Introduce yourself ((xx))

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Re: Introduce yourself ((xx))

Postby Jamie1964 » Wed Jan 04, 2017 10:51 pm

thanks for replying Billy. Yeah, Fibro fog finally got me diagnosed! i had my 8 month old granddaughter with me,for a few hours. For a very frightening 20 mins of which I could not remember her name, which left me very distressed. i noticed my memory getting worse, but This was the final straw. it still frightens me .They say, some cases of FM are caused by trauma, stress, injury?23 yrs ago, I lost 2 children in RTA. I also had bad head injury, and stress is mostly a daily occurance. I WORRY constantly, understandably, for everyones health and safety. (my adult kids still text or report in every evening ----- they joke about it,but do as I ask.) Any advice as to how I could learn to relax? my anxiety levels go thru the roof at times, which sends the FM into overdrive. I have dealt very well with my trauma and injuries, but feel now I am fighting a loosing battle . as the Fatigue is leaving me battle weary. :pull-hair: Plz, advice :(
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Re: Introduce yourself ((xx))

Postby maggie67 » Tue Jan 24, 2017 10:25 pm

Hi I'm Maggie,

i'm 49 and have 3 children and 5 Grandchildren. I have fibromyalgia and thought would maybe see if anyone wanted to chat.
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Re: Introduce yourself ((xx))

Postby lori1963 » Thu Feb 09, 2017 11:09 pm

Hi ime Lorraine, ime 54 and I was diagnosed with Fibromyalgia 3 years ago. It has completely changed my life and I miss the person I was before this illness took hold of me. :( x
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Re: Introduce yourself ((xx))

Postby perseus » Sat Feb 11, 2017 2:43 pm

Hi Maggie and Lori,

I hope the site will provide some comfort and useful information.

Stephen
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia. Regards Stephen
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Re: Introduce yourself ((xx))

Postby spencykins » Thu Feb 16, 2017 7:08 pm

Hello,
My name is Amy, I was diagnosed with fibromyalgia 3 days ago, WHAAAAAAAAAAAT!?? My head is, of course, filled with questions and worst case scenarios, my boyfriend thought this might be a positive thing for me to join so I don't feel so alone or like my head might explode! :lol:
It would be great to find other people in Dorset, or anywhere really!, who have fibromyalgia, and find out what things are on offer that they find help them.
Anyway, I'll stop jabbering on now!
Amy xx
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Re: Introduce yourself ((xx))

Postby perseus » Thu Feb 16, 2017 8:36 pm

Welcome Amy, glad to see you here

Stephen
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia. Regards Stephen
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Re: Introduce yourself ((xx))

Postby andysalisbury » Sun Mar 19, 2017 9:33 am

Good morning everyone, at least I hope you are having a reasonable one. Thought I would introduce myself, surprisingly am Andy close to Salisbury. I am not a Fibro sufferer, but my wife is, diagnosed in 2007 and just given ill health retirement. Came across the site doing research for her PIP and ESA. Am 59, she is 56, second marriage for both and we have 5 children and 4 children between us.
My thoughts are often lonely, but scanning through the posts here, came up with two at once.

Are there any people out there in the Salisbury area? I know my wife wants to get out and meet others who suffer. The nearest support group I can find is in Swindon.

It seems that a number of U.S. Carers are less understanding than we should be. Could I recommend that those who feel that way, get their other half to log on here and read through some of the posts. It gives a good understanding of things that might not be discussed at home.

Wishing you all a good day.

Andy
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Re: Introduce yourself ((xx))

Postby perseus » Sun Mar 19, 2017 12:02 pm

Andy, I've just checked and we have this information on the site. If it isn't up to date let us know.

South Central England
Salisbury Fibromyalgia Café

We have recently set up a Fibromyalgia Café at our practice in Salisbury, Wiltshire which is launching on April 27th. This is going to run on the 4th Thursday of every month from 1pm – 2:30pm and will not just be open to our patients.

The main aim of the group is to provide peer support to attendees so it is going to be very informal, just somewhere people can go to chat and make friends – we call it a café as everyone is provided with free tea, coffee, hot chocolate and biscuits and it takes place in the onsite café at the practice. The man that is going to facilitate the group is living with fibromyalgia himself and is really excited to set up a group and also arrange other meetings and activities with the members throughout the month (if they like).

Salisbury Medical Practice, Fisherton House, Fountain Way, Salisbury, Wiltshire, SP2 7FD

Tel 01722 333 034

email katy.gillingham@nhs.net


Horndean Fibromyalgia Support group
Email
Telephone 08453455942 Christchurch and district Fibromyalgia Support group
Email
Telephone 01425 274295
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia. Regards Stephen
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Re: Introduce yourself ((xx))

Postby andysalisbury » Sun Mar 19, 2017 4:31 pm

Perseus thanks for the info.

