in both and have just had a cortisone injection in my hand and will have my shoulder done in 6 weeks.

It is very frustrating when no one will listen.
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Re: Hypothyroidism

Postby budda » Sun May 22, 2011 1:03 am

It is very frustrating when no one can hear what we are telling them,but when we come on here we get all the support from people who do understand, I hope your injections work for you :goodluck1: :fingerscrossed:
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Hypothyroidism

Postby natbwfc » Sun May 22, 2011 9:56 am

I also have hypothyroidism and that was diagnosed in Jan 10. I felt ok for a while but then started feeling rubbish again but my bloods were ok. Then came the FM diagnosis.

I was amazed to read how many of you have the same issue!!

As for my blood test results, I always get both TSH & T3?? Can't understand why some of you can't get T3? I can't remember what my levels are now but I'm on 100mcg per day.

I feel so frustrated for those of you who don't have dr's who listen! Got to say I'm very lucky in that respect!
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Re: Hypothyroidism

Postby motherelephant » Sun May 22, 2011 8:01 pm

It's starting to really annoy me .I felt shocking for 6 months lots of pain fatigue ,hair falling out .My gp said my TSH levels were fine so i struggled on .Then my niece who is a Dr in the states said i must demand to see an endocrinologist ,which i did .He checked my past TSH results that my GP had and immediately said it was too high that it should be below 2, my levels were 5 which is the upper end of normal . My levels still fluctuate and my symptoms are not always the same .When will the medical profession get their acts together too many people are really struggling because their Gps have the wrong imformation.We are all different.,doctors should take into account how thier patients are feeling some people are very symptomatic but with normal bloods .motherelle.x
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