How quickly life can change

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How quickly life can change

Postby Aelin » Sun Oct 02, 2016 11:15 am

Hi all

My gp told me a few days ago that she thinks I have fibromyalgia. It's come as a bit of a shock. Basically I was very busy end of last year 3 small kids a sick hubby working 12 hour shifts with only one half hour break and doing 66 hours every second week. 18 hours the alternate week but also going to college weekly, homework and driving lessons on days off.

So i passed my driving test in January started getting increasingly sore and tired, taking longer to recover from shifts. I made excuses and carried on. Moved 300 miles and started a new job. Was feeling worse and worse but my iron was always low so thought it had dropped and ignored the pain. Eventually one day I finished work couldn't move a muscle felt like everything was made of lead, could put sentences together. For days. Couldn't go to work. Went to gp but bloods were normal. A week and a half later she tells me it's probably fibro but it needs to be confirmed by a specialist and has given me four weeks off. Not good cause I'm getting less than esa or jsa.

Not quite sure at this point if I can drive 130 miles a week and work three 12 hr shifts in a row in dementia.

Does it really make your joints go snap crackle and pop?

Sorry sinking in today and needed to moan to someone who would understand
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Re: How quickly life can change

Postby Claire'scomfycorner » Sun Oct 02, 2016 1:32 pm

Hi Aelin

We definitely understand. Welcome to our fibro family :welcome: I totally get the limbs feeling like lead, sometimes even trudging up the stairs can feel like a real battle. Sometimes my knees snap crackle and pop.

Take the time off, fibromyalgia is covered by the 2010 disability act and so your employers have a duty of care towards you, they have to make reasonable adjustments.

But for now, stop and breathe, look after yourself!

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia :) x
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Re: How quickly life can change

Postby LindyM66 » Wed Oct 05, 2016 6:53 am

Hi Aelin,

I had a very similar experience earlier in the year. I was driving home from visiting a student, and my whole body just decided it wasn't going to play anymore. I had to pull over into a layby, as the pain was horrendous, and I couldn't move. I had to call my friend to come rescue me. She took me straight to A & E - who dismissed me, despite the fact I could hardly walk. I was off work for a month.
Anyhoo - after another visit to A & E and numerous GP visits, I got referred to rheumatology and a given a diagnosis.
FM has such an impact on your life - people don't realise just how much so.
As Claire said, you need to take care of you.

Much Love
Lindy x
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