Lisa, two immediate things spring to mind for Assessment, have someone there, the report does not reflect what was said. Also, do not dress respectably, they hold it against you, wear old dirty clothes, scuffed shoes or slippers, do not wash and tidy hair, no make up. The worse you look the better!
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Re: Introduce yourself ((xx))

Postby Kezzabella83 » Thu Mar 30, 2017 9:35 am

Hi everyone, I'm 34, I have 3 kids, 7-5-2 they are my world :-D my hubby is amazing couldn't be without him. I only found out I had fibromyalgia and ddd in October last year been fighting a long time to find out what was wrong with me, originally I was told I had oastioarthritis and a twisted spine. We love animals we have 5 cats guinepig and fish 8-) looking forward to getting to know you all, it's a lonely road this fibro. Xx
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Re: Introduce yourself ((xx))

Postby Tori1971 » Fri Mar 31, 2017 11:40 am

Hi, I'm Tori, was told about 3 weeks ago that I have fybro.

I'm new to all this and would like some advice about I can ease my symptoms please.

I'm 46, live my my better half and have a 17 yr old son and a dog.

Please, Please help?
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Re: Introduce yourself ((xx))

Postby Akardy » Sat May 27, 2017 10:53 pm

Hello all,

I'm Oliver. I posted a little hello elsewhere on this site a couple of months back but I thought I might try posting on here to see if anyone wants to chat at all. I'm pretty stressed out at the moment, I've not been able to work for the last couple of years and have an appeal tribunal for my assessment of being fit to work in a couple of weeks and have no idea what I'm going to do if I lose. So would love to chat to anyone who's been through something similar there for one.

But also anything else that distracts me from that looming disaster for a bit is appreciated! Anyway, hope everyone's well!
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Re: Introduce yourself ((xx))

Postby LindyM66 » Tue May 30, 2017 1:08 pm

Hi Oliver,

I'm not knowledgeable about these things, so unfortunately, I don't have info that could help alleviate some of that stress.
I can imagine how stressful it must be though.
I still work full time - at the moment, however, I've been signed off at the request of Occupational Health Dept until mid July. If I haven't had MRI and various other tests done, it could be longer. Thankfully, I get full pay for 6 months, then half pay for 6 months.
But if I'm being honest, it has crossed my mind, " what if I can't go back to work?"
Blooming awful that the worry of financial stress, adds to the already debilitating symptoms.
Fingers crossed for a positive outcome, Oliver.

Much Love
Lindy x
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Re: Introduce yourself ((xx))

Postby Lolabean » Mon Jun 26, 2017 8:02 am

Hi, I'm Lorna, I was officially diagnosed with fibromyalgia a year ago but I have realised I've had symptoms for over twenty years. I have always worked inbetween crashing two or more times a year for weeks, months even years at time but it was put down to just my anxiety and depression.
Fast forward to now and I had to give up work a year ago due to the chronic fatigue, pain, mobility and all the other countless other symptoms I have. My life as I knew it is over, it's been flipped upside down.
I'm grieving for the life I had and I'm hear in the hope that I can make some sense of it and come to terms with my life as it now and move forward.
Thank you x
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Re: Introduce yourself ((xx))

Postby LindyM66 » Mon Jun 26, 2017 9:50 am

Hi Lorna, I'm Lindy. Nice to "meet you".
I can relate to what you say. It's very frustrating when life as we knew it, changes!. Even simple things, that used to come easy, are much more difficult, or unachievable. It's a pain in the a**!
I was also diagnosed last year, but like yourself, had symptoms for years previous. I came to a complete halt! My body seized up and I couldn't believe the pain all over.
After a month off work, I went back, and plodded on - until 2 months ago. I had to go off sick, after a fall. Been seen by neuro, and presently waiting on an MRI. Meds are being increased today, by my GP, on advice by neuro. It's going to take 6 weeks, for the gradual increase, for the dosage of gabapentin to be doubled to 1800mgs per day. So, rather than go back to work and risk going off again, if I can't tolerate the increase, Im asking for another 8 week line when the current 1 lapses on the 11th of July.
I have needed the break from work, to be honest. I didnt realise how exhausted I was. Gubbed, would be an appropriate word.
For someone who was very active, and always on the go, it frustrated me no end, that I couldn't do what I used to. Mentally and physically! The fatigue, pain, brain fog - the whole shabang.
However, all is not lost Lorna :-). We just have to learn how this condition affects us. In turn, when we know how it affects us, we learn to do things differently ( or find other things we CAN do) and we learn to listen to our bodies. I think that's the most important thing. I don't push myself further than I know what I'm capable of. There's no point, as it knocks me for 6 if I do.
What started as a " wee hello" , has turned to war & peace lol.
Anyhoo - you take care of yourself. You know your body better than anyone else.

Much Love
Lindy x
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