We Wish You Knew
Fibromyalgia is defined as
A condition which causes wide spread pain and tiredness
Yet there is so much more to it
So many things we wish you knew
We wish you knew
That we wish we could be happy and carefree again
That the pain steals the lives we used to have
What it is like to walk a day in our shoes
That we use make up and masks to hide and pretend to be ok.
We wish you knew
No amount of sleep or pain medications will cure us or make it better
We use every ounce of strength and determination to just stand and stay standing
How lonely and isolated we feel.
We wish you knew
How fibro has stolen our lives
It’s taken us from our families and friends
Just because I’m ok today it doesn’t mean we will be ok tomorrow
No two days are ever the same
The guilt we carry when we can no longer do the things we used to.
We wish you knew
How hard it is sometimes to keep going
How to listen to us rather than judge
Just because you can’t see it doesn’t make it any less real
When we say we are in pain really do mean it.
We wish you knew
How much strength it takes to do the simplest of tasks which others take for granted
To listen to us and our ideas, we know our bodies best
We are not lazy when needing to rest, we really are running on empty
Even when we say nothing it is still going on inside us
We just don’t want to burden you.
We want you to know
We don’t mean to forget things
What it’s doing to my mind and head
How we’re now half the person we used to be
How we didn’t ask to be like this.
We want you to know
Our pain is real
How much it hurts that you no longer visit, call or text
The distraction this can cause to us and others around us
I was already struggling before fibro took what little was left.
We wish you knew
Fibromyalgia isn’t a choice
It’s not made up
It is a devastating, life altering, incurable illness
We don’t want sympathy
Just a willing for others to understand
May 12th fibromyalgia awareness day
A day to spread awareness
A day to spread the truth
A day for our voices
To be heard.