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The UKFibromyalgia Forums • View topic - Introduce yourself ((xx))



Introduce yourself ((xx))

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Re: Introduce yourself ((xx))

Postby FluppyPuffy » Mon Jun 26, 2017 12:04 pm

Hello Lorna xx Glad you've managed to find your way to us xx You're in good company on here, so anything you want to know about, just ask xx Anything that is bothering or annoying you, let it out xx Pretty much all of us have experienced times and situations similar to what you are juggling with at the moment and we understand how it leaves you feeling downside up and outside in xx

Lindy has given you some great advice xx It takes a bit of practice to get into living life with FM and it's effects, so just go day~by~day or even hour~by~hour xx Anything that doesn't work out quite right when you do it, file it away under the naff experiences to learn from xx And when you find something that makes a difference pop that under the good/not so naff experiences to learn from xx


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Re: Introduce yourself ((xx))

Postby Marzipanpants » Sun Nov 05, 2017 12:47 pm

Hi im Patti, just found this board and thought it might help me with FM and to talk with others who undestand it im from the Wirral, and im 55
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Re: Introduce yourself ((xx))

Postby Lesoot » Sun Nov 05, 2017 8:51 pm

Hi. I’m Rob. 39 and had fibromyalgia for 15 years. Over the last year or so, my condition has got worse and my pain is all over my body now. I work in retail and I’m on my feet all day. Not sure what else to put.

Hello all
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Re: Introduce yourself ((xx))

Postby Whitefam » Thu Nov 09, 2017 6:58 pm

Hello, I've just registered so thought I'd introduce myself. I am 45 and have 3 sons, my youngest is 19 and he started having symptoms which seem to fit fibro nearly 2 years ago. He had always been fit and healthy prior to this, going to the gym, football, skateboarding, you name it He had to give up his college course as well as all his hobbies and his beloved motorbike as he couldn't cope with the pain. He now gets around at home with crutches on his good days but outside he has to use a wheelchair. He still hasn't been diagnosed, he's seen several neurologists, a rheumatologist and OT from the CFS clinic. I think they're being cautious and making sure they've ruled out everything else first due to his young age but it seems they're slowly coming to the conclusion that it's likely to be fibro.
I am now experiencing a lot of similar symptoms after a car accident 3 months ago where I suffered whiplash. Today I've had a blood test for rheumatoid arthritis and thyroid. I had an mri scan of my neck which has shown degenerative disc disease but no damage from the accident. Tomorrow I have my first appointment at a pain management clinic. I'm still having physio but so far it only seems to make my pain worse. For a few weeks after my accident I experienced pain in my neck, shoulders and left arm and severe headaches, vertigo and vomiting. I now have pain everywhere, it can be in my legs, feet, lower back, hips. Mostly though I still have a lot of pain in my neck, shoulder and left arm. I have a pins and needles feeling down my arm most of the time and I seem to be getting a lot of pain on the inside of my elbows and back of knees. I've also had 2 migraines in the last 8 days which I never had before. I get a lot of pain in my muscles, it feels like I've run a marathon or been pumping weights, sometimes it feels like I've been kicked or punched and have severe bruising. In the mornings I'm stiff and at night the pain really kicks in. I'm on cocodamol, methocarbamol and amitriptyline.
My son is due to see a neurologist again in a couple of weeks and his rheumatologist has been trying to refer him to specialist centres in Newcastle, Leeds and Sheffield. So far Newcastle and Leeds have refused to see him, we are currently waiting to hear back from Sheffield.
I was wondering if anyone else has family members with the same condition?
In the middle of all this my partner has been off work sick since June and is awaiting surgery on his back. It seems that we only go out for doctor/hospital appointments!
I can only say that I really feel for anyone who has long term pain, I've had 3 months of it and that's more than enough. I want my life back! Hats off to you all for coping.
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Re: Introduce yourself ((xx))

Postby Whitefam » Thu Nov 09, 2017 9:22 pm

Thank you Lisa, I've been having a look around the forum and it seems there's quite a few people with family members in the same boat. Certainly makes for interesting reading...
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Re: Introduce yourself ((xx))

Postby LindyM66 » Fri Nov 10, 2017 11:19 am

Hi to everyone new to the forum :-)

Whitefam - I get you!

I too have widespread pain. When it first developed, I was like the tin man! Every joint and muscle felt like Id been beaten with the branch of a very big tree. The worst area is my backside - don't you be laughing now :-) it feels as if Ive been booted, numerous times, by a donkey, wearing steal toes caps! Its always painful, somedays worse than others. This is where my little friend, the heat pad comes in - oh what a life saver. I plonk it ontop of my pressure cushion, plug it in, and away we go. It's lovely! Keeps my butt muscles warm, which in turn, prevents my hamstrings tightening.
Trial and error for relief, unfortunately. There's no " one size fits all" - which is a shame!
I hope your son, your hubby and yourself, get some relief soon. People don't realise how debilitating fibromyalgia can be.

Much Love
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Re: Introduce yourself ((xx))

Postby Whitefam » Fri Nov 10, 2017 12:47 pm

Hi Lindy

Thank you! I'm definitely not laughing as I've experienced the butt pain too. And I completely agree with your explanation of being kicked by a donkey! The doctors haven't so far mentioned fibromyalgia to me, it's just that I've researched it over the last couple of years because of my son's condition and it all seems to fit with my own symptoms as well now.
I've read through a few threads on here as I wanted to know if there was anyone else with family members suffering too and I found there's quite a few. It doesn't make me feel good to know there's so many people suffering but I'm comforted by the fact that we are not alone. We do a good impression of the living dead each morning!
Although we all have our down days we mostly keep each other going, luckily we all have a good sense of humour - it does sometimes feel like the big man up there is having a laugh at our expense!
Anyway, I'm off to the pain management clinic today, see what they have to say.

Take care

NICKY
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Re: Introduce yourself ((xx))

Postby Vanessab29 » Tue Jan 09, 2018 12:41 pm

Hi

I am Vanessa . Single mum of an 11 year old boy. I have had fibromyalgia for just over 2 years now.
Haven't been able to meet or join any groups in my area as yet but would like to
I live in Harpenden , Hertfordshire
Have read through some of the threads on here and I know it is going to help me knowing your all out there
Look forward to chatting with you
x x :-D
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Re: Introduce yourself ((xx))

Postby Googie » Wed Jan 17, 2018 4:40 am

Hello everyone

I've joined this forum to offer hope to fellow sufferers.

I have had severe chronic muscle pain, joint pain and bone pain for over 2 years now. Along with the pain I had also had chronic fatigue and bouts of suicidal depression with uncontrollable sobbing. I suspected my symptoms were due to my menopause and/or my Hashimoto's Thyroiditis and Hypothyroidism. But after stumbling across articles about damaging Oxalates found in plant foods I started a Low Oxalate Diet just 4 weeks ago. Within a matter of days my fatigue and depression were gone and my pains lessened somewhat. My severe symptoms only return when I've inadvertently eaten high oxalate foods. I've read that ridding yourself of oxalates and consequently fibromyalgia symptoms can take months and years, rather than days and weeks. So although starting a low oxalate diet will not be an overnight cure it can be life changing.

As time goes on I hope to report to you the lessening of my painful symptoms and perhaps motivate others to at least try the Low Oxalate Diet.
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Re: Introduce yourself ((xx))

Postby LindyM66 » Tue Jan 23, 2018 10:26 am

Hi Googie

Glad to hear you're experiencing some success. I hope it continues.
Be nice to read updates of your progress :-)

Much Love
Lindy x
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Re: Introduce yourself ((xx))

Postby Sweetpea9680 » Fri Aug 10, 2018 8:15 am

Hi im new here, still finding my feet on how to post etc. Im 38,a mom of 4 aged 22,14,9 and 5.im unhappily married for 11 yrs although been together 17 yrs. Ive suffered terrible deep depression for the last 14 yrs and started suffering the effects of fibro for the last 7 yrs although was only officially diagnosed 2 yrs ago after battle with different drs. Im currently on codeine, pregablin, sertraline and paracetamol. Ive been on codeine based meds for at least 9 yrs and am now feeling immune to their effects as having to take more and more to get any relief. Recently changed drs back to my old surgery and really want some new stronger medication but feel like i cant ask as very few drs show you any true compassion and i feel like they look at me like i dont know my own body and that im a junkie. Im severely depressed and need something new. Help pls people..... Im close to giving up
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Re: Introduce yourself ((xx))

Postby tiggers-friend » Fri Feb 08, 2019 5:24 pm

hi everyone.

I am Carrie-Anne and I have a bodily age of 40 although sometimes I feel like I am 140!!!! I have just been diagnosed with fibromyalgia today after about two years of battling with Dr's who started off trying to tell me it was a mental health condition. i like listening to music, doing diamond art when i can concentrate and writing poetry. i am looking forward to getting to know and understand more about my condition, and getting to learn to handle it better. i like 'pointless', 'the chase' and have just got into 'are you being served' which although old amuses me and isn't too hard to understand. i like crafting and am looking forward to learning from people here about my newly diagnosed condition.


once again hi!


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Re: Introduce yourself ((xx))

Postby perseus » Fri Feb 08, 2019 6:25 pm

Welcome to the board Carrie-Anne

Sorry you've had so many problems with Dr's, it's a typical problem.

I haven't the patience for anything intricate nowadays!

Stephen
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Re: Introduce yourself ((xx))

Postby tonydin » Tue Feb 19, 2019 5:07 pm

hi all thopufgt id pop back to you its been a while :-D :oops: . so ive retired now and pains got worse :yikes: :yikes: wasent meant to be like that .. of for another mri on thrusday that will be no 5 ( god i hate mris) as new rummmy thinks i have ankolosing spondilites not fm as dx . i told hjim they all think that untill they see scan then chage thier mind.

so we will see if imageing has im,proved over last 8 years
hope flup lisa and rest od the old ones are still ok
regards
tony d
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Re: Introduce yourself ((xx))

Postby perseus » Tue Feb 19, 2019 7:05 pm

Best of luck with the MRI Tony. It's very quiet on here nowadays although Lisa is still around.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia. Regards Stephen
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